Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When To Test.


SGWhiskers

Recommended Posts

SGWhiskers Collaborator

I have Celiac disease so we've kept my daughter gluten free until testing would be reliable for her. Fortunately, we have an awesome support system and several gluten free friends. However, I've forgotten how old she needs to be for reliable test results. I'd rather err on the side of over cautious.

So, how old should kids be before testing is pretty consistently reliable?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I have not found any set ages in my limited research. The older the better, though. I would consider testing before she starts school. No one wants to be deal with being sick and going to school.

I waited a year before I tested my kid (13 years old), but that was due to all the healthcare reform. We are self-employed and even though we could afford insurance, getting it was difficult! She never stopped eating gluten and had no symptoms. With two of us, we think she is doomed, but we are ever hopeful!

StephanieL Enthusiast

When DD started preschool we gave her gluten in home for a few days to be sure she didn't have a horrible reaction to it. Then when she started I knew she would get getting gluten containing snacks at school on a daily basis.  At the winter holiday break we had her tested.   She is now in K and since they don't have the same snack she is back to being gluten free except when we go out to eat.  We chose to have a gluten-free house for all the kids to keep DS safe (he's the oldest).  We have a younger kid who we are planning on the same approach with.

SGWhiskers Collaborator

Since we are homeschooling, we don't have the pressure of lunchrooms and snacktime.

nvsmom Community Regular

Toddlers are the hardest to test.  Usually they say 2 and under is tricky.

 

If she resumes eating gluten, remember that she'll need to be retested every two years for life.  It might be safer to just keep her gluten-free until she wants to test.

StephanieL Enthusiast

Since we are homeschooling, we don't have the pressure of lunchrooms and snacktime.

Accommodations carry over to college too so it may not be something now/today but may be something for the future you may need.

nvsmom Community Regular

Accommodations carry over to college too so it may not be something now/today but may be something for the future you may need.

 

True. Because you don`t need the accommodations yet, there is no rush to test now if you don`t want to.

 

I`m in Canada, and homeschooling too, and up here they generally trust whatever the parent tells them.  For instance, my boys attend classes with the local public school board through the homeschool program. My oldest has a tree nut allergy, mild asthma, and a gluten sensitivity which I suspect is celiac disease but his one and only test (two years ago) was negative, but I have just told them he has those helath issues and celiac disease - they did not ask to see any proof at all.

 

I have no idea how it works in colleges, but I probably won`t have my kids in rez - most kids don`t use that up here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    2. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    3. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    4. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,060
    • Most Online (within 30 mins)
      7,748

    Loki123
    Newest Member
    Loki123
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churro
      I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
      Thanks for your input. 
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
    • Churro
      No I haven't had one since 2021. I rarely have more than 1 per week. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.