Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Celiac Disease Is Causing Stressful Family Conflict


Coolclimates

Recommended Posts

Wheatless32 Newbie

After five years, the only thing I have learned is trust no one. Really, unless they are in the exact same diet regiment as you, they will screw up. The best advice I can give is just worry about yourself, and as sad as it sounds, give up on others trying to help you, and give up on trying to change others unless they are like your mom, and really on board for the full shift. This is because you are functioning on your own survival and well-being, and someone else's survival and well-being is more important to themselves, than your well-being is to them. They don't have a real care in whether or not you get sick, they might feel bad for a bit, but you will feel bad for days, and they will forget about it quickly to focus on their own needs, as there is nothing that can be done to fix a food allergy reaction, so you are stuck suffering, while they go about their lives normally.

 

I am sorry about the conflict, it has caused me a lot of pain and struggle in my family as well, and I've only learned to give up on people, and develop a steel resolve to leave any situation that doesn't feel safe to me.

I have learned my lesson too many times the hard way, people will forget about your disease in order to be more socially acceptable and 'go with the flow'.

 

I have parents that have been struggling for YEARS to try to get it right, but my mom's obese and has too much attachment to food to give up gluten, so even though I try as hard as I can I still usually get sick everytime I visit from their unclean snacking habits. Flour based food just gets everywhere.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,151
    • Most Online (within 30 mins)
      7,748

    Juneweedon
    Newest Member
    Juneweedon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      Thanks @Beverage for checking in!  I haven't changed the dogs' food yet.  I'm still working through some of the other issues that I need to remedy (transitioning to an anti-inflammatory diet, being sure to get only gluten-free certified items, and buying some new cookware for my kitchen).  Somewhere after that, I have on my list to try out the dogs on a new dog food, but I haven't gotten there yet.  In the meantime, though, I can definitely see that some of my worst days seem to follow when there's a possibility of gluten cross-contamination (I'm still working to cut waaay down on these instances) OR when I eat anything with dairy/ milk protein in it.  So I think I need to really get a better handle on my day-to-day eating habits to reduce all gluten cross-contamination into my food and also any dairy intake, and then at that point, I think I'll start moving over to the dog food thing.  
    • Scott Adams
      Sounds like fun, and I was in Germany a few years ago so you might find these articles helpful:    
    • Scott Adams
      I just want to mention that we summarize the latest research on refractory celiac disease here: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/refractory-celiac-disease-collagenous-sprue/
    • Scott Adams
      I don't think you have the URL/site address correct, as there is nothing at that site.
    • lmurphyfoster
      Hello All I am traveling to Germany in October and will be in Berlin, Rothenburg ODT , Salzburg, Fussen and Munich.  I am also driving the northern part of the romantic road with stops in some of the smaller towns along the way.  I would really appreciate any recommendations for gluten-free friendly places, restaurants and any gluten-free beer gardens.  Thanks in advance, Laura
×
×
  • Create New...