Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Survior's Guilt - Partner's Reaction To Glutening You


beth01

Recommended Posts

beth01 Enthusiast

The only time I have been getting glutened lately, besides my remodeling, is from my boyfriend forgetting to brush his teeth when he gets home from being out. He is normally really good about it and it's only happened twice in six months, but accidents do happen and he feels just awful when it does happen. He told me it feels like to him to be the equivalent of punching me in the stomach. I know I am the one the suffers physically when this happens, but I by no means hold it against him or get upset with him. Most of the time I think I feel worse than he does, feel like a burden because we have to be so careful. Nothing can be spontaneous any more. I try to reassure him I'm not upset with him, but he takes it so hard.

How do you guys deal with this when the situation arises? Do your partners react the same way?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

(i recently b!+Ched about this to the hubs so he got more diligent and i promptly gave him my cold.  NOW i don't want him to kiss me because he has a cold and i'm better.  plus, eww.  he's got a cold)

 

just tell him he can't win LOLZ  just kidding.  i have this same dilemma!  he drinks beer and doesn't care what he eats <i don't either, except when it comes to that)  i didn't actually believe the kissing thing in the beginning until he did exactly the same thing and didn't want to make me sick over and over so he just avoids it - now i have to bug him and he is nervous he will make me sick no matter how careful he is <sooooo not spontaneous :(  what IS the solution...?

LauraTX Rising Star

I understand that predicament.  My hubby usually is pretty good about stopping me from kissing him or eating something off his plate, etc but we are not all perfect.  Since I get sick easily, we try to keep to simple kisses, no tonsil hockey, haha.  But last night be brought me gluten ice cream and I ate it (ugh silly me), so we both messed up and he feels SO BAD.  I could see it in his face last night.  Having another person train their mind to look out for you is always better than just one mind keeping track of things, and it seems that it is murphys law that the mess up will happen with both minds at once!  All you have to do is just learn from the situation, and learn from the slipups.  

notme Experienced

i have to give him so much credit for yesterday, though:  my sister-in-law dug through the ice tray with her hands and he gave me 'that' look.  (she has a kid with a peanut allergy, so, throws a fit about anything nutty around her house, but i guess crumbs don't affect her.... bless her heart....)  he knew all that ice was no good for me anymore.   he's a keeper.  :)   

moosemalibu Collaborator

This is unfortunately what happens when people really care about you. They hate to see you suffer. While it can be frustrating to have two people in misery (one physical and one emotionally) it's good to know you're so well looked after. Despite the few and far between hiccups.

GF Lover Rising Star

Hi Beth,

 

If I recall, you've been gluten-free for around 7 months?  

 

I think it comes down to the type of relationship you have.  I believe those that have a deep connection to their spouse/partner, can speak frankly about everything including bodily functions and have understandings of each other short comings and frailities.  

 

When my Hubs and I are intimit he will say he brushed his teeth.  If he doesn't say anything I just ask him.  Usually we just automatically brush after eating, it becomes a habit and is no longer a bid deal and can still be spontaneous.  

 

Recieving the diagnosis of any disease will take a lot of adjustments and is stressful.  Once the diagnosis is managable, you both will relax a bit.  You'll always be diligent, but it becomes a normal part of your life.  This adjustment period depends on many things ie: other diseases, damage that can't be reversed, etc.

 

You guys have to go through this together to find your 'New Normal'  :D

 

Colleen

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,862
    • Most Online (within 30 mins)
      7,748

    ZoesDad
    Newest Member
    ZoesDad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.