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Nearing End Of Gluten Challenge....

VydorScope

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VydorScope Proficient
VydorScope
Posted

Welp been eating gluten (posion) daily now since Stepember 10th, and sporadicly in the weeks leading up to that. Been eating 2 slices of whole wheat bread+ 2 servings of Kroger Shredded Maple Bronw Sugar Mini-Wheat daily the whole time. I must say that even if the test comes back negative, Im going gluten-free. I fee as bad now as I did before going on my Low-carb diet years ago and lost that surplus 50 pounds. My visit is schedualed for Nov 20th, but I might bump it up. Reading from this site I found this under the FAQ:

How long must gluten be taken for the serological tests to be meaningful?

Vijay Kumar, M.D., Research Associate Professor at the University of Buffalo and President and Director of IMMCO Diagnostics: There is no simple answer to this question as the susceptibility of the patient to developing celiac disease is dependent upon several factors. One factor is the amount of gluten intake. Another is the genetic makeup of the individual. However, we feel that several weeks of gluten intake, especially in doses of 2 gm gluten/day, should result in positive serology in patients with celiac disease.

I should alreay be well passed that by my count! So dunno.....

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Jnkmnky Collaborator
Jnkmnky
Posted

Good luck with the testing. All of my tests came back neg, but I went gluten-free over the summer. I've had occasional "cheats" when going out, but nothing too major. ANYWAY- Last week, I bought a loaf of french bread... :P my non-celiac kids and I ate it thoroughly buttered. It was so good. I had the WORST brain fog for two days. It started about two days after I ate the bread. It was so crazy. PLUS, I had that horrible endo pain in my lower back again. This hasn't happened anytime we "cheated". I figured it was because we're not actually celiac. I guess it's possible for gluten to hurt anyone's body. Maybe more so if you're gluten free for an extended period of time??? I don't know the answer. I only know I had a major issue concentrating for about two days and the pain was unbearable in my back. I think it was the gluten. I know I can't deal with that kind of brain fog and parent. It's too much. I'm still surprised it was that bad, but I have no other health issues to connect these symptoms with. It had to be due to the gluten I ate. I'm multi-tasking just fine now.

jmfrisch Newbie
jmfrisch
Posted
  I had the WORST brain fog for two days.  It started about two days after I ate the bread.  It was so crazy.  PLUS, I had that horrible endo pain in my lower back again. 

This is the best way I have ever heard what I get explained. But...after 2 negative blood test, a negative biopsy when I was young, and now.....a negative DNA test, I am at a loss what to do. I have been gluten-free for over 3 years now, and when I go back on gluten, or just eat out, I get migranes, "brain fog", headaches, unbelievable lower back pain so bad I can't sleep at all, irritable etc etc etc. What is it if in ain't celiac :-(

If I start eating bread again I will live a life popping pain killers I think.

Or are the DNA they are looking for just not sufficient....

ravenwoodglass Mentor
ravenwoodglass
Posted
Or are the DNA they are looking for just not sufficient....

<{POST_SNAPBACK}>

Think you may have your answer there. Do you feel better on the diet? If you do don't worry too much about what the tests say and stay gluten free.

nettiebeads Apprentice
nettiebeads
Posted

I agree with Raven- if you feel good, keep eating gluten-free. You're not denying your body of any important nutrients like essential amino acids or anything. Your body is telling you something isn't right when you eat gluten. It's just that the tests aren't sophisticated enough yet to tell what is wrong. Listen to your body and keep it happy!

VydorScope Proficient
VydorScope
Posted
  • Author

Just an update... I ordered the York Labs at home 10min instand celiac disease test. :) Now I jsut pace around (near the toliet) and wiat for it to arrive!

Jnkmnky Collaborator
Jnkmnky
Posted
This is the best way I have ever heard what I get explained. But...after 2 negative blood test, a negative biopsy when I was young, and now.....a negative DNA test, I am at a loss what to do. I have been gluten-free for over 3 years now, and when I go back on gluten, or just eat out, I get migranes, "brain fog", headaches, unbelievable lower back pain so bad I can't sleep at all, irritable etc etc etc. What is it if in ain't celiac :-(

If I start eating bread again I will live a life popping pain killers I think.

Or are the DNA they are looking for just not sufficient....

<{POST_SNAPBACK}>

All I can tell you is I'm relieved I'm not the only one experiencing this. I went gluten-free awhile back because of the extreme lower back pain that was dxed as endometriosis. I figured if no one knew what the hell caused endo and my son has celiac.... it might just help. It did. 100% pain free for the first time in a year+. Then I went back to gluten. Had a good month. Pain returned. I read Dangerous Grains, went gluten-free again. Had bit of gluten here and there with no problem. It was that loaf of french bread that tipped the scales.

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jmfrisch Newbie
jmfrisch
Posted

I was the same; couldn't bear the pain in the end. Tried going off coffee as a last attempt (didn't want to go gluten-free) but that didn't help. Doctors told me to drink more water..that didn't help either.

I just with I could get a definite answer on what is going on. I have had all tests possible now and still get all give negative. My father is a very sensitive celiac, by sister has the same symptons as me...I need an answer...just to tell me it isn't all in my head

:(

KaitiUSA Enthusiast
KaitiUSA
Posted

Vydor-Good luck with testing and let us know as soon as you find out something...glad to hear you were at least some better while on the diet.

Jmfrisch-the DNA is pretty good but the only thing is a small percentage of people do not have either of the main genes(DQ2,DQ8) Most have one of those but not all. Also not all of the celiac genes are identified yet. Just listen to your body:)

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