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Diagnosis: Celiac Disease ?

bpstrade

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bpstrade Newbie
bpstrade
Posted

Since mid May 2014, I have had frequent lower abdominal pain that has increased in intensity and frequency. The pain is present only when walking or standing, if I sit or lay down the pain disappears within several minutes.  Some days I am pain free even when standing or walking, but other days after sitting the pain reoccurs with standing or walking and again sitting or lying ceases the pain. I can even ride a bike pain free. CT scans and other procedures have not found a cause. Finally, I have been diagnosed with Celiac disease via blood tests and endoscope – biopsy this week.  I have not exhibited any other celiac symptoms. I started checking everything including RX’s for gluten free status. Currently, I am eating only gluten free meals.  Need help understanding the situation. Any comments will be appreciated Thanks

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cyclinglady Grand Master
cyclinglady
Posted

Welcome!

Here is a link to a thread that contains valuable tips for newbies (it can be found in the "Coping"section of this forum):

https://www.celiac.com/forums/topic/91878-newbie-info-101/

Let us know if you have specific questions!

mommida Enthusiast
mommida
Posted

You are supposed to be eating gluten for a successful biopsy.

cyclinglady Grand Master
cyclinglady
Posted

Sorry, that you were diagnosed with celiac disease. The good news is with the gluten-free diet and support from family friends and cyber friends, you can get well.

Besides the newbie tips I discussed earlier, the best advice I can give you is to allow enough time to heal. celiac disease has so many symptoms. Each one of us are different in therms of those symptoms and our rate of healing. Some take one to three years to resolve the symptoms. There is a huge learning curve, so in the beginning you might feel as those you have taken a few steps forward only to slide back due to cross contamination to gluten or a discovery of an intolerance (e.g. Milk ). But you can get better!

Research, research and research! You are your best advocate for your own health.

Again, let us know if you have any questions.

Cara in Boston Enthusiast
Cara in Boston
Posted

My son had little or no symptoms too.  He complained for about a week of having a stomach ache.  Other than that, the only thing we saw was a drastic change in behavior . . . tantrums, easily frustrated, no impulse control (not uncommon for kids)  

 

Once he went gluten free, he was back to "normal" in less than a week.  Then, we started noticing other things that we didn't even know were related.  The dark circles under his eyes went away, he grew three inches, he was sleeping much more soundly, he had tons of energy, his appetite was fantastic, his hair got thick and suddenly, CURLY.  It was weird.  

 

You've been diagnosed with celiac disease so don't let your lack of symptoms deter you from sticking to the diet 100%.  

 

I was diagnosed after my son and realized I had all the classic symptoms (I just thought I was getting old . . . )  I really didn't know how bad I felt until I started feeling great.  No more random headaches, no more insomnia, etc. etc.  Maybe you have symptoms and you just don't realize it.

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    • Scott Adams
      Gluten free stuff

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      Gluten free stuff

      By Tammy Pedler · Posted

      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      Do some people with Celiacs develop hypoglycemia?

      By Scott Adams · Posted

      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
    • trents
      Ibuprofen

      By trents · Posted

      Paracetamol, aka, acetaminophen (Tylenol) just does not do anything for me as far as pain relief. It does help with fevers, though.
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