Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Managing Nausea From Glutening


jddh

Recommended Posts

jddh Contributor

Folks, can we talk about nausea relief?

Nausea is my #1 symptom and I am tired of just riding it out during those times I gluten myself.

I've been experimenting with ginger tea (simmer slices of ginger for 10-15 minutes) and it seems to be somewhat helpful. In fact, I tried putting a piece of ginger in my mouth and slowly chewing it and that helped too.

Wondering about the efficacy of gravol, since it's ideally introduced to the system before nausea starts. Of course, also have to make sure the pills themselves are gluten-free.

Tried the wrist pressure points; not a lot of relief there.

Does anyone have any other methods that work for them?

Thanks for your time and thoughts.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MJ-S Contributor

Would pepto bismol help? For me the nausea is a function of gas, and pepto bismol helps, if only temporarily.

cyclinglady Grand Master

Would pepto bismol help? For me the nausea is a function of gas, and pepto bismol helps, if only temporarily.

Nice tip. Just be sure no one has an allergy to aspirin (I do!).

My old doc would recommend old fashioned baking soda, but used only occasionally. it would be best to find the cause though.

jddh Contributor

Can Pepto help with indigestion into the small intestine? I thought it was essentially purposed for the stomach. I tend to get sick a couple hours later, ie. ostensibly when food is on its way out of my stomach.

 

Gas is definitely present :) Thanks for your thoughts.

cyclinglady Grand Master

Wow! You really might have a non-functioning gallbladder. Here is a link to an interesting article about gallbladder issues and the fact that not everyone has classic symptoms. Plus, it is strongly linked to autoimmune disorders like celiac disease. My symptoms came and went for years.

Open Original Shared Link

Have you researched ox bile? That might relieve your symptoms until you get to a GI. I have no experience with it. But I happily take thyroid from a pig!

blueshades Newbie

I just had the worst headache and what really helped was taking an allergy med and lying down for a while.

I took Telfast which i normally use for hayfever but it did help and i noticed after an hour the headache pain was gone even though it was still there. :)

 

 

CathyO Rookie

My nausea hits hard and fast, and is severe.  I have a prescription for Zofran.  That's about the only thing that stops it when it is vicious. 

 

I also drink Aloe Vera Juice. I use Georges Fractionally Distilled, and drink 2-4 ounces a day. It's made a huge difference.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beth01 Enthusiast

Look up Quease Ease if you want to stay away from the meds, they work.  I use pepto and it helps or if it is really bad I fall back on an anti nausea script.  Dramamine also helps with nausea but it can make you sleepy, so be careful.

 

I second cycling lady, get your gallbladder checked out. I also had a fecal impacted appendix that I carried around for more than four months, not sure how long before, but that made me very nauseous.

jddh Contributor

Can Zofran or Dramamine take action once the nausea has hit, or is it meant to be taken as a prophylactic? Drowsiness sound just fine—if either relieved nausea and let me sleep more, I would consider myself lucky :)

 

Really interesting stories about gallbladder issues. How were you diagnosed? I have an ultrasound coming up (too far away; calling every couple days trying to fit in someone's cancellation); hoping that would catch gallstones or swelling. Also pancreas, spleen, and all those other terrifying things the internet will give you unreliable information about...

beth01 Enthusiast

They will both help with the nausea after the fact.

 

When my gallbladder was bothering me, it was inflamed and no stones.  I had an ultrasound for that.  They took out my gallbladder that day.  It seems that most of us that have gallbladder issues are more due to inactivity or inflammation. I believe there is a scan (HIDA?) or something along those lines, I am not to familiar with them but hopefully someone who is will chime in.  I think it tests out the activity in the gallbladder.

 

Hope you get to feeling better soon and they can get you in sooner for your US.

CathyO Rookie

Zofran helps once the nausea has hit, for me.  It's sublingual, so no trying to swallow liquid or keep something down. 

 

Once that's taken effect, the aloe helps soothe things.

