Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When I Exhale Through Nose I Smell My Feces?


Firsttimemama2014

Recommended Posts

Firsttimemama2014 Rookie

I can't explain it more than that. I didn't realize that was the smell until today when I had to submit a stool sample and inadvertently smelled my feces and I was like "that's the exact same smell I detect when I exhale with my mouth closed though my nose". It's like coming from deep in my GI tract but I can smell it. 

 

I also did the Candida saliva test and it looks like I definitely have Candida. But, I also had Glidean and IGG antibodies positive as well as blood in my stool via a fecal blood occult. My gastro said it's most likely celiac and wants to do endo/sig whatever but I decided to do more tests.. as I went to a doctor and the doctor suggested I get tested for parasites and Candida. 

 

I also have diarreah (loose) daily but it's only in the morning.. once.

 

More info: Ive used Accutane as a teen as well as tons of antibiotics for acne.. and now I'm 35. All of this started a few months ago after I had a c-section.

 

Any of this sound like good news??? HELL NO. I was terrified to DEATH of an endoscopy but now I can't stop thinking about it.. I might as well get the endoscopy as living like this is way worse. I can't continue living like this, constantly googling symptoms, going to see doctor after doctor for second opinion.  All I talk about with friends and coworkers are my GI symptoms and how scared I am. 

 

Just tired.. want answers!

 

 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

If you have a candidia or bacterial overgrowth issue, that could make parts of the body smell in a distinct manner.  It also could just be what you eat.  I hate to ask this, but do you brush your teeth and the tongue regularly?  Even if you do, breath also comes from farther within, which is why garlic breath stays past tooth brushing.  (Thank god I, a garlic lover, have a husband who tolerates it).  Other distinct foods can do the same.

 

You just need to forge ahead with the endoscopy.  If you get yourself worked up when you google symptoms, try your best to not do that.  You can also ask to be put on the cancellation list so if a spot at the endoscopy center opens up, you can get it done sooner than later and not worry as much about it.  At this point, the benefit of you getting this easy peasy diagnostic procedure outweighs any minimal risk.  You are not an 81 year old person so you are not going to have the same anesthesia risk as the celebrity who passed away that you mentioned.  The next step is to get yourself diagnosed so you can get on track to being better.  Otherwise, you will continue to suffer.

ravenwoodglass Mentor

Have you had the celiac panel blood tests? That might be a good first step. Then if those are positive talk to your doctor about your fears of the endoscopy. If the doctor can not lay those fears to rest ask him/her if positive blood work with levels decreasing after being on the diet and symptom relief is enough for him to consider diagnosing you. 

That said, the endo is pretty easy procedure. It does not take long and so the time under is very short. There are always risks with any procedure but that one is (IMHO) one of the least risky. 

Firsttimemama2014 Rookie
LauraTX

Yes!! I brush 2x daily and floss 1x daily, it's definitely not hygene related. It's something internal.. seems to be uncommon!

 

ravenwoodglass

Yes! I had the celiac panel done hence the elevated IGG and Glidean antibodies!

 

I'm hoping it's Candida but I'll update this thread when I find out exactly what's going on. Have a pending Candida blood test.. will also do scopes (after I'm done procrastinating)

jiggles Apprentice

Hi , Ftmama , it could be common tonsil stones , it seems to fit what you are describing , perhaps google tonsil stones and see if that could be the problem , because sometimes they can hide in the crypts inside the tonsils , you can buy something to flush them out leaving your breath smelling fresh again :)

Firsttimemama2014 Rookie

Hey jiggles, my point actually is that I DO NOT HAVE BAD BREATH  :lol:  B)

 

It's just this smell from inside my GI or something when my mouth is CLOSED. 

 

Hard to explain.. :blink:  :wacko:

LauraTX Rising Star

Good to hear you brush and floss :)  Hehe


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jiggles Apprentice

Hi Firsttimemama2014 ,

I understand you don't have bad breath ,

but because this only happens when you exhale with your mouth closed ,

(no matter where the odour is coming from )

it seems your breath is carrying it up to your nose ,

so if were tonsil stones you wouldn't have to worry about looking any deeper ,

also they can be caused by antibiotics leaving behind small particles of trapped bacteria in the throat ,

sorry for not being clear :) x

oni Newbie

Jiggles is right on. I had the same issue! It was totally tonsil stones. I had my tonsils removed (I tried removing the stones and a slew of other remedies first to no avail) and tada! No more nasty smell, I sleep better too :)

Firsttimemama2014 Rookie

I dunno.. the smell seems to be coming from my GI tract. Anyway, I will work on that.. maybe see an ENT!

 

Endoscopy on Tuesday, wish me luck.. NOT getting sedation ;) 

jiggles Apprentice

Hi Firsttimemama2014 ,

If they are present , you may be able to see them for yourself in a bright light ,

also good luck for Tuesday

you are very brave to have an endoscopy without any sedation, especially with you being pretty scared

may I ask why your not getting sedation

LauraTX Rising Star

Unless you have a medical reason to avoid anesthesia, I highly recommend getting the sedation, makes it quick and easy.  If you are afraid of the anesthesia, then it is better to do it without than not at all, I suppose.

Firsttimemama2014 Rookie

I'm afraid of complications and dr told me that the only real complications arise from the sedation. I have a new baby to take care of.. I cannot take ANY risks! It's just mama strength I guess?

 

Also, my GI told me in China they don't sedate patients! And, she said she had it done to herself without sedation and it just felt like cramps. 

 

When I had my wisdom teeth removed, I only had a lil bit of laughing gas and then drove home!

 

I'm only scared of the sedation.. breathing/heart problems. Yes I'm only 35 but it can happen to anyone!

Firsttimemama2014 Rookie

Jiggles.. I am about to throw up.. I just watched this OMG SO UTTERLY DISGUSTING

OK going to check now to see if I have white stuff in my tonsils (I highly doubt it)

Firsttimemama2014 Rookie

Nope, nothing gross visible anywhere in the back of my throat, as I suspected. It's coming from deep in my stomach or intestines. I'll bring it up to the dr before she does the scope so she can keep an eye out for perhaps an opening or something that is allowing me to smell my insides. 

LauraTX Rising Star

They can be hidden in there so definitely a good idea to have a doctor poke around and look while he is in there :)

fran641 Contributor

I think I am an old chickie that has seen and read a lot of health info BUT this video of the tonsil stone shocked me. I had never even heard of a tonsil stone before! Thanks for that one....gag

oni Newbie

They truly are disgusting. Not all can be seen or dug out. I'd definitely have the doc check how your tonsils look since she's going right by there with a camera anyway.

I hope you get some answers soon! Good luck. I had 'twilight' anesthesia for both my endoscopy and my colonoscopy. I have no memory of the procedures but wasn't fully under.

jiggles Apprentice

Hi Firstimemama2014 ,

Nope I couldn't bring myself to watch the video ,

yes fran it does look rather shocking , I am hoping I don't accidentally press the play button ,

it looks way too graphic for me ,

But just looking at the the photo , it does look like a rather extreme case :P

Jiggles x

  • 3 years later...
SolutionASAP Newbie

Hi Firstimemama2014.

I was looking for a way out when I bomp in to this forum.... I am presently going through the same problem exactly the way you described it about 3ys ago..... I just hope you are still active on this forum lol..... pls help what was the solution? 

  • 1 year later...
Kwame Newbie

Hi did you happen to find out what the problem is and or a solution. I am currently going through the same problem and it's so nerve wracking need help 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    2. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,901
    • Most Online (within 30 mins)
      7,748

    kharvey
    Newest Member
    kharvey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.