Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Swollen Stomach Won't Go Away


Booklover15

Recommended Posts

Booklover15 Newbie

I hope this hasn't been asked before. I'm new on here and tried to search. I am 12 weeks gluten free. I had most of the average symptoms: swollen stomach (looked pregnant), pain, gas, etc. hair loss was a biggie for me as well as zero vitamin absorption. I've been on massive supplements for years.

My question, I'm feeling much better being gluten free for over 12 weeks, but I am still having weight fluctuations and my stomach is still protruding; especially after I eat. All the pain and gas is gone, so I don't think I'm eating something my system doesn't like. After I eat, my upper and lower stomach will swell big, almost like the food is just sitting there. After several hours, it will go down and my weight will decrease.

I am a small person (5'2 115 pounds) so every thing shows drastically on me.

Is this swelling normal? Will it ever go away? Like I said. The pain and other terrible symptoms are gone, but this seems to be hanging on. I don't know about the vitamin deficiency for another week when I'm retested. Hair is growing back, yippee!!

Thank you all for all your shared wisdom! I have been lurking on here for many weeks trying to understand Celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

Sounds like you are doing well.  Keep up the good work.  I had a stubborn protruding abdomen and mine had to do with other allergies and histamine so far as I can tell.  It finally is going down after I cut out all foods I had antibodies to.  It does tend to get larger again when I am exposed to anything I have allergies to.  I hope you can get to the bottom of your issues soon.

 

Dee

.

cyclinglady Grand Master

Time. You need more of it. Celiac disease can cause extensive damage and it can take up to 1 to 3 years to heal. Keep a journal and see if you have developed any intolerances (e.g. Dairy/lactose). And make sure gluten is not sneaking into your diet.

Booklover15 Newbie

Thanks for the responses! after I wrote this, I started thinking more. Not all symptoms have to be negative. Pre diagnosis, my stomach swelling was constant, a lot bigger, very painful and gassy. Everything I ate went straight through me. The swelling now feels more like you feel after a big Thanksgiving dinner. I am tired and feel full after I eat a meal, but no other symptoms. Maybe this means my system is finally turning on. Very slowly the intestines are actually taking the food and using it like its supposed to. I will ask my doctor next week. I'm a girl, so I hate the swelling and I'm now hungry all the time! :)

Thanks to you all for so much help. Because of this site, I started a food diary right away. I also use it to comment on how I feel that day, etc. So far, I haven't found any major reactions to other foods. Also, I have stayed away from all processed foods--not that I can afford most of them anyway. I eat just cooked veggies, rice, chicken, potatoes, fruit, etc. Thanks so much!

SMRI Collaborator

I was just noticing today that the top of my stomach/torso, was not as puffy as it had been--it was oddly shaped and just weird looking.  Now that it's mostly gone, I'm pretty sure it was gluten related.  I've been gluten-free since July.  The rest of my torso is still puffy but that is because I weigh too much :D

  • 4 weeks later...
Sbwife14 Rookie

This information is helping answer some of my questions as well. Thanks for the info!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    3. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,439
    • Most Online (within 30 mins)
      7,748

    Lillian Steele
    Newest Member
    Lillian Steele
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.