Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Worse After Going gluten-free


GlutenNoob

Recommended Posts

GlutenNoob Newbie

Good evening everybody! 

 

As I said in a previous post, I was recently diagnosed with Celiac Disease and my doctor said that a gluten-free diet is imperative. I was diagnosed with Crohn's about 9 years ago, so pre-gluten diagnosis, I often got sick from various foods I ate. However, I've noticed that since going gluten-free, I actually am getting MORE sick than I was before when I ate certain foods. Did any of you have that experience after going gluten-free? My best guess is that now that I've been eating gluten-free for a few weeks, my body is even more sensitive to gluten than before which means it definitely was a gluten allergy after all. I just find it odd that pre-diagnosis, I would get sick a lot after eating certain foods. And post-diagnosis, since eating gluten-free, if I eat something wrong or that contains gluten, it goes through me almost immediately and I get even more sick than I used to. Just looking for some more reassurance because it's been one heck of a ride - physically and especially emotionally. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beth01 Enthusiast

I have noticed since my diagnosis ( three months ago today) that is seems like every food bothers me at some point in time.  I can eat corn today and feel fine but I eat corn tomorrow and get sick.  Right now our bellies are so sore and inflamed from all the gluten damage, it's going to take time.  I was all worried that I have a ton of food intolerances but I just need to let my guts heal and go from there.

 

I try to limit the variety of foods I eat in a day.  I limit my meals to three ingredients( not counting seasonings), this has helped me a lot.  I also noticed that if I eat 5 smaller meals rather than three regular meals, my belly is a lot happier.  I try not to eat too much of one thing either, I have noticed that a lot of sugar can bother me ( gluteny symptoms ) or a lot of foods that are harder to digest.  I am also trying to stay away from processed foods, condiments are pretty much all I eat that is processed right now.  It is really hard to find a balance but the only way for me to learn right now is the hard way, so if I find a balance that works, I stick to it.  I have noticed that some things are bothering me and I don't need an elimination diet to figure it out.  Garlic hates me!  I really hope I can get that one back later, I really love garlic.  I can't eat too much soy in a day either so I really watch what it's in. A little is ok, a lot is not.

 

I think we just notice more now how crappy food makes us feel because we know that is our problem.  I was eating only Ramen noodles before my diagnosis, I thought they were the only thing I could eat without projectile puking.  Lol, how dumb was I?

GF Lover Rising Star

Are you combining the Chron's Diet and the gluten-free diet.  Stick to Whole foods, no processed items.  Start taking a good probiotic.  You may feel more severe symptoms if your getting gluten.  Some times the symptoms will evolve to different symptoms.

 

Have you read the Newbie 101 thread under the Coping Section.  It is a must to get a handle on this diet.  Be sure to read all the links too.

 

Good Luck

 

Colleen

Daisy1010 Newbie

I have noticed since my diagnosis ( three months ago today) that is seems like every food bothers me at some point in time.  I can eat corn today and feel fine but I eat corn tomorrow and get sick.  Right now our bellies are so sore and inflamed from all the gluten damage, it's going to take time.  I was all worried that I have a ton of food intolerances but I just need to let my guts heal and go from there.

 

I try to limit the variety of foods I eat in a day.  I limit my meals to three ingredients( not counting seasonings), this has helped me a lot.  I also noticed that if I eat 5 smaller meals rather than three regular meals, my belly is a lot happier.  I try not to eat too much of one thing either, I have noticed that a lot of sugar can bother me ( gluteny symptoms ) or a lot of foods that are harder to digest.  I am also trying to stay away from processed foods, condiments are pretty much all I eat that is processed right now.  It is really hard to find a balance but the only way for me to learn right now is the hard way, so if I find a balance that works, I stick to it.  I have noticed that some things are bothering me and I don't need an elimination diet to figure it out.  Garlic hates me!  I really hope I can get that one back later, I really love garlic.  I can't eat too much soy in a day either so I really watch what it's in. A little is ok, a lot is not.

 

I think we just notice more now how crappy food makes us feel because we know that is our problem.  I was eating only Ramen noodles before my diagnosis, I thought they were the only thing I could eat without projectile puking.  Lol, how dumb was I?

My husband has had similar problems, and we keep cutting out foods, but he still has digestive issues with almost any grain, rice, bean, oat etc. I found this site today, and she has been to Columbia University where new research is coming out about this, she lists the supplements she is taking to heal her gut, not just stay away from problem foods. I am going to try my husband one of these at a time and see if we have good results. This is a journey, we are gluten free, dairy, soy, nut, and most oil free as well right now. Good luck and don't lose hope, there are many out there that are on this journey. You just have to find what you are sensitive to, and find supplements that might help you heal!  Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents commented on Dr. Ron Hoggan, Ed.D.'s article in Winter 2005 Issue
      1

      New Data on Used Oats

    2. - trents replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      25

      Blood results

    3. - Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      25

      Blood results

    4. - DAR girl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Celiac and allergic to common subs and adds in prepared foods

    5. - Scott Adams replied to Jmartes71's topic in Doctors
      1

      Disregarded


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,178
    • Most Online (within 30 mins)
      7,748

    Stephanreyes242
    Newest Member
    Stephanreyes242
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
×
×
  • Create New...