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Celiacandme Apprentice

I remember at one point I remember searching on this site urticaria as a reaction to cold and seeing that a few celiac patients seemed to be experiencing this.

 

I was just curious who deals with urticaria here and what seems to trigger it for you...cold? Heat? Stress? A certain food? Did it start for you before or after your celiac disease diagnosis?

Just thought it would be interesting to see what others experience.

 

~Julie


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cyclinglady Grand Master

I had cold urticaria, at least for the first 50 years of my life.  I would get swelling, hives, big/huge wheals on my skin from exposure to cold water, air, snow, etc.  Had it since I was a kid.  Had issues with skiing.  My feet would swell and I would be stuck in my boots for at least a half hour.  Touch snow and my hands would instantly swell, then get hives and itch.   Itchy wheals across my stomach when I swam in the ocean.  They were actually everywhere and it was embarrassing!  All would resolve when I warmed up.  I live in a warm climate, so I have managed.  

 

I used to entertain family by rubbing an ice cube on my leg.  Sure enough, the swelling, wheals and hives would appear.  But I tried it a few months ago and nothing!  I know my other allergies have greatly been reduced.  I have survived an early pollen season and still doing well.  Just have taken a few antihistamines everyone once in a while (it is windy and hot today, so I took one during to itchy eyes, mouth, etc. from being outside.  Mold typically gets me and the hot winds scatter mold spores everywhere.)

 

Bottom line is that I my allergies have greatly diminished.  I think it's from healing from celiac disease!  

janpell Apprentice

I get it at times. Mine comes on with exercise, usually with outdoor activities. I hate it as I find the itching almost unbearable.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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    • Butch68
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