Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Digestive Enzymes


heliosue

Recommended Posts

heliosue Apprentice

I could really use some advice about digestive enzymes, with some specific brand names, if possible.  There are so many products out there that I have not idea where to start and am wondering if certain enzymes might be more appropriate for Celiac sufferers than for folks with different digestion problems.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I used Maxi-Zyme by Country Life for a while.  They are certified gluten-free.

 

I waited one month before taking any supplements after my diagnosis.  I wanted to expedite healing so I carefully added some in.  I tend to have allergic reactions to things, so I am cautious.  Then I would take a supplement and then wait a couple of days to see if I react to them.  Then I slowly build up to the correct daily dose.  This is how my old doctor managed my medications.  I stopped most supplements within the first year (e.g. stopped iron once my ferritin levels were up).  Now I do not take any supplements except for a bit of calicum, vit.D and magnesium supplement for bone support (I have osteoporosis thanks to celiac disease!).  I figure that I am absorbing them from food and I have the lab tests to prove it!   :)

heliosue Apprentice

Thanks for the reply. I guess digestive enzymes are not as much in use as I imagined they were.  I'll check out the ones that you mentioned and do some more research.  Thanks again.

LauraTX Rising Star

I use these, they are the CVS brand and gluten-free Open Original Shared Link

They go on sale buy one get one half off, plus coupons, etc.

StClair Apprentice

I'm just starting Source Naturals Essential Enzymes and will check in after a few days to report results.

Zebra007 Contributor

I use Daily Essential Enzymes and have found them to really make a difference to me..I choose these because they seemed like good value, and I have been taking them a week with no problems.

 

Open Original Shared Link

heliosue Apprentice

Thanks for the replies.  I, at least, have a few to choose from now.  I went to the CDF Expo in Pasadena yesterday and picked up a catalogue from a company called Kirkman, which looks interesting.  I have some questions about the value of taking enzymes to help digest gluten, when I'm not eating gluten. Still thinking about this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Whoa! I googled this manufacturer and the first page of hits are blogs and the company's promotional brochure (PDF). The enzyme products as well as the rest of the products claim to be gluten free (saw no Certified gluten-free labeling.). That is fine, but to state that it will help with accidental glutenings is false! I suppose the applicable enzymes (like peptidases) may help digest grains like wheat but that is not helpful to someone with celiac disease! Their statements of like "living gluten free may cause nutritional deficiencies" is outrageous! Having celiac disease can cause deficiencies -- not a gluten free diet (unless you eat the a typical junk food diet and that can happen on one that contains gluten!). Their list of references are so lame too. References like that on my kid's science project would earn her a failing grade! It is that cheesy!

I have found nothing in research yet that has been tested and proven to help accidental glutenings yet! Drug companies are working on it, but they are not available. I would be very leary of a company which makes such claims and am horrified that they are promoting them at the conference! I guess they will sell space to anyone at the EXPO.

Supplements can be very helpful when the gut is damaged. I encourage everyone to get tested for defciencies when they are first diagnosed but do not expect that you will need to take them for the rest of your life!

Sorry, but this is a classic example of a modern day snake oil or Lucy's Vitameatavegamin scam (view the old "I Love Lucy" skit on this topic on YOUTUBE for a laugh).

heliosue Apprentice

Whoa! I googled this manufacturer and the first page of hits are blogs and the company's promotional brochure (PDF). The enzyme products as well as the rest of the products claim to be gluten free (saw no Certified gluten-free labeling.). That is fine, but to state that it will help with accidental glutenings is false! I suppose the applicable enzymes (like peptidases) may help digest grains like wheat but that is not helpful to someone with celiac disease! Their statements of like "living gluten free may cause nutritional deficiencies" is outrageous! Having celiac disease can cause deficiencies -- not a gluten free diet (unless you eat the a typical junk food diet and that can happen on one that contains gluten!). Their list of references are so lame too. References like that on my kid's science project would earn her a failing grade! It is that cheesy!

