Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctors Selling Info On Celiac?

Pegleg84

By Pegleg84
in Coping with Celiac Disease

Recommended Posts

Pegleg84 Collaborator
Pegleg84
Posted

Hi all,

 

So... not quite sure where to put this but thought I'd bring it up. A gluten-free advocate (she runs a bi-annual gluten-free food/info fair and posts a lot of info and recipes) I follow just posted the debunked "19 cross-reactive foods" list, which we all know has no scientific basis whatsoever. I called her on it, and she said she was surprised since it came from a source she trusted. The source was a Dr Amy Myers' website. Now, I did some googlind and Dr Myers seems to be pretty prominent in the gluten-free info scene, lots of articles in HuffPo, etc etc. However, looking at her website I saw that she is not only posting non-scientific information (with links to 'cross-reactivity testing'), but she is selling online courses on Celiac/gluten-free diet for $100!! (oh, right now its only $49. what a deal). I imagine these "worksheets" have no more information that you can get here, or many other reliable places on the internets, FOR FREE!

 

Anyway, take a look for yourself and tell me this doesn't look sketchy:

Open Original Shared Link

 

Yeah, I'm sure there's lots of good info here, and maybe she figures since she can't see everyone, selling her services as an online course is better than leaving people out? ?? It seems like a big cash-grab to me. People are gullible. Also, since she's posted misinformation, WHO KNOWS what kind of info is actually in these courses.

Anyway, does anyone know anything about this lady, aside from her writing collumns all over the place? Are there other doctors out there selling their services (and supplements, and god knows what else) like this? Has anyone actually taken any of these courses?

 

I am thoroughly creeped out and a little ticked off at this. Aargh!!!

Opinions and imput encouraged.

 

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

There are quite a few of these people on-line selling on-line "coaching" for gluten-free nonsense.  Sounds like your "advocate" is a bit shady, too. Probably gets a payment for each person that links through her site.  Glad you are able to tell the difference between legit and make believe.

Pegleg84 Collaborator
Pegleg84
Posted
  • Author

If it wasn't for you, Kareng, the dispeller of all things shady.
I should just pass everyone over to you for some personal coaching. $100 an hour, of course.

kareng Grand Master
kareng
Posted

If it wasn't for you, Kareng, the dispeller of all things shady.

I should just pass everyone over to you for some personal coaching. $100 an hour, of course.

 

 

LOL Too funny.   :lol:  Maybe I will change my profile picture to a flashlight?

 

My son and I thought that if we made a really slick website -we could sell pills that allow you to eat gluten.  They come in pretty colors with a pleasant fruity taste.  The white "S" printed on them is not for "Skittles" but the name of the medication "Stupigulliblex".  Maybe we will include "Celiac Coaching" and also sell a course to get a "Celiac Coach" certificate.  (Have you seen those sites?  Selling a "credential"?)

gilligan Enthusiast
gilligan
Posted

Read the reviews on Dr. Myers from patients.  They aren't good!

Pegleg84 Collaborator
Pegleg84
Posted
  • Author

Maybe we need to compile a "Quack Celiac Doctor" database? Or People repeating things they read on the internet but charging for it".

There can even be points for:

- Best miracle cure

- best deal on bogus testing

- Best Unsubstantiated Evidence Given as Fact

 

Seriously, though, the whole idea really got me riled up.

 

(Also, Kareng, you really are the best! Flashlight, indeed!)

  • 8 months later...
Veritas Newbie
Veritas
Posted

Someone asked about Amy Myers here.  She's had a variety of careers.  She studied psychology at the University of South Carolina after which she worked as a banker.  Next, she worked in agriculture in the Peace Corp in Paraguay.  Then, she worked was in school at the University of Washington in Seattle, after which she returned to New Orleans and worked in a bakery.  She attended medical school at Louisiana State University then completed a residency in emergency medicine in Baltimore at the University of Maryland where after she worked for a year or two as an emergency room physician in Austin before opening her clinic.  For most of her life, she was a vegetarian.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StephanieL Enthusiast
StephanieL
Posted

Someone asked about Amy Myers here.  She's had a variety of careers.  She studied psychology at the University of South Carolina after which she worked as a banker.  Next, she worked in agriculture in the Peace Corp in Paraguay.  Then, she worked was in school at the University of Washington in Seattle, after which she returned to New Orleans and worked in a bakery.  She attended medical school at Louisiana State University then completed a residency in emergency medicine in Baltimore at the University of Maryland where after she worked for a year or two as an emergency room physician in Austin before opening her clinic.  For most of her life, she was a vegetarian.

