Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sound Like Celiac Disease?


Jaey

Recommended Posts

Jaey Newbie

So last year I went out with a friend and walked around all day shopping at some giant strip mall.  Came home and at night I had a tingle in my right calf.  I stretched it a bit and the next day my ankle was stiff and hurt.  I chalked it up to a sprain of some sort and it was hurting for about 2 months.  The pain would reach up my entire leg.  Then it started to go away and then it spread to my other ankle.  Now I started worrying that it couldn't be an ankle sprain it must be arthritis or something.  So both my ankles ached a bit.  Then my feet and hands would tingle with pin pricks.  Also my muscles would start twitching all over my body.  Little spasms.  That lasted about a week.  Then finally I started getting this pain in my lower rib area over my gallbladder or liver.  It was becoming so intense like this burning ache.  My back around the kidney areas was starting to ache as well.  I did some research and first thought diabetes but stopping all sugar didnt help.  So I tried gluten free and the tingling, twitching, ankle pain, and intestine pain all lessened.  Well the twitching and tingling stopped completely and the ankle pain is only very slight.  But my intestine pain is still there and sometimes it flares up for reasons that I do not know.  I could swear I don't touch gluten but still sometimes the intestine pain worsens and it makes me wonder if it really is gluten after all.  I eat out alot so I don't know if it's cross contamination that's getting me or what.  Does this sound like Celiac to you or something else?  I should have health insurance through obama care very soon so I've been waiting on that to come through for me before I go for a diagnoses.  Should I be stopping all dairy as well just to be safe?

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



indianaharlegirl Newbie

Hello: you need basic blood work panels to check your liver and kidney functions and white and red blood counts and they need to do an A1C and other tests for diabetes and many other things. I have researched Celiac and it really is different for everybody and they usually don't test for it unless you ask or they have ruled out everything else.....unfortunately. Good luck. Hope you find your answer but those symptoms could be many different things....

nom Newbie

It is easy to get Gluten contamination in restaurants.  Even those who have Gluten Free menus and do everything they can to avoid it, there's still a chance because accidents happen.

 

If you want to give Gluten Free a serious go, you need to stop eating out for at least a couple of weeks, but before you do so you have to scrub your kitchen completely.  I tried it half-heartedly at first a while back, and didn't get as dramatic a change as I did recently.  I went through a fierce withdrawal, which tells me I didn't do it properly the first time.

 

Just my $0.02 anyway.

ravenwoodglass Mentor

It could be celiac or a it could be something else. You need to start eating gluten again if you are going to be tested for celiac. If you are not eating gluten your body won't have the antibodies that the doctors will be looking for to diagnose you. Hope this gets figured out for you soon. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    2. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    3. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    4. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,063
    • Most Online (within 30 mins)
      7,748

    JTL1976
    Newest Member
    JTL1976
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
      Thanks for your input. 
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.