Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

7 Year Old, Symptoms, Negative Blood Test

mum2girls

Recommended Posts

mum2girls Newbie
mum2girls
Posted

HI, I am new here and searching for answers.

 

My now 7 year old has been having bad digestive issues for the past 18 months.  Over that time the Paeditrician has done a lactose intolerance test which was negative and a few months later a coeliac blood test, also negative.  He also did a stool sample,  which was normal.  Along with other blood tests for various other illness all of which came back normal.    Her paediatrician sent her to a specialist paediatrician for an ultrasound scan , which was fine, although he wanted to remove her appendices, a 2nd opinion on that one agreed it was unnecessary.

 

Her symptoms are daily stomach aches, headaches, sometimes a hugely bloated stomach (other kids at school have even commented on it).  Burps that could outdo my husband,  flatulence that often leaves a liquid poo stain in her underwear. Diarrohea and constipation,   huge stools that float and often look greyish.      She is very thin  and is extremely pale all the time,  her teacher has commented on how pale she is, and her hair is very dull.   Her new adult teeth are very yellow.   She has a very poor appetite, but in the past 2 weeks, she has developed a big appetite and always claiming to be hungry,  she also seems to be drinking more water and seems to be having urgent need to urinate which has led to a few accidents on the bathroom floor. She has a very bad smelling breath. 

 

So many of her symptoms point to coeliac or lactose intolerance, but the blood tests are normal.

 

Any ideas what my next steps should be,  is anything I can insist that the Dr. tests her for, any other tests I should request.

 

Thank you very much for any help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LauraTX Rising Star
LauraTX
Posted

Have they tested her for diabetes?  The thirst and bad breath can be symptoms of juvenile diabetes.  Also, if you have the results of the tests they ran for Celiac, you can post them and we can let you know if a test was missed.

mum2girls Newbie
mum2girls
Posted
  • Author

Thank you for your response.

 

She has had a fasting glucose test and it was normal,  the thirst is a very recent thing.   All the other symptoms are ongoing for 18 months now.

 

These are the blood tests which were done by her paediatrician,

 

Coeliac Screen :- 

 

Endomysial Antibodies - Negative

Tissue Transglutaminase  - 0.10 u/ml (ref range 0.0 -10.0)

Immunoglobulin A - 1.35 g/L ( ref range 0.34 - 3.05)

SMRI Collaborator
SMRI
Posted

Along with diabetes, I would test for Cystic Fibrosis as well.  It disturbs me that your doctors are not the ones seeking other testing.  She is obviously a sick child. SOMETHING is going on.

mum2girls Newbie
mum2girls
Posted
  • Author

Cystic Fibrosis?  isn't that a genetic lung disease, I believe all kids are tested for that at birth, so I am assuming that is not anything we need to worry about.   

 

I really do believe something is going on in her intestines,  I have booked an appointment with a gastroenterologist but there are no paediatric ones in our area, unfortunately. 

BlessedMommy Rising Star
BlessedMommy
Posted

Yes, post all the celiac blood tests that were run.

 

I'm sorry that she's ill and I hope that you get answers soon!

mum2girls Newbie
mum2girls
Posted
  • Author

These are the tests which the doctor did back in April 2014

 

oeliac Screen :- 

 

Endomysial Antibodies - Negative

Tissue Transglutaminase  - 0.10 u/ml (ref range 0.0 -10.0)

Immunoglobulin A - 1.35 g/L ( ref range 0.34 - 3.05)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frieze Community Regular
frieze
Posted

she needs a completed celiac work up, and an immediate check for diabetes, IMMEDIATE.  you may need to go to a bigger city/children's hospital, do not waste time.

SMRI Collaborator
SMRI
Posted

Cystic Fibrosis?  isn't that a genetic lung disease, I believe all kids are tested for that at birth, so I am assuming that is not anything we need to worry about.   

 

I really do believe something is going on in her intestines,  I have booked an appointment with a gastroenterologist but there are no paediatric ones in our area, unfortunately. 

 

yes it is mostly a lung condition, and as far as I know, not everyone is checked automatically for CF.  CF also has a GI component and CF does not always show up at birth.

mum2girls Newbie
mum2girls
Posted
  • Author

Thank you SMRI,  I just googled it and it is the first time I have ever read about the GI implications of CF.  I do believe she was screened for CF, she was born premature in Belgium with some lung issues and spent several weeks in NICU, but I didn't realise it might not show up at birth.   

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.