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Day 1 Of Gluten Free Diet-Thyroid Issues, But Tested Negative For Celiac

glutenfreegirlinnyc

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glutenfreegirlinnyc Newbie
glutenfreegirlinnyc
Posted

Hi, 

 

I am new here so will give a bit of history! I have had autoimmune disorder since 13 (diagnosed with hyper thyroid) which has now turned hypo many years later. 

 

Aside from that I have had many joint swelling and severe stomach issues my entire life. Every blood test under the sun has come back negative for major issue including lupus, arthritis, celiac etc. Even my colonoscopy and endoscopy came back normal. I am sick of dr.'s telling me my symptoms of always feeling tired, dizzy, bloated, and having severe gas pain and digestion issues are in my head. 

I have had such bad gas pressure under my ribs that it causes chest pain and heaviness to the point I have had to have my heart checked (also normal) lol Even abdominal scans with contrast the check appendix or gallbladder have some back normal. 

 

I have notice more than ever that my issues arise after eating meals. I get abdominal pain in the exact same spot, dry mouth,severe gas (burping) and a dizzy feeling. My diet is very very wheat heavy and today is the first day I am trying a gluten free diet for 30 days to see if it helps me feel normal. Is it possible to be negative for Celiac, but have such a strong reaction to wheat as I suspect I am? 

 

I already am feeling better after having an omelet with no toast today-no stomach attack after breakfast! 

 

I hope you can all help me with tips and foods to watch out for which may seem gluten free etc. I'm not replacing snacks like chips or bread with gluten free snacks or bread etc, just cutting them totally and will crunch on something more healthy like carrot sticks:) 

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badcasper Explorer
badcasper
Posted

You can't always rely on doctors and/or test results.  Listen to your body cause if you are feeling better and getting better, what else matters really.  I am self diagnosed and I have been gluten free for 6 weeks and it just keeps getting better all the time.  Try to stick to wholesome foods.  fruits,vegies, beans, and rice. Avoid processed foods, flavored foods,  I always use sea salt too.  Snacks I like that are safe Kozy rice and chocolate pudding, fritos[ make sure they are corn,salt corn oil only] King aurther brand cake is wonderful with betty crocker frosting.  Andys frozen yogurt is safe. Im very leary about eating out.  I also avoid soy but I have issues with it.  DONT EAT BEANS FROM A CAN bad idea! Be careful with medications and vitamins.  I use naturemade and can only take advil cold and sinus.  I cook a lot in the crockpot and make my own chicken soup and porktenderloin roast.  Tinkyada rice spaghetti and noodles are great and I use ragu it's safe.  soy sauce has gluten.  chex cereal is supposed to be gluten-free. I switched to gluten-free oatmeal cause reg oatmeal can be cross contaminated and probably was cause I feel better since I switched.  I use corn tortillas for Mexican food and did find a taco sauce that's gluten-free.  You don't have to spend a lot of money buying special gluten free products. 

cyclinglady Grand Master
cyclinglady
Posted

You may not have had the complete celiac blood panel. If my doctor did not order the complete panel, my diagnosis would have been missed. You might want to take a look at a copy of your lab tests.

If you decide that you are going gluten free, check out our Newbie 101 tips under the "Coping" section.

Welcome to the forum!

LauraTX Rising Star
LauraTX
Posted

Welcome to the forum!  As cyclinglady said, if you would like us to take a double look at your test results to make sure nothing was missed, we would be glad to.  Even if they are truly negative, you could have non-celiac gluten intolerance, or NCGI, and the gluten-free trial diet will let you know whether or not it helps.  Eat the way that makes you feel better :)

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      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
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