Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

We Got The Bloodwork Done Today!

BlessedMommy

Recommended Posts

nvsmom Community Regular
nvsmom
Posted

I'm not familiar with the abbreviation. What is re?

Oops. That was iPad's autocorrect for a mistyped "her".

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BlessedMommy Rising Star
BlessedMommy
Posted
  • Author

Anyway, I'm so glad that I got things ruled out at least for the time being. Had I stayed with my old doctor, even getting tested once most likely would've never happened.

 

Now that I have this ruled out, I can use my energy on actual issues and focus on finding the real cause of things, rather than chasing rabbit trails. I'm so glad that my doctor was cool with checking thyroid and b-12 too. This new doctor is definitely a keeper! :)

ravenwoodglass Mentor
ravenwoodglass
Posted

It is exceedingly rare to not have the genetics.  As BlessedMommy is very aware on these things, wouldn't retesting IF there were S&S even if the genetics would happened to not be there be more helpful than having to do gluten challenges every x number of years and risking her health as there have been issues with the challenge in the house?  

Sorry I wasn't more clear in my post. It was very early in my day. 

I was referring to the children. In BlessedMommy's case any form of a challenge is of course out of the question. Her reactions are too severe. 

I think her plan to let the kids have gluten out of the house and test if symptoms develop is a good one. 

BlessedMommy Rising Star
BlessedMommy
Posted
  • Author

I saw the doctor today and looked over the test results. The negatives were very clear negatives. So thankful! :) For example, a 20 on the Ttg is considered positive and she scored a 6. I was hoping for clear answers and these were very clear. 

 

The doctor said that the variations on the CBC were normal and could be caused by mild dehydration. My daughter also had the antinuclear antibody test, which not surprisingly, reflected the fact that she has an AI disease. 

 

I'm thankful that she is out of limboland. Thanks to all who encouraged me and helped me through this. I have no doubt that I wouldn't have had the courage to start her gluten challenge or even pursue the tests, because of fear. You all gave me the moral support to do what I needed to do. 

StephanieL Enthusiast
StephanieL
Posted

Great news!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,129
    • Most Online (within 30 mins)
      7,748
    Maeghan
    Newest Member
    Maeghan
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • NoriTori
      Celiac symptoms but negative endoscopy and antibody test + family history of gastro problems

      By NoriTori · Posted

      @Scott Adams No one said anything about eating gluten consistently until testing, the appointment was scheduled and an address was given. I don't even have access to the results as it stands. I was just told "everything looks fine, but slight irritation." I don't know if they took a biopsy because I have no access to the results. I don't know how many samples they took (I recently learned they're supposed to take more than one), I don't know what things looked like internally, it was just word of mouth and I didn't know any better to pry and get copies of everything. And I know! I also have chronic Anemia, never truly resolved UNTIL I went gluten free, and low vitamin D (fairly normal in black community), and low creatine (also resolved with gluten free diet). I plan to request a new dermatologist! As well as a referral to Gastro. Food/symptom diary is a great idea though. I have no way of cooking as it stands, so even just the basics wouldn't work for me.
    • trents
      Celiac symptoms but negative endoscopy and antibody test + family history of gastro problems

      By trents · Posted

      @NoriTori, "gluten intolerance" is a general term that can refer to either celiac disease or NCGS. NCGS is often referred to as "gluten sensitivity" for short. Though, admittedly, there is still a great deal of inconsistency in the use of terms by the general public.
    • NoriTori
      Celiac symptoms but negative endoscopy and antibody test + family history of gastro problems

      By NoriTori · Posted

      @trents A gluten intolerance is a real possibility! I never ruled it out, but am keen on finding out the EXACT cause. I'd want testing done again to be sure it's not celiac, or SIBO (which I've considered) or other digestive disorder. Celiac seems the most pertinent considering its implications.
    • sillyac58
      Recurring flu like symptoms after being precribed immune system stimulating drug

      By sillyac58 · Posted

      Thanks so much Scott. I would be incredibly grateful to the gluten gods if eliminating oats was the magic cure. In the meantime, it's nice to have moral support! 
    • trents
      Eating gluten before blood test

      By trents · Posted

      Understood. And don't beat yourself up about this. Many are in the same boat as you, having experimented with the gluten-free diet before getting formerly tested. It is a logical, common sense approach when you don't have the knowledge about how testing works or you don't have the healthcare resources to afford testing. And some experience such severe reactions to gluten that it is impossible to get through the gluten challenge in order to get tested. So, they must live with the ambiguity of not knowing for sure if they suffer from celiac disease or NCGS. But at the end of the day, the antidote is the same for both. Namely, life-ling abstinence from gluten. Recently there was an article on posted on this forum about the develop of a new testing method for diagnosing celiac disease that do not require a gluten challenge. It is still in the developmental stage and probably years away from becoming main streams even if it pans out. But there is hope at least.
×
×
  • Create New...