Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When I Exhale Through Nose I Smell My Feces?


Firsttimemama2014

Recommended Posts

Firsttimemama2014 Rookie

I can't explain it more than that. I didn't realize that was the smell until today when I had to submit a stool sample and inadvertently smelled my feces and I was like "that's the exact same smell I detect when I exhale with my mouth closed though my nose". It's like coming from deep in my GI tract but I can smell it. 

 

I also did the Candida saliva test and it looks like I definitely have Candida. But, I also had Glidean and IGG antibodies positive as well as blood in my stool via a fecal blood occult. My gastro said it's most likely celiac and wants to do endo/sig whatever but I decided to do more tests.. as I went to a doctor and the doctor suggested I get tested for parasites and Candida. 

 

I also have diarreah (loose) daily but it's only in the morning.. once.

 

More info: Ive used Accutane as a teen as well as tons of antibiotics for acne.. and now I'm 35. All of this started a few months ago after I had a c-section.

 

Any of this sound like good news??? HELL NO. I was terrified to DEATH of an endoscopy but now I can't stop thinking about it.. I might as well get the endoscopy as living like this is way worse. I can't continue living like this, constantly googling symptoms, going to see doctor after doctor for second opinion.  All I talk about with friends and coworkers are my GI symptoms and how scared I am. 

 

Just tired.. want answers!

 

 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

If you have a candidia or bacterial overgrowth issue, that could make parts of the body smell in a distinct manner.  It also could just be what you eat.  I hate to ask this, but do you brush your teeth and the tongue regularly?  Even if you do, breath also comes from farther within, which is why garlic breath stays past tooth brushing.  (Thank god I, a garlic lover, have a husband who tolerates it).  Other distinct foods can do the same.

 

You just need to forge ahead with the endoscopy.  If you get yourself worked up when you google symptoms, try your best to not do that.  You can also ask to be put on the cancellation list so if a spot at the endoscopy center opens up, you can get it done sooner than later and not worry as much about it.  At this point, the benefit of you getting this easy peasy diagnostic procedure outweighs any minimal risk.  You are not an 81 year old person so you are not going to have the same anesthesia risk as the celebrity who passed away that you mentioned.  The next step is to get yourself diagnosed so you can get on track to being better.  Otherwise, you will continue to suffer.

ravenwoodglass Mentor

Have you had the celiac panel blood tests? That might be a good first step. Then if those are positive talk to your doctor about your fears of the endoscopy. If the doctor can not lay those fears to rest ask him/her if positive blood work with levels decreasing after being on the diet and symptom relief is enough for him to consider diagnosing you. 

That said, the endo is pretty easy procedure. It does not take long and so the time under is very short. There are always risks with any procedure but that one is (IMHO) one of the least risky. 

Firsttimemama2014 Rookie
LauraTX

Yes!! I brush 2x daily and floss 1x daily, it's definitely not hygene related. It's something internal.. seems to be uncommon!

 

ravenwoodglass

Yes! I had the celiac panel done hence the elevated IGG and Glidean antibodies!

 

I'm hoping it's Candida but I'll update this thread when I find out exactly what's going on. Have a pending Candida blood test.. will also do scopes (after I'm done procrastinating)

jiggles Apprentice

Hi , Ftmama , it could be common tonsil stones , it seems to fit what you are describing , perhaps google tonsil stones and see if that could be the problem , because sometimes they can hide in the crypts inside the tonsils , you can buy something to flush them out leaving your breath smelling fresh again :)

Firsttimemama2014 Rookie

Hey jiggles, my point actually is that I DO NOT HAVE BAD BREATH  :lol:  B)

 

It's just this smell from inside my GI or something when my mouth is CLOSED. 

 

Hard to explain.. :blink:  :wacko:

LauraTX Rising Star

Good to hear you brush and floss :)  Hehe


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jiggles Apprentice

Hi Firsttimemama2014 ,

I understand you don't have bad breath ,

but because this only happens when you exhale with your mouth closed ,

(no matter where the odour is coming from )

it seems your breath is carrying it up to your nose ,

so if were tonsil stones you wouldn't have to worry about looking any deeper ,

also they can be caused by antibiotics leaving behind small particles of trapped bacteria in the throat ,

sorry for not being clear :) x

oni Newbie

Jiggles is right on. I had the same issue! It was totally tonsil stones. I had my tonsils removed (I tried removing the stones and a slew of other remedies first to no avail) and tada! No more nasty smell, I sleep better too :)

Firsttimemama2014 Rookie

I dunno.. the smell seems to be coming from my GI tract. Anyway, I will work on that.. maybe see an ENT!

 

Endoscopy on Tuesday, wish me luck.. NOT getting sedation ;) 

jiggles Apprentice

Hi Firsttimemama2014 ,

If they are present , you may be able to see them for yourself in a bright light ,

also good luck for Tuesday

you are very brave to have an endoscopy without any sedation, especially with you being pretty scared

may I ask why your not getting sedation

LauraTX Rising Star

Unless you have a medical reason to avoid anesthesia, I highly recommend getting the sedation, makes it quick and easy.  If you are afraid of the anesthesia, then it is better to do it without than not at all, I suppose.

Firsttimemama2014 Rookie

I'm afraid of complications and dr told me that the only real complications arise from the sedation. I have a new baby to take care of.. I cannot take ANY risks! It's just mama strength I guess?

 

Also, my GI told me in China they don't sedate patients! And, she said she had it done to herself without sedation and it just felt like cramps. 

 

When I had my wisdom teeth removed, I only had a lil bit of laughing gas and then drove home!

 

I'm only scared of the sedation.. breathing/heart problems. Yes I'm only 35 but it can happen to anyone!

Firsttimemama2014 Rookie

Jiggles.. I am about to throw up.. I just watched this OMG SO UTTERLY DISGUSTING

OK going to check now to see if I have white stuff in my tonsils (I highly doubt it)

Firsttimemama2014 Rookie

Nope, nothing gross visible anywhere in the back of my throat, as I suspected. It's coming from deep in my stomach or intestines. I'll bring it up to the dr before she does the scope so she can keep an eye out for perhaps an opening or something that is allowing me to smell my insides. 

LauraTX Rising Star

They can be hidden in there so definitely a good idea to have a doctor poke around and look while he is in there :)

fran641 Contributor

I think I am an old chickie that has seen and read a lot of health info BUT this video of the tonsil stone shocked me. I had never even heard of a tonsil stone before! Thanks for that one....gag

oni Newbie

They truly are disgusting. Not all can be seen or dug out. I'd definitely have the doc check how your tonsils look since she's going right by there with a camera anyway.

I hope you get some answers soon! Good luck. I had 'twilight' anesthesia for both my endoscopy and my colonoscopy. I have no memory of the procedures but wasn't fully under.

jiggles Apprentice

Hi Firstimemama2014 ,

Nope I couldn't bring myself to watch the video ,

yes fran it does look rather shocking , I am hoping I don't accidentally press the play button ,

it looks way too graphic for me ,

But just looking at the the photo , it does look like a rather extreme case :P

Jiggles x

  • 3 years later...
SolutionASAP Newbie

Hi Firstimemama2014.

I was looking for a way out when I bomp in to this forum.... I am presently going through the same problem exactly the way you described it about 3ys ago..... I just hope you are still active on this forum lol..... pls help what was the solution? 

  • 1 year later...
Kwame Newbie

Hi did you happen to find out what the problem is and or a solution. I am currently going through the same problem and it's so nerve wracking need help 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,955
    • Most Online (within 30 mins)
      7,748

    JodyBledsoe
    Newest Member
    JodyBledsoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.