Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When I Exhale Through Nose I Smell My Feces?


Firsttimemama2014

Recommended Posts

Firsttimemama2014 Rookie

I can't explain it more than that. I didn't realize that was the smell until today when I had to submit a stool sample and inadvertently smelled my feces and I was like "that's the exact same smell I detect when I exhale with my mouth closed though my nose". It's like coming from deep in my GI tract but I can smell it. 

 

I also did the Candida saliva test and it looks like I definitely have Candida. But, I also had Glidean and IGG antibodies positive as well as blood in my stool via a fecal blood occult. My gastro said it's most likely celiac and wants to do endo/sig whatever but I decided to do more tests.. as I went to a doctor and the doctor suggested I get tested for parasites and Candida. 

 

I also have diarreah (loose) daily but it's only in the morning.. once.

 

More info: Ive used Accutane as a teen as well as tons of antibiotics for acne.. and now I'm 35. All of this started a few months ago after I had a c-section.

 

Any of this sound like good news??? HELL NO. I was terrified to DEATH of an endoscopy but now I can't stop thinking about it.. I might as well get the endoscopy as living like this is way worse. I can't continue living like this, constantly googling symptoms, going to see doctor after doctor for second opinion.  All I talk about with friends and coworkers are my GI symptoms and how scared I am. 

 

Just tired.. want answers!

 

 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

If you have a candidia or bacterial overgrowth issue, that could make parts of the body smell in a distinct manner.  It also could just be what you eat.  I hate to ask this, but do you brush your teeth and the tongue regularly?  Even if you do, breath also comes from farther within, which is why garlic breath stays past tooth brushing.  (Thank god I, a garlic lover, have a husband who tolerates it).  Other distinct foods can do the same.

 

You just need to forge ahead with the endoscopy.  If you get yourself worked up when you google symptoms, try your best to not do that.  You can also ask to be put on the cancellation list so if a spot at the endoscopy center opens up, you can get it done sooner than later and not worry as much about it.  At this point, the benefit of you getting this easy peasy diagnostic procedure outweighs any minimal risk.  You are not an 81 year old person so you are not going to have the same anesthesia risk as the celebrity who passed away that you mentioned.  The next step is to get yourself diagnosed so you can get on track to being better.  Otherwise, you will continue to suffer.

ravenwoodglass Mentor

Have you had the celiac panel blood tests? That might be a good first step. Then if those are positive talk to your doctor about your fears of the endoscopy. If the doctor can not lay those fears to rest ask him/her if positive blood work with levels decreasing after being on the diet and symptom relief is enough for him to consider diagnosing you. 

That said, the endo is pretty easy procedure. It does not take long and so the time under is very short. There are always risks with any procedure but that one is (IMHO) one of the least risky. 

Firsttimemama2014 Rookie
LauraTX

Yes!! I brush 2x daily and floss 1x daily, it's definitely not hygene related. It's something internal.. seems to be uncommon!

 

ravenwoodglass

Yes! I had the celiac panel done hence the elevated IGG and Glidean antibodies!

 

I'm hoping it's Candida but I'll update this thread when I find out exactly what's going on. Have a pending Candida blood test.. will also do scopes (after I'm done procrastinating)

jiggles Apprentice

Hi , Ftmama , it could be common tonsil stones , it seems to fit what you are describing , perhaps google tonsil stones and see if that could be the problem , because sometimes they can hide in the crypts inside the tonsils , you can buy something to flush them out leaving your breath smelling fresh again :)

Firsttimemama2014 Rookie

Hey jiggles, my point actually is that I DO NOT HAVE BAD BREATH  :lol:  B)

 

It's just this smell from inside my GI or something when my mouth is CLOSED. 

 

Hard to explain.. :blink:  :wacko:

LauraTX Rising Star

Good to hear you brush and floss :)  Hehe


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jiggles Apprentice

Hi Firsttimemama2014 ,

I understand you don't have bad breath ,

but because this only happens when you exhale with your mouth closed ,

(no matter where the odour is coming from )

it seems your breath is carrying it up to your nose ,

so if were tonsil stones you wouldn't have to worry about looking any deeper ,

also they can be caused by antibiotics leaving behind small particles of trapped bacteria in the throat ,

sorry for not being clear :) x

oni Newbie

Jiggles is right on. I had the same issue! It was totally tonsil stones. I had my tonsils removed (I tried removing the stones and a slew of other remedies first to no avail) and tada! No more nasty smell, I sleep better too :)

Firsttimemama2014 Rookie

I dunno.. the smell seems to be coming from my GI tract. Anyway, I will work on that.. maybe see an ENT!

