Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Leaky Gut Vs Mcas?


radley

Recommended Posts

radley Apprentice

After I went gluten-free the first time I had Anaphylaxis a few times. I reacted to eggs, mayonaise, bell pepper etc. I also had low stomach acidity and very few bowel movements (some days I almost got none!). I had difficulties going to the toilet. Is that Leaky Gut or MCAS? I am planning on going gluten-free again, but I'm afraid. This time I will cut all foods I reacted to before but I want to know what is it. Living in a place where most doctors don't believe Celiac and Leaky gut exist I have to be my own medic.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Hi Radly and Welcome to the Forum.

 

I think I saw in some previous post that you are self-diagnosed?  Is that for Celiac and MCAS or one of the two?  Typically MCAS symptoms are due to Histamines.  It's difficult to answer your questions without a bit more information.  

 

Colleen

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,481
    • Most Online (within 30 mins)
      7,748

    AntiWheatBabe
    Newest Member
    AntiWheatBabe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Peggy M
      I have tried many Vit D. Solgad is one that did not cause any problems. I take 5000IU. Most of their vitamins are gluten-free certified but this is not.  They can be purchased direct from Solgar or Amazon.
    • Scott Adams
      Michelin tire company, since 1900, has published a guide to restaurants that is very well respected: https://guide.michelin.com/us/en/restaurants For info: https://en.wikipedia.org/wiki/Michelin_Guide
    • trents
    • cristiana
      Hi Colin I share your frustration. My coeliac disease was diagnosed in 2013 and it took some years for my  TTG levels to settle to normal levels in  blood tests.  I had to make a few significant changes at home to make sure our house was as gluten free as possible (I share a house with gluten eaters) but time and time again I found I was glutened (or nearly glutened whilst eating out  - like regular bread being served with a gluten-free meal ).  Even eating in chains that Coeliac UK were recommending as safe for coeliacs.  So I gave up eating in restaurants for a while.  My blood tests normalised.  But here's the thing:  the lowest my TTG readings ever got to were 4.5 (10  and under being my local lab's normal levels) and now that I am eating out again more regularly, they've gone up to 10 again.  I am quite convinced this gluten is coming from exposure whilst eating out.  Small levels, that don't make me violently sick, but might give me a mild stomach upset.  My next coeliac blood review is in September and I mean to give up eating out a few months before to see if that helps my blood results get back on track. It seems to me that there are few restaurants which really 'get it' - and a lot of restaurants that don't 'get it' at all.  I've found one restaurant in Somerset and a hotel in East Sussex where they really know what they are doing.    The restaurant in Somerset hardly uses flour in any of their dishes; the hotel in East Sussex takes in trainees from the local college, so they are teaching best standards.   But it has taken a lot of searching and trial and effort on my part to find these two places.  There are certainly others in the UK, but it seems to me the only real way to find them is trial and error, or perhaps from the personal recommendation of other strict coeliacs (Incidentally, my coeliac hairdresser tells me that if a Michelin star restaurant has to have a separate food preparation so she has never been glutened in one - I can't say I've ever eaten in one!) For the rest, I think we just have to accept that gluten may be in the air in kitchens, if not on the surfaces, and there will always be some level of risk wherever one dines, unless the restaurant cooks exclusively gluten free dishes. Cristiana  
    • RMJ
      Hopefully @cristiana will see this question, as she also lives in the UK.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.