I have found nothing in research yet that has been tested and proven to help accidental glutenings yet! Drug companies are working on it, but they are not available. I would be very leary of a company which makes such claims and am horrified that they are promoting them at the conference! I guess they will sell space to anyone at the EXPO.

Supplements can be very helpful when the gut is damaged. I encourage everyone to get tested for defciencies when they are first diagnosed but do not expect that you will need to take them for the rest of your life!

Sorry, but this is a classic example of a modern day snake oil or Lucy's Vitameatavegamin scam (view the old "I Love Lucy" skit on this topic on YOUTUBE for a laugh).

Thanks.  I haven't had a chance to Google them yet.  I think they also sell on Amazon. To be honest, I don't think the rep was pushing the digestive enzymes at the Expo.  He had lots of products on his table and I mentioned that I was looking into getting some digestive enzymes and he suggested that I check out the catalog.  That was where I found the enzyme that seemed to aimed at the Celiac audience.

heliosue Apprentice

Thanks.  I haven't had a chance to Google them yet.  I think they also sell on Amazon. To be honest, I don't think the rep was pushing the digestive enzymes at the Expo.  He had lots of products on his table and I mentioned that I was looking into getting some digestive enzymes and he suggested that I check out the catalog.  That was where I found the enzyme that seemed to aimed at the Celiac audience.

BTW - love the vitameatavegimin  show!

mamaw Community Regular

I think many celiac  folks  take  digestive  enzymes. Plus probiotics....  D-enzymes  help  break down  the  proteins carbs & such  to help  the  body... I use  DIgest Gold  ...

cyclinglady Grand Master

I think many celiac  folks  take  digestive  enzymes. Plus probiotics....  D-enzymes  help  break down  the  proteins carbs & such  to help  the  body... I use  DIgest Gold  ...

Mamaw,

I am not knocking digestive enzymes or probiotics as I have used them for over 20 years and my doctor was the first to recommend them. The company that Heliosue mentioned seems to imply that their product works to prevent the effects of accidentally getting glutened. . No one should make that claim! Avoiding gluten is currently the only "cure" for those with celiac disease.

mamaw Community Regular

cyclinglady,  I  was  answering  the posters  comment in her  second  post "I guess digestive  enzymes are not as  much in use  as  I  imagined"  My  comment  back  was  many celiac  folks  use  digestive  enzymes  & probiotics....

And  by the  way  your  post  back  to me -- I totally agree  so I guess  you have  me  confused...I wasn't  knocking  anything  or anyone....how  did  you  get  to think that?

 

I do see  many  pills  labeled  for  help  with gluten  ingestion,  they do make  claims  but  I never  used  any of them because  in twelve  years  I was  glutened  once..... Ie: gluten ease, glutenza & so many more. I can't  give a  yay or  nay  on  these  pills as  I never tried  them........ every company  wants to  jump into the gluten-free  arena to make  big  bucks....common  sense  is needed....

I'm a  great  advocator   of  the benefits  of  probiotics  &  digestive  enzymes....not  to "cure celiac"  but to help  the gut  in the healing process..

heliosue Apprentice

Oh. dear!  I think this thread got glutened!  I believe Cyclinglady was totally responding to my post about the Kirkman brand at the Expo.  Sometimes the response get mixed up due to times and which actual post someone is replying to.  Anyway, thank all of you for trying to help me figure out my digestive enzyme problem.

cyclinglady Grand Master

Ha! Let's face it. It is so easy for things to be mis-communicated without being face to face! Sorry!

heliosue Apprentice

Absolutely nothing to be sorry for from my corner of the ring.  In  the few weeks that I have been hanging out here, I have learned to value your input.  Thanks.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    3. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    5. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,261
    • Most Online (within 30 mins)
      7,748

    Pbaentine
    Newest Member
    Pbaentine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.