Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Reaction In Just 1 Hour?

Ladyrhedd

By Ladyrhedd
in Coping with Celiac Disease

Recommended Posts

Ladyrhedd Rookie
Ladyrhedd
Posted

Hi! It's been a long time since I posted and even then, I only posted a couple of times, but I'm hoping someone can tell me if it's possible to react to gluten so quickly. I went to dinner with family tonight, I had a filet mignon (no marinade), a baked sweet potato (no butter/toppings) and a glass of water. When we walked outside to leave, I could feel the rumbles in my stomach and felt mildly bloated. By the time I got home (5-10 minutes later), I had diarrhea. I've gone two more times since then (we left the restaurant a bit over 2 hours ago.)

Is it possible it is gluten that is making me sick? I do think it is (my son had something floating in his water he said came from a pitcher and when I scooped it out to smell it, it smelled like bread-I'm not sure if I was drinking from the same pitcher, though), but I can't find much about how soon after being glutened someone reacts.

Thanks for any help/feedback.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

I think that it varies depending on how sensitive you are, how long it is since the last time that you were glutened, how big a dose you got, and things like that.  I don't think that there is a definitive answer which is why you can't find one.  I don't think that it inconceiveable that you could have reacted so quickly.  I think that I have.  I hope a that you feel better quickly.

GF Lover Rising Star
GF Lover
Posted

One of the few times I've eaten out I got glutened.  I was doubled over before we left the table.  It was very early in my diagnosis and I've learned a lot since then.  I assume it was cc from the kitchen as I was very careful on my end.  

 

Colleen

elless Rookie
elless
Posted

I feel it with in 20 minutes, half hour if I'm lucky. Usually it's the brain fog first and the headache. Like my heads full of rocks. Then comes the stabbing stomach pains. Then about 6- 12 hours later the D sets in. I think it's different for everyone.

Ladyrhedd Rookie
Ladyrhedd
Posted
  • Author

Thanks. I had a mild headache all day yesterday and generally felt "off" the whole day. I had another bout of D this AM, though, while nothing yesterday. <ETA: I had really bad stomach pains for a little while last night, too.> Now I'm wondering if it could still be gluten-my thought is yes, but my husband is doubtful...

GF Lover Rising Star
GF Lover
Posted

Thanks. I had a mild headache all day yesterday and generally felt "off" the whole day. I had another bout of D this AM, though, while nothing yesterday. <ETA: I had really bad stomach pains for a little while last night, too.> Now I'm wondering if it could still be gluten-my thought is yes, but my husband is doubtful...

 

If I get got, my symptoms in some way, shape or form last for about 3-4 weeks.  Many friends with multiple AI's also have long recovery times.  It's why some of us Veterans on the Forum are so careful and know so much about Celiac.  Once the immune system ramps up it can take awhile to calm back down.  Pre-diagnosis symptoms may return.  

 

Colleen

Doorknocker Newbie
Doorknocker
Posted

I'm a new Celiac (just diagnosed in April) but I can tell within 40 minutes if I ingested something with gluten.  Luckily it's only happened to me three times, but today was by far the worst.  We ate breakfast out at a place I wasn't exactly comfortable with.  I need to learn to speak up more, I guess.  I left the restaurant and got some things out of my trunk for my sister in law, and by the time I arrived at the grocery storea short distance away, where I intended to pick up a few things, my vision was shot and the brain fog settled in.  Then came the indigestion, the bloating, the gagging, the puking and the big D.  It's now been a full eight hours and my head rash, that never really went away, is starting to itch and tingle.

 

So yes, I fully believe symptoms can start within an hour.  It didn't take me very long to figure out I'd been cross contaminated today at all!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jddh Contributor
jddh
Posted

I used to have a hard "3 hour minimum" before I got sick. My guess was that this was how long it took for food to pass from my stomach to my small intestine, where the autoimmune reaction happens.

Since I've been getting older and more sensitive, however, I've found that window to be often smaller and unpredictable; sometimes as little as 30-60 minutes.

As folks have said, it's very personal! Getting an early warning can at least prep you for heading home and taking easy on yourself. On the bright side, the earlier symptoms begin, hopefully the earlier they wrap up for you!

Take care and feel better soon.

Ladyrhedd Rookie
Ladyrhedd
Posted
  • Author

Thank you all again! This is very validating! Yesterday I was driving to my sister-in-laws and I missed the turn I usually take and my husband was asking me where I was going. Then I didn't recognize another street I'd been on several times. It was so odd. I'm thinking it could be lingering effects since it was only 5 days later... My digestive tract is definitely still off. I may have to find or start a support group in my area because when I tell my husband that I think it's because of gluten, I don't think he believes it! There is still doubt in my own mind (really, it's denial, not doubt!)

notme Experienced
notme
Posted

if it's something else that just didn't agree with me (i have a problem with soy, for example.  i can tolerate a little, but too much will make my guts turn to goo) it's usually over pretty quickly.  if it's lingering with other telltale symptoms, then i can expect it to last, like 12 more days...  yay...  i am sort of 'lucky' - i get that left side pain that tells me it's gluten.  hope you feel better soon!

SMRI Collaborator
SMRI
Posted

I'm a new Celiac (just diagnosed in April) but I can tell within 40 minutes if I ingested something with gluten.  Luckily it's only happened to me three times, but today was by far the worst.  We ate breakfast out at a place I wasn't exactly comfortable with.  I need to learn to speak up more, I guess.  I left the restaurant and got some things out of my trunk for my sister in law, and by the time I arrived at the grocery storea short distance away, where I intended to pick up a few things, my vision was shot and the brain fog settled in.  Then came the indigestion, the bloating, the gagging, the puking and the big D.  It's now been a full eight hours and my head rash, that never really went away, is starting to itch and tingle.

 

So yes, I fully believe symptoms can start within an hour.  It didn't take me very long to figure out I'd been cross contaminated today at all!

 

What kind of dog do you have?  Our puppies look a lot  alike :D

 

 

I saw a blog the other day where a mom posted (in the comments not the blog writer) that have just ONE DAY of being gluten free her son's symptoms all disappeared, and she had a laundry list of digestive and neurological symptoms too....um, sure.....NOT. 

Doorknocker Newbie
Doorknocker
Posted

That's my rottweiler.  He was a baby in that picture but is now just over a year old and is 110 pounds. 

 

There's no way her son's symptoms just disappeared in ONE day.  In my case, my big D did stop once I eliminated gluten, but it took several weeks for the joint pain (I still get it sometimes) and headaches to let up.  I still have several other problems and I am almost four months in.  I don't believe her.

 

Lady, I think my husband believes me, but I don't think he gets it entirely.  I think it's really hard for someone who has never heard of this before to get it.  :(  I can't find any support groups in my area at all.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rejoicephd
      - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

      Wow what a helpful article!! I am just seeing this now but I hosted a small group of family for Thanksgiving at my house this year and I did some of these things- got a butterball gluten-free turkey, got gluten-free stuffing, had a few gluten-free sides, and a gluten-free nothing-Bundt-cake. I had other non gluten-free things there too for others, and I also...
    2. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

    3. marion wheaton
      - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    4. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
    5. BlessedinBoston
      - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,415
    • Most Online (within 30 mins)
      7,748
    KittyKatJill
    Newest Member
    KittyKatJill
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.