Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bladder Pain


UK2004

Recommended Posts

UK2004 Rookie

Interested to hear people that have had bladder pain or urethral pain and found to be celiac and how long it has taken to clear up once gluten free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

I was diagnosed with interstitial cystitis at the age of 17.  It has not improved with diagnosis and treatment of my lupus or celiac disease.  Maybe in another year or two, I am still hopeful!

beth01 Enthusiast

I was wondering about this myself.  I have been having problems with a lot of bladder pain that is nothing like a UTI ( I was checked for one last week). It seems like the more water I drink, the better off it is. I have also been taking the stuff from the store that helps with urinary pain. I have also had problems with vaginal itching that isn't BV or a yeast infection. Taking Atarax for that.  I think it just takes our bodies time to recover from years of gluten exposure.  Hopefully it clears up soon.

1desperateladysaved Proficient

Sometimes a bladder problem can be caused by an enlarged uterus.  Just find out that I have a fibroid.  You may want to check on that.  When I complained about my bladder (frequent urination) they checked for bladder infection and diabetes and nothing else.

UK2004 Rookie

Is that in ladies only or can it affect the male urinary tract?

GF Lover Rising Star

Is that in ladies only or can it affect the male urinary tract?

Here is some information which includes specifics for men.

 

Open Original Shared Link

 

Urinary tract infections in men are often the result of an obstruction—for example, a urinary stone or enlarged prostate—or are from a catheter used during a medical procedure. The first step in treating such an infection is to identify the infecting organism and the medications to which it is sensitive.

Prostate infections—chronic bacterial prostatitis—are harder to cure because antibiotics may be unable to penetrate infected prostate tissue effectively. For this reason, men with bacterial prostatitis often need long-term treatment with a carefully selected antibiotic. UTIs in men are frequently associated with acute bacterial prostatitis, which can be life threatening if not treated urgently.

Good luck.

Coleen

UK2004 Rookie

My urine tests are all clear though. I read about several people having interstitial cystitis symptoms before giving up gluten wondered if there were more on here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NatureChick Rookie

There are all sorts of things that can cause interstitial cystitis and it can be caused by bacteria even if tests don't show evidence of an infection. For instance if you are a carrier of group B strep (a third of the population is) then it could have phases where it can have overgrowth and can irritate the lining of the bladder.

The first two things I would try would be to drink more water in order to flush your system. Next would be to drink lemonade which is a super easy way to deacidify the body. (I know, we think of lemons as being acidic, but in the body, they become a base. And though the body is able to balance out acid and base foods itself, most of the foods we eat are acidic so asking your organs to work too hard for too long in one way could mean that it isn't entirely successful all of the time.) I suppose it couldn't hurt to try avoiding sugar as well, as it can throw things off pretty quickly in a number of ways.

But aside from flushing the system and trying to vary your diet, I suppose I'd go see a doctor. They can also test you for vitamin or mineral deficiencies that might make it more difficult for your body to function properly. But I'd recommend researching and trying out nutritional approaches before taking pharmaceuticals that will only mask symptoms.

As far as I know gluten isn't a direct cause of interstitial cystitis, but I wouldn't be the least bit surprised if we learned in the future of it being related to the damage that gluten can do to one organ or another.
 

UK2004 Rookie

I've been following the intestitial cystitis diet but also gluten free. At first I started the diet and after a week no benefit and got extra pain after gluten so cut that out and started probiotics and natural anti fungals and been improving a lot but flares up now and then once I believe due to cross contamination. Interestingly other issues I have had have abated since cutting gluten but the bladder seems to be the one thing taking a long while.

across Contributor

I was diagnosed with interstitial cystitis about 6 months ago, but I had had it for at least 6 years. The elimination diet for that was what led me to getting tested for celiac (long story). 

 

For me, my IC symptoms cleared up almost immediately after going gluten, soy, dairy, nightshade, egg, and nut free. I have been able to add back nuts, eggs, small quantities of soy (like in a vitamin), and almonds without having symptoms. I notice that tomatoes seem to cause flares.

 

One of the biggest things that causes me IC symptoms is artificial sweetener (especially saccharin). 

Steph1 Apprentice

Bladder pain in the urethra and some incontinence are major issues when I have gluten.

Steph1 Apprentice

Bladder pain in the urethra and some incontinence are major issues when I have gluten.

I also wanted to add that my tests usually come back clean too...just once it said infection and that was after saying screw it and eating gluten for like 2 weeks.  I chalked it up to chronic inflammation and worn down immune system.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748

    Jem68
    Newest Member
    Jem68
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.