 

I had my gall bladder removed 35 years ago, so my personal experience is outdated with today's technology.  My husband just had his removed last month.

His surgeon said that in his experience, men and women present differently with gall bladder issues.  Women can suffer for years without any clear diagnosis. When men end up with gall bladder issues, they go bad quickly and they go "really bad" and "get gnarly" (I laughed at his technical term) quickly.   My husband developed gangrene within 24 hours and was miserable. 

 

They used a CT scan and an ultrasound to diagnose his.  So, I'd think those tests will show any issues.

jddh Contributor
Very interesting. My symptoms present similarly to when I used to get glutened. Wouldn't it be funny if I had GB problems all this time! Though I don't imagine that GB issues would have flattened my gut villi, as an endoscope revealed years ago when diagnosed.
 
I'm 32, which I understand is generally a little young for GB problems, but who knows. Lifelong celiac and strong susceptibility to stress.
 
@CathyO, so you take some Aloe juice after already feeling nauseous?  I just got the same kind you use. Expensive stuff! Label says take 2oz 2x daily. You prefer to take it specifically to relieve symptoms when they happen?
 
Had a good night & good sleep achieved with omeprazole (was told to try it again by doctor), aloe juice, a tab of gravol, and a tab of gaviscon. Felt sleepy and a little bit of a narcotic haze. However I'm just starting omeprazole, tend to be hypervigilent about how I'm feeling, and indeed I hadn't eaten much all day to try and stabilize. Gravol might be just the thing to have an easy night & sleep early. Perhaps will upgrade to Zofran/etc next time I see doc.
 
Thanks for the thoughtful suggestions.
cyclinglady Grand Master

Get a HIDA scan. It testes for functionality. An ultrasound or even a CT will look for just stones. I was just over 40 and I was a female but never fat. My symptoms were atypical. I had problems starting when I was sixteen. But it took an infection and a doctor to finally order a HIDA scan to find my non-functioning gallbladder even though it is a family curse (dad is one of seven and six siblings had their GB out). My Aunt had her GB out at 19, she did not have to suffer for years! So, it can hit at any age.

Celiac disease can impact your liver and pancreas too. I would not doubt that you have celiac disease.

CathyO Rookie

 

Very interesting. My symptoms present similarly to when I used to get glutened. Wouldn't it be funny if I had GB problems all this time! Though I don't imagine that GB issues would have flattened my gut villi, as an endoscope revealed years ago when diagnosed.
 
I'm 32, which I understand is generally a little young for GB problems, but who knows. Lifelong celiac and strong susceptibility to stress.
 
@CathyO, so you take some Aloe juice after already feeling nauseous?  I just got the same kind you use. Expensive stuff! Label says take 2oz 2x daily. You prefer to take it specifically to relieve symptoms when they happen?
 
Had a good night & good sleep achieved with omeprazole (was told to try it again by doctor), aloe juice, a tab of gravol, and a tab of gaviscon. Felt sleepy and a little bit of a narcotic haze. However I'm just starting omeprazole, tend to be hypervigilent about how I'm feeling, and indeed I hadn't eaten much all day to try and stabilize. Gravol might be just the thing to have an easy night & sleep early. Perhaps will upgrade to Zofran/etc next time I see doc.
 
Thanks for the thoughtful suggestions.

 

 

I had my gallbladder out when I was 28, so I was young, too. 

 

I wasn't clear about the aloe vera, sorry.  I drink 2 ounces every day, generally just once a day.

On days I have any issues .... nausea, diarrhea or its cousin constipation, queasiness, etc. .... I drink 2 more ounces.

 

I have GERD of "epic proportions" according to my gastro doc.  I take Dexilant in the morning and Ranitidine at night.

It's been about 8-9 months now of that combination, and it's worked well for me.

I have a wedge pillow that helps elevate my head, but with the medication combo working well I've not been using it for a while.

