Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Cope W/ The Fatigue?

Jenn2005

By Jenn2005
in Coping with Celiac Disease

Recommended Posts

Jenn2005 Contributor
Jenn2005
Posted

My husband has been so tired lately. I was wondering how some of you dealt with the extreme fatigue? Its been a while since his vitamin levels have been checked & I'm going to call & make an appt. to have this done. Last time his vitamin B12 was at 240 with the normal range being 200 - 1100 (with a note from the lab that people with levels of 200 -400 may experience side effects of low B12 levels). His Dr. said everything was normal and wasn't worried about it. Has anyone else had levels in this range but feel the effects? I'm really worried because he seems to feel more tired everyday instead of better.

Jennifer

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Make sure you guys are getting your vitamins and minerals. Liquid ones may help more effeciently because of the way they are absorbed.

In addition to that you also may want to take a sublingual B12 vitamin which helps alot with that. They even taste good :)

floridanative Community Regular
floridanative
Posted
My husband has been so tired lately.  I was wondering how some of you dealt with the extreme fatigue?  Its been a while since his vitamin levels have been checked & I'm going to call & make an appt. to have this done.  Last time his vitamin B12 was at 240 with the normal range being 200 - 1100 (with a note from the lab that people with levels of 200 -400 may experience side effects of low B12 levels).  His Dr. said everything was normal and wasn't worried about it.  Has anyone else had levels in this range but feel the effects?  I'm really worried because he seems to feel more tired everyday instead of better. 

Jennifer

<{POST_SNAPBACK}>

My B12 was low normal but don't know actual number. Since I went back on iron pills (anemia), I haven't felt great but I can get through the day at least. I started taking a B-complex pill every day two weeks ago and yesterday I felt like a normal person. Today I also feel good. However, there is no B12 in the pill as I checked yesterday. So I'm going to speak to my doctor to see if should add the B12 as well. All I know is that at least the B-complex is definitely doing something good for me. I hope your husband gets to feeling better soon. Before all this started I was one who didn't put much stock in supplements but now I know without them I can't function at all.

Jenn2005 Contributor
Jenn2005
Posted
  • Author

Thanks for the suggestions we will give them a try.

Jennifer

armoorefam Newbie
armoorefam
Posted

My two celiacs (hubby and daughter) recover from fatigue quickly with sublingual B12. As a matter of fact, we have learned not to do that at bedtime. LOL. This works significantly after you have been gluten free for a while without infractions (hubby has been on gluten-free diet for 8 years and our daughter has been for 8 years). With an infraction of gluten is is less dramatic.

Do consider the underlying cause if you are feeling tired and yet haven't had gluten slip in. It could be that anemia is a culprit. My daughter, even with daily iron, seems to always be borline anemic. Thyroid support meds have also been a help for my daughter as well. Both have had trouble sleeping quite often. About two months ago, I bought melatonin at the health food store to see if that might help them get off to sleep faster. Hubby passed on it since he has to use heavy equipment sometimes - just in case it didn't wear off well. But is was a big help for my daughter! She fell asleep within twenty minutes instead of it taking the usual two hours of laying there. After about three weeks she was able to stop using them and has been pretty consistent in getting to sleep ever since. She has even started getting up earlier than the boys pretty consistently - that was such a shock the first week. LOL. She also mentioned that it was a help to get up and open the curtains as soon as she woke up instead of lying there in a darkened room and going back to sleep. It helped her to turn her bio-clock around. She has felt much more rested.

Claire Collaborator
Claire
Posted

I have posted this reply before but here goes again.

By June of this year I had total fatigue - wiped out completely many days - too tired to get out of my own way. I was discouraged and depressed because I just couldn't accomplish anything. I got tired combing my hair!

In July I started taking CoQ10. This is not a medicine. It is an enzyme.

I am certainly not back to my former self but I am so greatly improved that I feel like a great weight has been lifted off of me. I got back out into the garden - without having to mentally talk myself into it and then push myself out the door. I still have a few bulbs left to plant.

Today I cleaned house, did the laundry, prepared a dinner for four (two guests) and haven't laid down all day.

It might not work as well for your family members - but then it might work even better. Worth a try. Claire

Jenn2005 Contributor
Jenn2005
Posted
  • Author

Claire - Is all CoQ10 gluten free or can you tell me the brand you take and where you get it?

I got the sub-lingual B-12 for him to start taking and a liquid multivitamin is the CoQ10 ok to take with these also?

We will try anything at this point. Thanks for all the suggestions.

Jennifer

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted
Claire - Is all CoQ10 gluten free or can you tell me the brand you take and where you get it? 

I got the sub-lingual B-12 for him to start taking and a liquid multivitamin is the CoQ10 ok to take with these also?

We will try anything at this point.  Thanks for all the suggestions.

Jennifer

<{POST_SNAPBACK}>

It should be ok to take with it but make sure it is gluten free.

Make sure the vitamins and sublingual B12 are gluten free as well because some are not ok.

Carriefaith Enthusiast
Carriefaith
Posted

I struggled with fatigue for a very long time, about 1 year into the gluten free diet. I am doing much better now though. Vitamins should help and try getting them from natural sources or in liquid form. Also, try to avoid caffeine.

cornbread Explorer
cornbread
Posted

I created a post about this a while ago... I found that sublingual NADH is really helpful for fatigue/brain fog after I'm glutened. I pop 40mg (4 10mg tablets) as soon as possible, and then have one or two whenever I need a pick up. It's totally natural, you can't OD. :) You can buy it at health stores. Sublingual works best. There's a brand I get (ENADAlert) which is around $18 for 10x 10mg pills. I'm sure you can find it cheaper online, I just pick mine up at Whole Foods.

Claire Collaborator
Claire
Posted
Claire - Is all CoQ10 gluten free or can you tell me the brand you take and where you get it? 

I got the sub-lingual B-12 for him to start taking and a liquid multivitamin is the CoQ10 ok to take with these also?

We will try anything at this point.  Thanks for all the suggestions.

Jennifer

<{POST_SNAPBACK}>

Many companies market this product. I personally buy mine from Swanson Health Products - request a catalog from their website or call 1-800-437-4148. I have requested info on all their products that I use including this one and have been told that they are gluten free.

After your first catalog you will get a new one each month. I have had no complaint for anything I have bought from them. Their service is excellent and they were most courteous with gluten questions. Some of these were email requests and others were by phone to Customer Service. Claire

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    2. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    4. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748
    Peta Dunn
    Newest Member
    Peta Dunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.