Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Suspect Thyroid Problems & Still Feel Miserable

sillyker0nian

By sillyker0nian
in Related Issues & Disorders

Recommended Posts

sillyker0nian Rookie
sillyker0nian
Posted

(Here is my Celiac Blood Panel results to see them - it might help shed some light on things.)

 

Hey, everyone! I'm back. And, I have new things to ask. I think I have Thyroid problems. And, I'm also still eating gluten regularly to make sure I keep up on it just in case my G.I doctor which I'm still waiting to get refereed to  does decide to do the endoscopy and biopsy. But, right now within the past few days I feel horrible - miserable even. I feel like lava (really warm) which isn't fun....

 

Anyways, my suspected non-Celiac symptoms are

 

  • Increased sensitivity to cold
  • Dry skin
  • Puffy face
  • Muscle weakness
  • Muscle aches, tenderness and stiffness
  • Thinning hair

My grandmother also had thyroid problems which makes me suspect that I have them since they were passed down. And, I have low hormones and my overall IgA is low. My neck feels a little painful&puffy recently plus a little lump possibly, too. 

 

Can anyone help?? Thank you!  :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


icelandgirl Proficient
icelandgirl
Posted

Hi there...those could certainly be thyroid symptoms. Have you had any blood work done for your thyroid? If not, please do that. Ask for TSH, free T3, free T4, TPOAB and TgAb. The last 2 are antibody tests for Hashimotos, an autoimmune thyroid disease. A number of people on this board, including me, have that as well.

Testing is a simple blood test that your GP should be able to order for you. Low thyroid symptoms are no fun. I hope you get this figured out quickly!

cyclinglady Grand Master
cyclinglady
Posted

Only testing can determine a thyroid issue. See if your doctor can order the complete panel as ice has suggested. Take care!

sillyker0nian Rookie
sillyker0nian
Posted
  • Author

Hi there...those could certainly be thyroid symptoms. Have you had any blood work done for your thyroid? If not, please do that. Ask for TSH, free T3, free T4, TPOAB and TgAb. The last 2 are antibody tests for Hashimotos, an autoimmune thyroid disease. A number of people on this board, including me, have that as well.

Testing is a simple blood test that your GP should be able to order for you. Low thyroid symptoms are no fun. I hope you get this figured out quickly!

 

Thank you!! I wrote down all of those tests you said. I'm going to my first ever endocrinologist visit on the 22nd. I'm sure she is going to be a more educated doctor on this particular issue than my "general" doctors at the nearby clinic. Do you know what she is going to need? What tests she's going to want to do? Or, can I just visit her once and see what she says and go to my general doctors? 

 

 

Only testing can determine a thyroid issue. See if your doctor can order the complete panel as ice has suggested. Take care!

 

I understand - it's just everyone on this board seems so knowledgeable so I wanted to ask anyways. Thank you, too, as well :)  

cyclinglady Grand Master
cyclinglady
Posted

The tests IcelandGirl listed are specifically for the thyroid. Your endo may order other tests to rule out anything else. I have never seen an endo. My GP doctors have been good about managing my Hashi's, though it is important that you are educated as well.

Here are my suggestions for your visit. Make sure your endo feels your thyroid. Ask him to order the thyroid panel. Take in a family chart of illnesses. I find it invaluable and doctors love it. It has helped everyone in my family. Bring copies of past lab tests (you should always maintain health records).

Good luck!

icelandgirl Proficient
icelandgirl
Posted

Take in a list of your symptoms and a list of the tests you want done.  The endo should examine you, including your thyroid.  She should order blood work.  When she does that, make sure that it includes what you want tested.  You may also want to ask for tests for B12 and D...lots of celiacs are deficient in those and in my reading I've found that lots of Hypothyroid people are as well.  Good luck to you!  Let us know how it goes!

sillyker0nian Rookie
sillyker0nian
Posted
  • Author

UPDATE

 

Sorry - just too much to put into this post  :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748
    ChrisMary
    Newest Member
    ChrisMary
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you, a little expensive but glad to have this source. 
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.