 

I figure the aloe vera juice's cost is cheaper than all the medical bills ... especially since it helps.  :rolleyes:

That's how I rationalize it.

beth01 Enthusiast

Another thing, if you are having problems keeping anything down and worry about losing the anti nausea meds. the do make phenegren suppositories. They work wonders.

jddh Contributor
How about metoclopramide? New doctor gave me a script, but also gave "fair warning" about some small incidence of prolonged (> 3 month) use causing involuntary muscular spasming, occasionally irreversible.
 
Yikes! That stuff got black-labelled since I was given some back in around 2006. I used it a bit back then and my muscles still work fine...
 
Still, I have plenty to fret about as is. Not sure I want to get into it.
beth01 Enthusiast

I personally didn't like the metoclopramide, I don't think it works as well as the others.

  • 4 months later...
jddh Contributor

I'm still dealing with this and I wanted to note some successes:

 

1. Domperidone. Similar mechanism to reglan/metoclopramide. Not available in the US, but it is in Canada. I found it to be helpful, though not a perfect cure.

 

2. Cannabinoids: I live in an area where medical cannabis dispensaries are easy to come by, and I can confirm some definite symptom relief using very small amounts of cannabis. I got a high-potency tincture, which is suitable for administering tiny doses throughout the day as needed. I am able to use this during work, etc, which is to say if done right, you can get symptom relief without getting stoned.

mynxr Rookie

 

Very interesting. My symptoms present similarly to when I used to get glutened. Wouldn't it be funny if I had GB problems all this time! Though I don't imagine that GB issues would have flattened my gut villi, as an endoscope revealed years ago when diagnosed.
 
I'm 32, which I understand is generally a little young for GB problems, but who knows. Lifelong celiac and strong susceptibility to stress.
 
@CathyO, so you take some Aloe juice after already feeling nauseous?  I just got the same kind you use. Expensive stuff! Label says take 2oz 2x daily. You prefer to take it specifically to relieve symptoms when they happen?
 
Had a good night & good sleep achieved with omeprazole (was told to try it again by doctor), aloe juice, a tab of gravol, and a tab of gaviscon. Felt sleepy and a little bit of a narcotic haze. However I'm just starting omeprazole, tend to be hypervigilent about how I'm feeling, and indeed I hadn't eaten much all day to try and stabilize. Gravol might be just the thing to have an easy night & sleep early. Perhaps will upgrade to Zofran/etc next time I see doc.
 
Thanks for the thoughtful suggestions.

 

I would be careful with the Omeprazole and use Prilosec instead.  There is a great website, www.glutenfreedrugs.com  If the drug is listed, it's gluten free.  Omeprazole, is not listed but Prilosec is.  I used to take Omeprazole and would get ill not long after taking any of my drugs that contained gluten.  When I switched from the generic ones that contained gluten to the brand which didn't, I could tell a huge difference.  I'm one of those Celiac patients that vinegar makes ill when it's distilled from wheat.  Another thing is natural vanilla flavoring.  It is made with vodka.  I have to make my own vanilla flavoring so that I don't get sick.  So, what I'm trying to say, is yes, I'm hyper sensitive but I got that way from three years of hidden gluten exposure after being diagnosed.

luvs2eat Collaborator

My youngest daughter has had a medical marijuana 'scrip for years for symptoms like nausea and vomiting and to help stimulate her appetite when she was confined to only 5 foods she could tolerate.. She lives in Oregon, lucky girl. She once walked into a dispensary w/ her trash can in her hands and begged them to help her w/ the severe nausea. They sat her down and gave her a lozenge. Within minutes, she was better. I don't know if you're in one of those enlightened states, but the dispensaries are filled with really knowledgeable people.

