Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"gluten Free" Creperie A Charade?

C-Girl

By C-Girl
in Gluten-Free Restaurants

Recommended Posts

C-Girl Contributor
C-Girl
Posted

I went on a brief getaway weekend with the hubs this weekend, and we stayed in a place with a kitchen so I could have safe food. But when we got there I googled a bit and found a nearby crepe restaurant that purported itself to be 100% gluten free. I decided we should patronize the place just because!

We went, I had some crepes, they were decent enough. Then I met the owner and thanked him, asked him what inspired him to open a gluten-free place. He admitted it was because of the trend, and nothing else. RED FLAGS flew up in my mind, especially when he couldn't say what was in the mix other than rice flour. The next night, I was up half the night with gut wrenching cramps, diarrhea, chills, nausea. The next day I was so tired. Now, I'm super depressed and really just do not want to go on living in a world where someone would take advantage of people like us just to make a buck, and not even get it right. I know I was glutened by this place, because I only ate my own food for days before and after eating there. I feel sick in my body, my heart and my soul over this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

I am so sorry that you got sick!

I would comment on Yelp, FB, or Find Me gluten-free to alert others that is place is not for those with celiac disease.

bartfull Rising Star
bartfull
Posted

Wow. Just wow.

 

Have you contacted the guy since you got sick to let him know? Maybe if you inform him he'll at least post a disclaimer so others in the future won't get sick.

lpellegr Collaborator
lpellegr
Posted

A small crepe place near me offered gluten-free crepes, and yes, she had a pitcher of gluten-free batter, but she could not dedicate one of the crepe bakers (like a big round stone) to the gluten-free crepes, so I let her know that she couldn't call them gluten-free.  I don't think she even has that on her menu any more.  Some restaurants need more education.

Nikki2777 Community Regular
Nikki2777
Posted

That's really scary - please post at least what city this was in (if not the name of the place), so we can be forewarned.  But also, I would call them and tell them you got sick, as well as posting on Find Me gluten-free or any local Celiac Meet Up sites.

 

I did manage to find a place that does gluten-free Crepes (Well, "Gallettes" made with buckwheat) when travelling recently, and I felt it was worth the risk because I asked them about the stone they used and it was dedicated.  They seemed to know what they were talking about.  

 

But no one should be calling themselves 100% gluten-free without knowing what they're using!  It's worth calling, because I think when restaurants don't see us getting sick, they figure they're in the clear.  They don't realize it's not like an immediate allergic reaction, and they justify further laxness (laxity?) based on this.

 

Sorry you had to go through that.

C-Girl Contributor
C-Girl
Posted
  • Author

I've put a review up on FMGF. IT's the Creperie and Cafe in Weaverville, NC.

cyclinglady Grand Master
cyclinglady
Posted

Read it. I try to find postings by folks who actually have celiac disease. Those are rare. Hope you are feeling a bit better!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


w8in4dave Community Regular
w8in4dave
Posted

I cannot imagine a restaurant advertising gluten-free and not being state inspected. Wow! So sorry you got so sick! It's like starting back on square 1. 

icelandgirl Proficient
icelandgirl
Posted

I am so sorry this happened to you! How awful! I'm so glad you wrote a review...hopefully that saves someone else your pain. We have one gluten free restaurant where I live...started by a mom and daughter. The daughter is gluten intolerant. I love eating there because I know I can order anything and not have to worry. Eating anywhere else makes me nervous.

Big hugs to you...feel better!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,915
    • Most Online (within 30 mins)
      7,748
    marcusdarrell1
    Newest Member
    marcusdarrell1
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you, a little expensive but glad to have this source. 
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.