Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When To Test.


SGWhiskers

Recommended Posts

SGWhiskers Collaborator

I have Celiac disease so we've kept my daughter gluten free until testing would be reliable for her. Fortunately, we have an awesome support system and several gluten free friends. However, I've forgotten how old she needs to be for reliable test results. I'd rather err on the side of over cautious.

So, how old should kids be before testing is pretty consistently reliable?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I have not found any set ages in my limited research. The older the better, though. I would consider testing before she starts school. No one wants to be deal with being sick and going to school.

I waited a year before I tested my kid (13 years old), but that was due to all the healthcare reform. We are self-employed and even though we could afford insurance, getting it was difficult! She never stopped eating gluten and had no symptoms. With two of us, we think she is doomed, but we are ever hopeful!

StephanieL Enthusiast

When DD started preschool we gave her gluten in home for a few days to be sure she didn't have a horrible reaction to it. Then when she started I knew she would get getting gluten containing snacks at school on a daily basis.  At the winter holiday break we had her tested.   She is now in K and since they don't have the same snack she is back to being gluten free except when we go out to eat.  We chose to have a gluten-free house for all the kids to keep DS safe (he's the oldest).  We have a younger kid who we are planning on the same approach with.

SGWhiskers Collaborator

Since we are homeschooling, we don't have the pressure of lunchrooms and snacktime.

nvsmom Community Regular

Toddlers are the hardest to test.  Usually they say 2 and under is tricky.

 

If she resumes eating gluten, remember that she'll need to be retested every two years for life.  It might be safer to just keep her gluten-free until she wants to test.

StephanieL Enthusiast

Since we are homeschooling, we don't have the pressure of lunchrooms and snacktime.

Accommodations carry over to college too so it may not be something now/today but may be something for the future you may need.

nvsmom Community Regular

Accommodations carry over to college too so it may not be something now/today but may be something for the future you may need.

 

True. Because you don`t need the accommodations yet, there is no rush to test now if you don`t want to.

 

I`m in Canada, and homeschooling too, and up here they generally trust whatever the parent tells them.  For instance, my boys attend classes with the local public school board through the homeschool program. My oldest has a tree nut allergy, mild asthma, and a gluten sensitivity which I suspect is celiac disease but his one and only test (two years ago) was negative, but I have just told them he has those helath issues and celiac disease - they did not ask to see any proof at all.

 

I have no idea how it works in colleges, but I probably won`t have my kids in rez - most kids don`t use that up here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,487
    • Most Online (within 30 mins)
      7,748

    Karen Murphy
    Newest Member
    Karen Murphy
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.