Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Can't Stop Losing Weight...


mmalaski

Recommended Posts

mmalaski Newbie

Hi. I've been gluten free for alittle over 2 months. I was told I had gluten intolerance because my blood test came back negative, but have had bowl issues since I was a child. My doctor also discovered I had a vitamin d deficiency, which is what triggered the visit to the GI.

Over the last months I have not stopped losing weight. I was 182 lbs when I started and I am currently at 166, and seems to drop a pound a week. I am constany snacking on carrots, apples, peanuts, granola etc. I feel like I am eating all the time.

I eat 3 meals a day. The stupid thing is that before going gluten free I couldn't loose weight no matter how hard I tried. Any recommendations on how to stop the weight loss and keep a healthy weight?

I'm about 5 lbs away from what I weighed when I was 18...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Shell156 Apprentice

Hi there!

 

You sound like me a little after I went gluten free. The weight loss started to worry me when I weighed less than I did at 13!!! Crazy, huh?

 

The thing is, when my BMI was about 19, the weightless just stopped. Maybe this is what a healthy weight is for me? I didn't look particularly overweight before, but I did want to lose weight. After being at this weight for 8 years now, I realized I quite like it! I'm small boned so a BMI of 19- 19.5 looks fine on me.

 

Is your BMI below 18.5? I wouldn't worry too much. I couldn't lose weight before going gluten free either, I think my body was starving for nutrition! Afterwards, I just became a healthy weight and stayed there.

cyclinglady Grand Master

I agree with Shell. Do not worry as long as you stay within your BMI range.

  • 1 year later...
musickep Newbie

I think you have to heal your gut as well as being gluten free. I wonder what your bowel issues are?  Did you have an upper endoscopy with a GI? to ck out your small intestines to see what condition they are in?  Is the granola you are snacking on gluten free?   I was never told to heal my gut and it ended up hurting me in the long run....... and now I am healing my gut with the SCD diet because I have malabsorption and have been loosing weight all year (i was 135-140 and now 120). My stools were huge piles because the gluten-free food i was eating could not be digested.  And I hate to say it but Ive been Celiac for 23 years!   I must have had leaky gut and it never was healed and all the gluten-free food these days is just not healthy, and then you can have cross reactive foods when you have leaky gut - foods that leak into your bloodstream, and then your body attacks it as an invader and boom your allergic to it.  I am now on digestive enzymes, and even betaine hcl.  That is another thing that many people and doctors do not even know about - stomach acid. If that is off, ALL of digestion will be off.  We loose stomach acid with age, but we also can loose it due to parasites.   Anyhow, I wonder also if you ever got a complete stool anaylsis? that will also tell you issues with your stools.  It's the best evidence of how you are digesting and if you have any candida or parasites. Drs Data does this sort of test, you can ck them out online.  Blessings,  kp

Ennis-TX Grand Master

I would suggest more fats and protein in the diet, along with taking BCAA and yohimbine supplements between meals and before bed to help prevent muscle break down. Digestive enzymes before meals might also help you to get more out of what you are eating. Perhaps adding a protein shake to sip on throughout the day or a gluten-free meal replacement shake. Also check that granola and make sure it is gluten-free, and snack on more nuts and seeds. I hear you on the weight issues I had the same problem, on the bright side I am just lean muscle now with no fat at all. Look great just can't seem to get weight on.

  • 5 months later...
Anonymous Newbie

Yes, I was wondering about that too, perhaps this could allow my body to go to a more beneficial and natural weight. It is just soooooo weird, never been in that kind of situation before. The fast weight loss is disturbing but perhaps my body, hopefully, will regulate itself.

 

What a rough road!

Theri Apprentice
On 2/5/2015 at 10:21 PM, mmalaski said:

Hi. I've been gluten free for alittle over 2 months. I was told I had gluten intolerance because my blood test came back negative, but have had bowl issues since I was a child. My doctor also discovered I had a vitamin d deficiency, which is what triggered the visit to the GI.

 

Over the last months I have not stopped losing weight. I was 182 lbs when I started and I am currently at 166, and seems to drop a pound a week. I am constany snacking on carrots, apples, peanuts, granola etc. I feel like I am eating all the time.

 

I eat 3 meals a day. The stupid thing is that before going gluten free I couldn't loose weight no matter how hard I tried. Any recommendations on how to stop the weight loss and keep a healthy weight?

 

I'm about 5 lbs away from what I weighed when I was 18...

You are most likely going thru gluten withdrawal.  Try gluten free amino acid powder. You need more protien. Hold of on roughage until weight stabilizes. Then slowly add it back. It took me over 3 months to stop loosing weight. Get a free gluten scanner on your phone. It is great. I hope you have been informed gluten is in ketchup, lip products, toothpaste, meds., vitamins. The list goes on. Know what you ingest. Hope you feel better soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,119
    • Most Online (within 30 mins)
      7,748

    anagramcat
    Newest Member
    anagramcat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.