  • 2 weeks later...
Chibiehotaru Newbie

I also use Zofran. It doesn't eliminate the nausea but makes it tolerable for me. Good information in the posts above. Thanks everyone!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to FannyRD's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

    2. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      2

      Symptoms

    3. - trents replied to Cecile's topic in Related Issues & Disorders
      2

      Symptoms

    4. - FannyRD posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,180
    • Most Online (within 30 mins)
      7,748

    Eldret419
    Newest Member
    Eldret419
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • FannyRD
      Thanks for the resource! I will check it out!
    • Scott Adams
      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Living with celiac disease can be especially hard when you’re in a smaller town and don’t have many people around who truly understand it, so you’re definitely not alone in feeling this way. Ongoing fatigue, joint pain, and headaches are unfortunately common in people with celiac disease, even years after diagnosis, and they aren’t always caused by gluten exposure alone. Many people find that issues like low iron, low vitamin D, thyroid problems, other autoimmune conditions, or lingering inflammation can contribute to that deep exhaustion, so it’s reasonable to push your doctor for more thorough blood work beyond just vitamin B. As for eggs, it’s also not unusual for people with celiac disease to develop additional food intolerances over time; tolerating eggs as an ingredient but not on their own can point to sensitivity to the proteins when they’re concentrated. Some people do better avoiding eggs for a while, then carefully testing them again later. Most importantly, trust your body—if something consistently makes you feel awful, it’s okay to avoid it even if it’s technically “allowed.” Many of us have had to advocate hard for ourselves medically, and connecting with other people with celiac disease, even online, can make a huge difference in feeling supported and less isolated.
    • trents
      Welcome to the celiac.com community, @Cecile! It is common for those with celiac disease to develop sensitivity/intolerance to non-gluten containing foods. There is a high incidence of this with particularly with regard to dairy products and oats but soy, eggs and corn are also fairy common offenders. Like you eggs give me problems depending on how they are cooked. I don't do well with them when fried or scrambled but they don't give me an issue when included in baked and cooked food dishes or when poached. I have done some research on this strange phenomenon and it seems that when eggs are cooked with water, there is a hydrolysis process that occurs which alters the egg protein such that it does not trigger the sensitivity/intolerance reaction. Same thing happens when eggs are included in baked goods or other cooked dishes since those recipes provide moisture.  So, let me encourage you to try poaching your eggs when you have them for breakfast. You can buy inexpensive egg poacher devices that make this easy in the microwave. For instance:  https://www.amazon.com/Poacher-Microwave-Nonstick-Specialty-Cookware/dp/B0D72VLFJR/ Crack the eggs into the cups of the poacher and then "spritz" some water on top of them after getting your fingers wet under the faucet. About 1/4 teaspoon on each side seems to work. Sprinkle some salt and pepper on top and then snap the poacher shut. I find that with a 1000 watt microwave, cooking for about 2 minutes or slightly more is about right. I give them about 130 seconds. Fatigue and joint pain are well-established health problems related to celiac disease.  Are you diligent to eat gluten-free? Have you been checked recently for vitamin and mineral deficiencies? Especially iron stores, B12 and D3. Have you had your thyroid enzyme levels checked? Are you taking any vitamin and mineral supplements? If not, you probably should be. Celiac disease is also a nutrient deficiency disease because it reduces the efficiency of nutrient absorption by the small bowel. We routinely recommend celiacs to supplement with a high potency B-complex vitamin, D3, Magnesium glycinate (the "glycinate" is important) and Zinc. Make sure all supplements are gluten-free. Finally, don't rule out other medical problems that may or may be associated with your celiac disease. We celiacs often focus on our celaic disease and assume it is the reason for all other ailments and it may not be. What about chronic fatigue syndrome for instance?
    • FannyRD
      I work as a renal RD and have a Celiac pt which has been rare for me (I might have had 3-4 Celiac pts in 15 years). I wondered if anyone can confirm that these medications are gluten free and safe for Celiac.  Ferric citrate (Auryxia)  Sucroferric oxyhydroxide (Velphoro)  lanthanum carbonate (Fosrenol) sevelamer carbonate (Renvela)   Thank you!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.