Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Folic Acid Level Low


w8in4dave

Recommended Posts

w8in4dave Community Regular

I went to the Dr. Because I have just had absolutely no energy so he did a bunch of blood work and one part was Folic acid. Came back my Folic Acid is low. I have read this can be common with Celiac. Does anyone eles have this problem? I eat green leafy vegetables all the time and beans, not sure why this is happening. I guess I go get me a supplement.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MycasMommy Enthusiast

I supplement folic acid twice a day every day. It always came back low before that.  My vitamin D is always low too and I supplement the heck out of that to no seeming avail. The folic acid is working out well though.

w8in4dave Community Regular

My Vitamin D levels are ok I guess. The nurse is sending me my results in the mail should be here in a few days. Then I will see for my self.

mamaw Community Regular

I have had low folic acid for years , long before my twelve years of being celiac....

w8in4dave Community Regular

Well I am still waiting for my results! That was last Friday she said she was sending them out, nothing yet! The pharmacy didn't have any, But a friend of mine had some ,she gave me till the pharmacy comes thru. Amazing that they helped within 2 days! Just amazing! I cannot wait to get up and take my pill! Because after I take it I feel normal. I was hoping the blood work would come up with something so I would have an answer and sure enuf! It did! Lets just hope It stays that way!

MycasMommy Enthusiast

Well I am still waiting for my results! That was last Friday she said she was sending them out, nothing yet! The pharmacy didn't have any, But a friend of mine had some ,she gave me till the pharmacy comes thru. Amazing that they helped within 2 days! Just amazing! I cannot wait to get up and take my pill! Because after I take it I feel normal. I was hoping the blood work would come up with something so I would have an answer and sure enuf! It did! Lets just hope It stays that way!

 

 

Thats great!!  I take 3 times the recommended dose because I do not absorb things well.  Nothing happens if you take more, you pee out the excess, as far as I know.  It is also a safety thing if you plan on children to protect them from spinal issues during gestation. I am so glad to hear youre feeling better! :D

w8in4dave Community Regular

Yea I have 3 grown children out of the house and 7 Grand babies, Ain't no more child bearing for me! Lol But it did explain I could only find low level on the shelf. I got my blood tests back Woot! the test read this ... Result 4.5 ng/mL, Flag L, Reference >5.8.......Doesn't seem low enuf to make a difference to me,but it must of been.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
TashaLouise Apprentice

HI!!

I had the same thing a few weeks back. I had some blood tests for something else but the Folic Acid levels came back as lower than they should be. I always eat food that is high in Folic acid (I practically OD on avocados!) but the levels were low for whatever reason. The doc didnt read anything into it, instead just gave me a months supply of supps and it was all back to normal. I had been feeling uite lower energy wise than normal. I am a lot better now though. It is related to Coeliac disease although I cannot remember why 

 

:)

w8in4dave Community Regular

TashaLouise it was low because being Celiac you have a hard time absorbing vitamins and minerals. I think I have been missing my Folic Acid for a while. I am out of the ones the doc gave me. Anyone have a good source??

  • 5 weeks later...
darlingnea13 Rookie

I had my Gene's? tested through my psychologist and it came back that I as well have a folic acid deficiency. I wondered if It had anything to do with my Celiac but she didn't know.

LauraTX Rising Star

Folic acid levels are something that change with time, and are not detected by a genetic test.  (Unless it is a genetic condition they were screening for that can also cause low folic acid) But I assume your psychologist had you get some bloodwork done to check for vitamin deficiencies and they found a low folic level.  A psychologist is not a medical doctor and definitely not a Celiac specialist so I am glad they gave you the "I don't know" answer instead of making something up when you asked if it was related to your Celiac disease.  A low folic acid level, as well as low levels of other vitamins, can be related to malabsorption from Celiac disease.  I recommend you make an appointment with a GI doctor to regularly get follow up testing to ensure you don't have any long-undetected deficiencies, and have that medical doctor who can advise you on safe supplementation.  Most gluten-free foods are not fortified, so the University of Chicago Celiac Center Open Original Shared Link.  

  • 6 months later...
w8in4dave Community Regular

My Dr. Put me on a Prenatal vitamin. 1 mil. of folic acid a day. I can tell if I don't take one for a couple of days.  He said hed put me on the prenatal so I get more than just the Folic Acid. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,915
    • Most Online (within 30 mins)
      7,748

    marcusdarrell1
    Newest Member
    marcusdarrell1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
    • Xravith
      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.