Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Doctor In Oklahoma

natureman

By natureman
in Doctors

Recommended Posts

natureman Newbie
natureman
Posted

Needing celiac doctor in Oklahoma . Please help! Here on this web site is only place learning about celiac. 10 months gluten free. Pluse a lot other foods. Multiple autoimmune diseases. Still have reaction to everything. Not understand ing . Why doing everything people suggest in post.medicine helping very little.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Have you been tested for celiac disease? What makes you think you have it (before going gluten free)? Have you had you gallbladder tested ( HIDA scan)? Are your other autoimmune disorders under control? Not to be nosy, but more background information would help.

I hope others on the forum can direct you to a GI who has a strong background in celiac disease in the OK city area.

natureman Newbie
natureman
Posted
  • Author

Have had stomach pian all my life. Didn't know what it was ?. JANUARY 6 had the flu . Read if you eat toast it would help remove mucus . 2 days soup and a loaf of nature own honey wheat. Had cramping , bloated pian, headache for 24 hours straight. Called doctor.found this web site same day. Thinking every thing point to celiac disease. Gluten free . Toll doctor. Got test. Results negative. Same week out nowhere lactose intolerant. Not understand. Pian. Next doctor ordered ct, ultrasound. Blood work. Aslo same week. Getting blood blisters and ulcers in my mouth. All test negative. Pian . Got other doctor. 6 visit. 3 with first. 3 with new. Say I have ibs . Now July. Still pian .still gluten free. Pian to much . Make appointment with first doctor. Tilling him pian different upper left pain . 23 more blood work testing. Negative. Next door neighbor.see me been a minute. Saying something worng. By this time I have lost over 60 pounds. Maybe more. Give me his doctor. Dr David Newmann Digestive Disease Specialist in okc. Scopes both. After tilling me to get celiac disease panel test. I toll him negative. Looking at me funny. Stomach is totally scared. I did test. 4 DAYS later lab calling asking why test ing again. Asking if I want gluten free celiac disease panel test. I said was the first test. Come back. Ok #3 celiac disease panel test. + . Also have psoriasis. Pancras enzymes testing ok. Bladder test have not asked . Is that blood work. Also joint pian. Muscle spasms, twitch ing, cramping. On medicine to slow my gut. Reading needing vitamins levels check and bone density x-rays .Pian not gluten.Tilling doctor. Not hear ing me . Explain to him after 2 hours after meals frequent urination. 30 minutes apart. . Follow up is Wednesday . Insurance I used all up. Just trying my BEST to get this figure out. Writing a list of things I'm wanting. Cause they aren't. Thinking i have ( RCD) . Please respond. Any advice welcome. I'm in the dark on this. Still pooping oil and fatt . Chicken and sauteed vegetables all I eating little rice. Started bleeding for 5days a week ago but had stopped. Saying not Crohn. What you think.

natureman Newbie
natureman
Posted
  • Author

Please be nosey . Have nothing to hide. Stomach is talking and upset. Had a banana . What is this latex intolerant. I sacred b to eat anything. Cooking every meal . I feel good long as stomach is empty

natureman Newbie
natureman
Posted
  • Author

Thinking I have the best gi doctor Oklahoma has. Will have to make do. gallbladder scan. Thanks. # 18 ?. On list. allergy blood test showing nothing. Not satisfied. Before follow up at gi getting allergy skin test ing. . Asking gi to test vitamins levels and bone density x-rays. Bladder test anything you can think of . Year is coming to the end and NO where I am. Very sad!!!! Hurting. Am HAPPY TO ATLEST KNOWING THAT I HAVE CELIAC DISEASE. Gluten free 9 months tough I feel better already. Thinking undiagnosed celiac disease 30+ year. Has missed me up bad. Only thing gi has to say is if cancer he would have showed his face by now. I need a game plan. Not medicine that makes you feel nothing. Or is this helping . Dicyclomine. . As YOU can read I am a mess. Food is very limited. No gluten in home. All new cookware . Nothing raw I can eat. Red meat. Gone. Even sugar. . Hands and feet are ice cold. When fasting sugar level rise ing but below 130. After meals drop to 80. Aslo not a bad number they tilling me. Wish I had friends with celiac disease to talk and be with. I still adjust ing. Can't watch people eating gluten and dairy and fresh fruit and vetabales. Am in my own prison. Going to work and come home cooking meals. Happy that my father was a chief and thought me to cook. I am best gluten free cook! Thanks all for reading .looking forward to read reply before i go back to gi. Is my stomach suppose to make noises for ever! Lol

natureman Newbie
natureman
Posted
  • Author

Also drank ths that white fluid with x-rays if that helps. Gi said nothing. Nurse said there was stool in lower right side. Don't understand what that meaning. Nothing further discuss . Or recommendation on what to do next. See why I need every one help! If not for this web site I be lost .

LauraTX Rising Star
LauraTX
Posted

Hi Natureman,

 

Is what you are saying is that you were diagnosed with Celiac 9 months ago and have been gluten-free ever since?  Then you have all those unresolved issues that may go beyond celiac?  One thing you may want to do is start a food/symptom journal that you can show your new doctor.  

 

Also, it looks like there is an active Celiac support group in OKC, you may want to contact them for further recommendations on doctors.  I know some people all over Oklahoma will travel to North Texas for Doctors sometimes, but unless you are able to do that easily, you may want to reach out to find a doctor closer to you.  If you want to travel to North Texas (Dallas area), I can recommend some people for you.  Go to these links:  Open Original Shared Link  and  Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


***SEG*** Newbie
***SEG***
Posted

I highly recommend the OU Medical Center in OKC. They have done an excellent job with my Celiac

and seeing improvement daily. A great team of GI doctors that understand the disease and how to

suppress it for a better way of life.

 

natureman Newbie
natureman
Posted
  • Author

Thanks ! Will look into both have family in farmers branch. And going to city Wed. Diagnosed 6 weeks ago. Been gluten free 9 months.

natureman Newbie
natureman
Posted
  • Author

Have systoms. All the time. Even drinking water. Stomach is talking constantly . Feeling nauseous. Minor pian. Upper left pain. Getting better. Unless I eat beef. Then horrible.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    2. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    3. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    4. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
    5. cristiana
      - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott. Have manufacturers ever said why that should be the case?
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748
    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By cristiana · Posted

      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.