Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Low Urea Be A Sign Of Celiac Disease? As In Malnourishment?


ivyandwill

Recommended Posts

ivyandwill Rookie

I had some test results come back today.  Among the results I had low Urea, low Lymphocytes, very low ferritin and very low cholesterol.  

I'm curious if these can indicate a link with Celiac disease?  I am guessing the lymphocytes are due to adrenal fatigue...but really I have no idea.  My potassium levels are generally borderline and sometimes low.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

poor absorbtion would support the need for celiac testing.

1desperateladysaved Proficient

I had low ferritin which resolved by 18 months gluten free.  I have heard others mention low cholesterol.  If you have an adequate diet, but are low in nutrients that would seem to indicate the need for to find a cause of the low nutrients levels.  Did you have a full celiac blood panel yet?

ivyandwill Rookie

No, it's difficult to ask for. I'm going to suggest it when I see a haemotologist for iron deficiency.

cyclinglady Grand Master

Ivy,

Based on your previous posts, I think you need to get tested for celiac disease. Print off a copy of testing requirements to share with your doctor here or find a reputable site in your country.

Open Original Shared Link

Anemia (low ferritin) was my only symptom when I went for a routine colonoscopy (yep, I am over 50). During my GI consult, he suggested celiac disease. I was shocked. I had no tummy issues (except when I had milk, eggs, or nuts -- allergies since I was young). My GP and GYN chocked up my low hemoglobin to Thalassemia (a genetic anemia) and low ferrtin (result = 2) to menopause which was really masking iron deficiency anemia. But it really was celiac disease and not just the Thals or menopausal issues.

Three months into my dx, I suffered bone fractures. Osteoporosis! celiac disease can be very damaging and it does not have to have obvious symptoms.

Go armed with evidence (be nice) to share with your Hemo.

I wish you well.

ivyandwill Rookie

I've had a bone fracture and then I had a scan for bone density which came back at the very bottom of the normal range.  I fractured my spine unknowingly!  Thank you kindly for your continued advice.  I worry that a Dr will write me off as a know it all hypochondriac if I ask for specific things.  I usually just suggest vague things and see if they lead on to what I was hoping they'd cover.  Sometimes that works.

cyclinglady Grand Master

Yikes! How long was your fracture? I have another year to go before my next scan and I am hoping that the extra calcium and estrogen has build bone. I just want to have a "normal" risk factor when it comes to my bones.

You are not a hypochondriac! Just go in with the U of Chicago's celiac website screening materials and the list of 300 symptoms. Inquire nicely.

If your doctor resists (ask for his reasons for refusing to test you), find another doctor.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fenrir Community Regular

I've had a bone fracture and then I had a scan for bone density which came back at the very bottom of the normal range.  I fractured my spine unknowingly!  Thank you kindly for your continued advice.  I worry that a Dr will write me off as a know it all hypochondriac if I ask for specific things.  I usually just suggest vague things and see if they lead on to what I was hoping they'd cover.  Sometimes that works.

Yeah, I fractured my back  years ago without knowing how I did it. Went to the Dr. with a backache and did x-rays and I had three compression fractures between my shoulder blades. Then I found out I have scheuerman's diease, now I find out I have celiac disease and it all makes sense. Scheuerman's can weaken the spine and I probably have been low in calcium for years on top of it.

 

Now the urea being low probably isn't relavant to Celiac Disease but many of the other things you mention are, so you should defintely get tested.

  • 2 weeks later...
ivyandwill Rookie

Thank you Fenrir.  I also have Scheuerman's disease (the degenerative one - not the bowing of the back one).  It's astounding how GP's are clueless to what it means.  I said to my GP it causes pain and she grabbed a Paediatric book off her shelf, looked it up (found the back bowing one) and down the list it said it doesn't cause pain - so that's is she says, it doesn't cause you pain!!!  Well thanks.

 

ivyandwill Rookie

I've just spoken with a Naturopath who is also a Biochemist.  He's going to go through my tests and try to help me.  Definite issues with my gut (be it from celiacs or not) and he talked about certain enzymes and how it all affects the hormones (which I can vouch for as I also have major issues with regard to my hormones).

cyclinglady Grand Master

Nice to have a Naturopath, but enzymes or supplements are not going to resolve Intestinal issues, low ferritin, or osteoporosis, if you have celiac disease. You need to get a celiac blood panel.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.