Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Digestive Enzymes


heliosue

Recommended Posts

heliosue Apprentice

I could really use some advice about digestive enzymes, with some specific brand names, if possible.  There are so many products out there that I have not idea where to start and am wondering if certain enzymes might be more appropriate for Celiac sufferers than for folks with different digestion problems.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I used Maxi-Zyme by Country Life for a while.  They are certified gluten-free.

 

I waited one month before taking any supplements after my diagnosis.  I wanted to expedite healing so I carefully added some in.  I tend to have allergic reactions to things, so I am cautious.  Then I would take a supplement and then wait a couple of days to see if I react to them.  Then I slowly build up to the correct daily dose.  This is how my old doctor managed my medications.  I stopped most supplements within the first year (e.g. stopped iron once my ferritin levels were up).  Now I do not take any supplements except for a bit of calicum, vit.D and magnesium supplement for bone support (I have osteoporosis thanks to celiac disease!).  I figure that I am absorbing them from food and I have the lab tests to prove it!   :)

heliosue Apprentice

Thanks for the reply. I guess digestive enzymes are not as much in use as I imagined they were.  I'll check out the ones that you mentioned and do some more research.  Thanks again.

LauraTX Rising Star

I use these, they are the CVS brand and gluten-free Open Original Shared Link

They go on sale buy one get one half off, plus coupons, etc.

StClair Apprentice

I'm just starting Source Naturals Essential Enzymes and will check in after a few days to report results.

Zebra007 Contributor

I use Daily Essential Enzymes and have found them to really make a difference to me..I choose these because they seemed like good value, and I have been taking them a week with no problems.

 

Open Original Shared Link

heliosue Apprentice

Thanks for the replies.  I, at least, have a few to choose from now.  I went to the CDF Expo in Pasadena yesterday and picked up a catalogue from a company called Kirkman, which looks interesting.  I have some questions about the value of taking enzymes to help digest gluten, when I'm not eating gluten. Still thinking about this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Whoa! I googled this manufacturer and the first page of hits are blogs and the company's promotional brochure (PDF). The enzyme products as well as the rest of the products claim to be gluten free (saw no Certified gluten-free labeling.). That is fine, but to state that it will help with accidental glutenings is false! I suppose the applicable enzymes (like peptidases) may help digest grains like wheat but that is not helpful to someone with celiac disease! Their statements of like "living gluten free may cause nutritional deficiencies" is outrageous! Having celiac disease can cause deficiencies -- not a gluten free diet (unless you eat the a typical junk food diet and that can happen on one that contains gluten!). Their list of references are so lame too. References like that on my kid's science project would earn her a failing grade! It is that cheesy!

I have found nothing in research yet that has been tested and proven to help accidental glutenings yet! Drug companies are working on it, but they are not available. I would be very leary of a company which makes such claims and am horrified that they are promoting them at the conference! I guess they will sell space to anyone at the EXPO.

Supplements can be very helpful when the gut is damaged. I encourage everyone to get tested for defciencies when they are first diagnosed but do not expect that you will need to take them for the rest of your life!

Sorry, but this is a classic example of a modern day snake oil or Lucy's Vitameatavegamin scam (view the old "I Love Lucy" skit on this topic on YOUTUBE for a laugh).

heliosue Apprentice

Whoa! I googled this manufacturer and the first page of hits are blogs and the company's promotional brochure (PDF). The enzyme products as well as the rest of the products claim to be gluten free (saw no Certified gluten-free labeling.). That is fine, but to state that it will help with accidental glutenings is false! I suppose the applicable enzymes (like peptidases) may help digest grains like wheat but that is not helpful to someone with celiac disease! Their statements of like "living gluten free may cause nutritional deficiencies" is outrageous! Having celiac disease can cause deficiencies -- not a gluten free diet (unless you eat the a typical junk food diet and that can happen on one that contains gluten!). Their list of references are so lame too. References like that on my kid's science project would earn her a failing grade! It is that cheesy!

I have found nothing in research yet that has been tested and proven to help accidental glutenings yet! Drug companies are working on it, but they are not available. I would be very leary of a company which makes such claims and am horrified that they are promoting them at the conference! I guess they will sell space to anyone at the EXPO.

Supplements can be very helpful when the gut is damaged. I encourage everyone to get tested for defciencies when they are first diagnosed but do not expect that you will need to take them for the rest of your life!

Sorry, but this is a classic example of a modern day snake oil or Lucy's Vitameatavegamin scam (view the old "I Love Lucy" skit on this topic on YOUTUBE for a laugh).

Thanks.  I haven't had a chance to Google them yet.  I think they also sell on Amazon. To be honest, I don't think the rep was pushing the digestive enzymes at the Expo.  He had lots of products on his table and I mentioned that I was looking into getting some digestive enzymes and he suggested that I check out the catalog.  That was where I found the enzyme that seemed to aimed at the Celiac audience.

heliosue Apprentice

Thanks.  I haven't had a chance to Google them yet.  I think they also sell on Amazon. To be honest, I don't think the rep was pushing the digestive enzymes at the Expo.  He had lots of products on his table and I mentioned that I was looking into getting some digestive enzymes and he suggested that I check out the catalog.  That was where I found the enzyme that seemed to aimed at the Celiac audience.

BTW - love the vitameatavegimin  show!

mamaw Community Regular

I think many celiac  folks  take  digestive  enzymes. Plus probiotics....  D-enzymes  help  break down  the  proteins carbs & such  to help  the  body... I use  DIgest Gold  ...

cyclinglady Grand Master

I think many celiac  folks  take  digestive  enzymes. Plus probiotics....  D-enzymes  help  break down  the  proteins carbs & such  to help  the  body... I use  DIgest Gold  ...

Mamaw,

I am not knocking digestive enzymes or probiotics as I have used them for over 20 years and my doctor was the first to recommend them. The company that Heliosue mentioned seems to imply that their product works to prevent the effects of accidentally getting glutened. . No one should make that claim! Avoiding gluten is currently the only "cure" for those with celiac disease.

mamaw Community Regular

cyclinglady,  I  was  answering  the posters  comment in her  second  post "I guess digestive  enzymes are not as  much in use  as  I  imagined"  My  comment  back  was  many celiac  folks  use  digestive  enzymes  & probiotics....

And  by the  way  your  post  back  to me -- I totally agree  so I guess  you have  me  confused...I wasn't  knocking  anything  or anyone....how  did  you  get  to think that?

 

I do see  many  pills  labeled  for  help  with gluten  ingestion,  they do make  claims  but  I never  used  any of them because  in twelve  years  I was  glutened  once..... Ie: gluten ease, glutenza & so many more. I can't  give a  yay or  nay  on  these  pills as  I never tried  them........ every company  wants to  jump into the gluten-free  arena to make  big  bucks....common  sense  is needed....

I'm a  great  advocator   of  the benefits  of  probiotics  &  digestive  enzymes....not  to "cure celiac"  but to help  the gut  in the healing process..

heliosue Apprentice

Oh. dear!  I think this thread got glutened!  I believe Cyclinglady was totally responding to my post about the Kirkman brand at the Expo.  Sometimes the response get mixed up due to times and which actual post someone is replying to.  Anyway, thank all of you for trying to help me figure out my digestive enzyme problem.

cyclinglady Grand Master

Ha! Let's face it. It is so easy for things to be mis-communicated without being face to face! Sorry!

heliosue Apprentice

Absolutely nothing to be sorry for from my corner of the ring.  In  the few weeks that I have been hanging out here, I have learned to value your input.  Thanks.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.