Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

5Yr Old And Vision Problems


bridee

Recommended Posts

bridee Rookie

For the past year my 5yr old has had periods of blurred vision. She will go months with no problems then for a few days says her eyes are blurry. She says it goes blurry and then not blurry. She has passed the numerous eye tests we have put her through. She's had a brain ct scan and that was clear. A blood test showed she was iron deficient. celiac disease blood test was clear. My dad and brother both have celiac disease. Dr is saying iron def is diet related which I don't believe coz she eats really well. She is due to have blood test redone in 1.5mths to check if iron supplement is working.

After all of that my question is has anyone experienced similar vision problems? Daughter has had blurred vision for past 2 days. Haven't seen our GP yet for this episode but in the past he has said he believes it is caused by migraines but just without the painful headache.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Hi Bridee and Welcome to the Forum.

 

Since all her testing is clear, The migraine cause is very plausible.  Did she have an EGD?  Iron Deficiency usually has a cause.  Even if she eats a wonderful diet, it doesn't matter if she isn't absorbing the Iron.  Some are diagnosed by Endocscope and tested - on blood tests.

 

Welcome Again.

 

Colleen

appletree729 Apprentice

My son also has migraines that only affect his vision.  His experience is a little different (its called "Alice in Wonderland Syndrome", where there are perceptual changes, like things look really far away, or like he is huge and all his surroundings are small/far away).  He will also "see colors", dots, etc, which I think is the more typical visual disturbance seen with ocular migraines.

 

If migraines are suspected, I would make sure to have her seen by a pediatric neurologist if she hasn't been already.

 

My son is not diagnosed celiac, but pretty much our whole family has some sort of GI thing going on, and we have the DQ2 gene, and a family history of celiac, so we are trying to be as thorough as possible with testing.

VeggieGal Contributor

Hi Bridee, I still suffer with blurry vision after being gluten-free for nearly 2 yrs which maybe because I'm still not absorbing iron (it should take a child hopefully less time to heal). I have to take iron supplements.

I also wonder sometimes if im not healing quicker as I think the only gluten which maybe creeping into my diet is barley from cereals which are on the "allowed gluten-free list" in the UK due to having tiny amounts. I'm not convinced they should be allowed!

Good luck

post-53762-0-03338000-1410191823_thumb.p

Tomislav Newbie

Hello Bridee, I am also a celiac and through my entire life I have read lots of Celiac cases ,but still haven't found a case where a person that has Celiac (whether diagnosed or not ) has vision problems. Vision problems might be caused by many other things and it's necessary to explain every single thing... I should advice you to do the endoscope and blood test, even though she doesn't have any celiac disease symptoms and is eating quite well.. Sometimes people can express symptoms earlier, but sometimes later, and different people have different manifest of the symptoms.. just do those test and go to sleep with a clearer mind, although i also suggest that u should have a talk with a neurologist.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over

    2. - Kirita replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    3. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Brain fog

    5. - trents replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,286
    • Most Online (within 30 mins)
      7,748

    Molberry
    Newest Member
    Molberry
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scatterbrain
      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
    • Kirita
      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
    • Scott Adams
      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.