 

What is your point of posting her CV on a thread over 8 months old?  She is apparently not very liked/trusted in the Celiac community. Knowing her background doesn't change the incorrect information she was posting about.

bartfull Rising Star
bartfull
Posted

None of the information given is available on the internet. Therefore I conclude that this poster "Veritas" is either a friend of Amy Meyers, or possibly Amy Meyers herself. Either way, I encourage this person to read here and LEARN something.

  • 11 months later...
Debbie Stevens Newbie
Debbie Stevens
Posted

Hi I'm new on here. I am 61 years old and was diagnosed with 3 autoimmune disorders last year: Hashimoto's thyroiditis, narcolepsy with cataplexy, and Celiac disease. My celiac disease was diagnosed by an integrative medicine doctor when I persisted in asking her to checked my blood levels for the immunities. It was later confirmed with a biopsy of my intestine. My mother, sister, and brother had been checked about 10 years prior and were found to have celiac disease. But when I had asked my family doctor to also check me for celiac when my other family members were diagnosed, she stated I did not have enough digestion issues to warrant getting checked for celiac! So I ended up adding 10 more years of damaging my gut and my brain! Thanks MD! The reason I persisted and asked an integrative medicine doctor  (has both MD and functional medicine certification) was because of Amy Myers MD website. She is a Medical Doctor and therefore has been trained to evaluate research studies. She, as well as several other researchers, have studied thyroid problems and other autoimmune disorders and finding very helpful information in the literature for us patients. Our regular medical doctors are ignoring these bits of helpful information that helps us heal because it does not involve a new pill to fix it.  It mostly involves healthy eating and avoiding certain offending foods. Where's the "quack" in that? Are you guys jealous because you are maybe not up to date on the exploding amount of information on this topic and its treatments? I really value the in depth information supplied by these researchers on line. Face it, sustaining a career by having a website to showcase your research and products is the way many people make a living nowadays. If a doctor is selling something other than a pill for you to get better and heal, it doesn't always mean that the doctor is a quack. And they always say to check with your doctor before you make any changes to your medical regimen. I follow several different holistic practitioners, on line and personally, and much of what they say is the same thing. Thanks for allowing me to voice my opinion.

SLLRunner Enthusiast
SLLRunner
Posted

Welcome, @Debbie Stevens! :)

I'm glad you found something from Amy Myers that helped you. However, keep in mind that she is not a celiac specialist, and when you go to her website your first image is her smiling face with her book behind it. She is clearly on a sales campaign. Besides, candida and celiac are two different things. ;)

Gemini Experienced
Gemini
Posted

"She is a Medical Doctor and therefore has been trained to evaluate research studies. She, as well as several other researchers, have studied thyroid problems and other autoimmune disorders and finding very helpful information in the literature for us patients. Our regular medical doctors are ignoring these bits of helpful information that helps us heal because it does not involve a new pill to fix it.  It mostly involves healthy eating and avoiding certain offending foods. Where's the "quack" in that?"

Debbie......I have 4 AI diseases and have been managing them for a very long time. I also have a functional medicine MD who has been very helpful......she was actually the one who I asked to run the Celiac panel because I did not have a trustworthy PCP at the time. However, mostly everything a Celiac patient has to learn to manage this disease well can all be learned for free.  You said it yourself regarding healthy eating and avoiding your known allergens....that doesn't cost anything except for food.  There are also so many medical charlatans out there who charge for information that can be gleaned from surfing the internet on reputable medical sites....or asking a real Celiac expert on your next appointment.

As for the exploding amount of information on this topic and treatments..........well, there are exploding amounts of information but a lot of it is bunk with no basis in real information about Celiac.  Treatments?  There are a few in the pipeline but I wouldn't hold your breath.  None of them are intended for people to eat gluten again, just guard and prevent the autoimmune reaction from cc.  That would be great for travel but the only real treatment for Celiac is a strict gluten-free diet.  That has not changed and will not change for a very long time, if ever.  This forum just wants people new to this diet to access reputable information so they won't get suckered into spending money on information they don' have to pay for. If you find her website helpful, that's great.  But after looking at her website and seeing her eCourses on gluten for $39.00?  I don' think so...........:rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living...
    2. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sl...
    3. Scott Adams
      - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly c...
    4. Scott Adams
      - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained...
    5. Scott Adams
      - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods

      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,367
    • Most Online (within 30 mins)
      7,748
    nursengul
    Newest Member
    nursengul
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Natural remedies

      By Scott Adams · Posted

      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      Gluten and short-term memory.

      By Scott Adams · Posted

      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Reintroduction of Gluten

      By Scott Adams · Posted

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      High Cost of Gluten-Free Foods

      By Scott Adams · Posted

      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...