 

Endoscopy on Tuesday, wish me luck.. NOT getting sedation ;) 

jiggles Apprentice

Hi Firsttimemama2014 ,

If they are present , you may be able to see them for yourself in a bright light ,

also good luck for Tuesday

you are very brave to have an endoscopy without any sedation, especially with you being pretty scared

may I ask why your not getting sedation

LauraTX Rising Star

Unless you have a medical reason to avoid anesthesia, I highly recommend getting the sedation, makes it quick and easy.  If you are afraid of the anesthesia, then it is better to do it without than not at all, I suppose.

Firsttimemama2014 Rookie

I'm afraid of complications and dr told me that the only real complications arise from the sedation. I have a new baby to take care of.. I cannot take ANY risks! It's just mama strength I guess?

 

Also, my GI told me in China they don't sedate patients! And, she said she had it done to herself without sedation and it just felt like cramps. 

 

When I had my wisdom teeth removed, I only had a lil bit of laughing gas and then drove home!

 

I'm only scared of the sedation.. breathing/heart problems. Yes I'm only 35 but it can happen to anyone!

Firsttimemama2014 Rookie

Jiggles.. I am about to throw up.. I just watched this OMG SO UTTERLY DISGUSTING

OK going to check now to see if I have white stuff in my tonsils (I highly doubt it)

Firsttimemama2014 Rookie

Nope, nothing gross visible anywhere in the back of my throat, as I suspected. It's coming from deep in my stomach or intestines. I'll bring it up to the dr before she does the scope so she can keep an eye out for perhaps an opening or something that is allowing me to smell my insides. 

LauraTX Rising Star

They can be hidden in there so definitely a good idea to have a doctor poke around and look while he is in there :)

fran641 Contributor

I think I am an old chickie that has seen and read a lot of health info BUT this video of the tonsil stone shocked me. I had never even heard of a tonsil stone before! Thanks for that one....gag

oni Newbie

They truly are disgusting. Not all can be seen or dug out. I'd definitely have the doc check how your tonsils look since she's going right by there with a camera anyway.

I hope you get some answers soon! Good luck. I had 'twilight' anesthesia for both my endoscopy and my colonoscopy. I have no memory of the procedures but wasn't fully under.

jiggles Apprentice

Hi Firstimemama2014 ,

Nope I couldn't bring myself to watch the video ,

yes fran it does look rather shocking , I am hoping I don't accidentally press the play button ,

it looks way too graphic for me ,

But just looking at the the photo , it does look like a rather extreme case :P

Jiggles x

  • 3 years later...
SolutionASAP Newbie

Hi Firstimemama2014.

I was looking for a way out when I bomp in to this forum.... I am presently going through the same problem exactly the way you described it about 3ys ago..... I just hope you are still active on this forum lol..... pls help what was the solution? 

  • 1 year later...
Kwame Newbie

Hi did you happen to find out what the problem is and or a solution. I am currently going through the same problem and it's so nerve wracking need help 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,073
    • Most Online (within 30 mins)
      7,748

    amaryliss
    Newest Member
    amaryliss
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Tazfromoz
      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until she was 65. Me at 45. I've had the new long lasting vaccine. It knocked me around badly, but worth it to avoid shingles.
    • hjayne19
      Hi all,  Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was doing some research and questioned either or not I might have celiac disease (since I didn’t have any gastric symptoms really). My family doctor ran blood screening for celiac. And my results came back: Tissue Transglutaminase Ab IgA HI 66.6 U/mL Immunoglobulin IgA 1.73 g/ My doctor then diagnosed me with celiac and I have now been gluten free for 3 months. In this time I no longer get night sweats my joint pain is gone and I’m still having trouble sleeping but could very much be from anxiety. I was since referred to an endoscopy clinic to get a colonoscopy and they said I should be getting a biopsy done to confirm celiac. In this case I have to return to eating gluten for 4-6 weeks before the procedure. Just wanted some advice on this. I seem to be getting different answers from my family physician and from the GI doctor for a diagnosis.    Thanks,  
    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.