Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could It Be Because I Have Celiac?

cookiedog

By cookiedog
in Coping with Celiac Disease

Recommended Posts

cookiedog Newbie
cookiedog
Posted

This is my first time to this forum so forgive me if I seem like I don't know a thing about celiac. I was diagnosed about 2 years ago by a biopsy and really wasn't given much information. I know that I have had a problem for at least 20 years (I'm 33 now). To make a long story short...haven't done a gluten-free diet at all...just started reading up on it....I have really bad symptoms which I know I have to do my part to stop the damage and I plan on it starting now...my question is... can having gluten in your diet cause you not to be able to concentrate? Some days are terrible. I ate a blueberry muffin this morning, got a terrible stomach ache...all of the normal symptoms...running to the bathroom....but I've noticed that I have had a terrible time concentrating. Just curious, maybe I'm just getting older. I've noticed the bad concentration usually comes when I have all of the other symptoms.

I will try to educate myself more by reading up on the forum and I really am going to start now on getting better. Thanks for your time and comments.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
This is my first time to this forum so forgive me if I seem like I don't know a thing about celiac. I was diagnosed about 2 years ago by a biopsy and really wasn't given much information. I know that I have had a problem for at least 20 years (I'm 33 now). To make a long story short...haven't done a gluten-free diet at all...just started reading up on it....I have really bad symptoms which I know I have to do my part to stop the damage and I plan on it starting now...my question is... can having gluten in your diet cause you not to be able to concentrate? Some days are terrible. I ate a blueberry muffin this morning, got a terrible stomach ache...all of the normal symptoms...running to the bathroom....but I've noticed that I have had a terrible time concentrating. Just curious, maybe I'm just getting older.  I've noticed the bad concentration usually comes when I have all of the other symptoms.

I will try to educate myself more by reading up on the forum and I really am going to start now on getting better. Thanks for your time and comments.

<{POST_SNAPBACK}>

Yes that is why in some countries thay test children before they start school.

Get off the gluten you'll feel and think so much better.

Rachel--24 Collaborator
Rachel--24
Posted

Yes...its called brainfog and I had it real bad before I stopped eating gluten. It was one of my worst symptoms. I had problems with my memory, my concentration, hardly able to have a conversation at times and there were times when it wasnt even safe for me to drive. All better now that I'm on the diet. :)

Lisa Mentor
Lisa
Posted

I can't believe that your have gone this long not going gluten free. You must have has a rough two years. Now that you know, you have the healing power with in you. You can choose to feel bad and risk internal cancer and other disease and other associated diseases that can cause mega changes in your life, or loss of life.

Please take this seriously. I don't mean to sound so blunt. This is the time to inform yourself. You are still very young and should have a full life ahead of you.

Take time to research this forum and read all that you can. This will be the best source that you will be able to find. There are several books out there that will be helpful for those with Gluten Intollerance.

The people here have been an incredabale support and the collective experience has been totally invaluable. I truley would have not been able to handle my diognosis without the information and support that I have found on this site.

Every day that you are not gluten free is causing your damage to your system. Please read all these posts and ask any question that you need to. The key to a healthy life is in your hands. Join us, through our travels through Celiacland.

Welcome to the board and I hope you wil

Cookiedog, be a constant reader. Best wishes to you.

PS: Your lack of attentiveness is called "brain fog" and yes, it is a sympton of being "glutened". It may last a day or several depending a the level of your sensitivity. Dry mouth, scrambling with words, lack of abilty to concentrate, starting sentence and not being able to finish it, searching for words that just won't come...........yeah...."Brain Fog".

This is a message board about Celiacs help others. Ask away if you have any questions, and welcome to the board. We all want to feel better and live well with the world around us.

Lisa B.

ianm Apprentice
ianm
Posted

I had very few gut problems but the brain fog would get so bad I would become almost zombie like.

elonwy Enthusiast
elonwy
Posted

Brain fog was what drove me back to the doctors over and over, even more than other symptoms and what kept me pushing to find out what was wrong, even when they said it was in my head.

You'll be amazed at how good the gluten-free diet can make you feel, and I wouldn't eat gluten voluntarily now, just cause I can think and talk and do stuff again. You have to do it completely to have it work, but it is worth every bite.

Elonwy

christa Contributor
christa
Posted

I have horrible brain fog. I often can't finish a sentence because I can't think of the word I want to say. I am just starting a gluten-free diet as well. I know I even have trouble concentrating on a conversation when someone is talking to me an often just end up tuning out

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nettiebeads Apprentice
nettiebeads
Posted
This is my first time to this forum so forgive me if I seem like I don't know a thing about celiac. I was diagnosed about 2 years ago by a biopsy and really wasn't given much information. I know that I have had a problem for at least 20 years (I'm 33 now). To make a long story short...haven't done a gluten-free diet at all...just started reading up on it....I have really bad symptoms which I know I have to do my part to stop the damage and I plan on it starting now...my question is... can having gluten in your diet cause you not to be able to concentrate? Some days are terrible. I ate a blueberry muffin this morning, got a terrible stomach ache...all of the normal symptoms...running to the bathroom....but I've noticed that I have had a terrible time concentrating. Just curious, maybe I'm just getting older.  I've noticed the bad concentration usually comes when I have all of the other symptoms.

I will try to educate myself more by reading up on the forum and I really am going to start now on getting better. Thanks for your time and comments.

<{POST_SNAPBACK}>

The gluten-free diet to the newbie sounds like a deprivation diet. I can understand your unwillingness to jump into it, but it is the best way to go. The relief you feel from your symptoms and getting your life back will more than make up for going without gluten products. It is tricky, confusing and maddening at first, but after awhile it will become second nature. There are lots of substitutes out there, and just like mainstream foods, some are better than others. Also, after awhile of being gluten-free, your taste buds will sort of forget what the real stuff tasted like. But for me, getting my energy back, my brain clear (as an accountant, you sure can't be fuzzy about numbers) and my over all increased enjoyment of life is more important than any gluten containing product. And the physical consequences of NOT going gluten-free can be very severe. Sorry to preach so much, but it's only because I/we care here, and want everyone to be as healthy as possible. Are you considering the gluten-free diet in the near future, like ten minutes from now? We're here for you to ask any questions (none are too silly or personal) and to give you all the help and support you may need. Take care!

ianm Apprentice
ianm
Posted

My health has improved so drastically that I miss gluten like ten holes in my head. Once you know what it is like to feel healthy and experience mental clarity you will wonder why you hesitated.

Ursa Major Collaborator
Ursa Major
Posted

Cookiedog, I can't believe that you weren't told that gluten is poison for you, and that you NEED to stop having it to get well, when you were diagnosed! I don't know if you are on any medications to cover up symptoms, but NO meds will cure you, only getting yourself off gluten will.

So, forget about doctors (most are quite ignorant anyway), do your own research, take your healing into your own hands, and just DO IT! It's not nearly as hard as it seems. And it will be worth it! In fact, YOU are worth it. And the sooner to take the leap, the better. Every day you have gluten you will do more damage to your system.

Idahogirl Apprentice
Idahogirl
Posted

Wow!!! I thought it was just because I smoked pot so much for all those years! I can't WAIT until I can have my brain back! I thought it was permanent damage!!! That alone is enough to do the gluten-free diet for me.....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748
    bigwave
    Newest Member
    bigwave
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.