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The Book Prickly Pear Mentions On Another Thread


irish11

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irish11 Apprentice

WOW...i know its a few years old...the topic post....but yes this was ALL me...

 

thats why I couldnt figure it at first.....I originally got the big, raised, elongated type OVER AND OVER in the same spot....for months....i showed this to the docs...to no avail....

 

then the clusters....also the description of it eventually looking dried up....its kinda wierd...ones I was trying to save over time....are there, but look funny and old...and not current..

 

then a few months after THAT (where i am now), im not getting the huge ones so much...i am getting little tiny bumply ones...around the neckline and face....still liquid comes out...but these look more pimple like than the other ones...are those the bullous types i guess?  i wish i wish i wish i had known THEN to take pictures...i took them months later..but now what you see are scars...kinda outlines of where they were...i dont think my back will EVER come back....i used to have a beautiful neckline...sadly...i dont think ever again...you see all these vesicle type things....active or not....the outlines are stil there....but back THEN i couldnt get them tested.....but the descriptives from this book are great....i may like to read the whole book.

 

Thank you so much for the info. 


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    • kpf
      I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. Thank you for saying this! 
    • RMJ
      Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result. 
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      I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else? 
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      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
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      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
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