Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recently Diagnosed


webbooo

Recommended Posts

webbooo Rookie

Hi All,

 

I was recently diagnosed with celiac disease after having blood test's done last week.  I've struggled with my diet on and off for about 12 months and have noticed how different foods affect my moods and make me feel lethargic etc, I've also had to deal with varying degrees of stress and anxiety.  I'm now trying to get used to the life style and understand it more I still don't know fully what it means.  Other members of my family have celiac including my sister so fortunately I'm able to get information from her.  My doctor suggested I didn't need a biopsy as my family has a strong history of it.  I started going gluten free 2 days ago and today I feel horrible plus I have a sore throat/cold anyway.   I have noticed my anxiety worse today and not sure if its just the anxiety or the removing of glutin from my diet.  I'm also having to deal with the fact I'm a sugar addict and now having to remove sugar from my diet (processed foods).  At the moment I'm trying to remove gluten and see how I feel, I also live in a shared (partner and 2 children) house also it means cooking for myself etc.

 

My blood results were, my doctor also had little advise to give other than stop eating gluten and have a look on the web.

 

Deamidated Gliadin IgG = 38 U/mL

Tissue Transglutaminase IgA = 207 U/ML

 

To help stabilise my moods should I be focusing on more fat and protein and how long before my body can start to feel some benefits?

 

Thanks in advance

Adam (Confused)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome, Adam!  

 

It's going to be nice to feel good again, isn't it?  

 

Patience.  Lots of patience is required.  Chances are you are going through withdrawal from gluten.  It usually takes a week or two for that to subside per many of our forum members.  Anxiety is common and eventually that will go away on the gluten free diet.  

 

As far as diet advice, I would focus on whole foods simply because your gut is a damaged and you want foods that are easy to digest.  Because villi is damaged, usually most folks with celiac disease have lactose intolerance.  They may have other intolerances to soy or corn.  Maybe nuts are hard to digest.  So, eliminate dairy for a few months and then add it back it starting with yogurt and cheese (contains less lactose/milk sugar).  Eliminate other foods if you find they are hard to digest.  But you do need some comfort foods so do not beat yourself up about sugar -- yet (I personally think most of us consume too much sugar).

 

Read our Newbie 101 section under the "Coping" section.  It contains valuable tips and will save my fingers from typing too much!   :lol:

 

You will have to work out an agreement about sharing a kitchen (no shared toaster, plastic, coated frying pans, wooden spoons, sponges, etc.)  How small are the kids?  They can gluten you with kisses (as can your partner) and leave a trail of crumbs.

 

Our house is gluten free.  I just give gluten things to my kid  pre-packaged for her school lunch.  If she wants more gluten, we stop and eat out for a quick fix.  Your partner might consider that.  Otherwise, a shared kitchen is possible, but you have to be very careful.  

 

More questions?  Ask!  

 

Here's to feeling better soon!  Oh, it has taken me a complete two years to feel 99% better (darn menopause and thyroid).  Within six months, I experienced intestinal healing based on my resolved anemia.  I was absorbing iron!  

Jays911 Contributor

The easiest way is to go gluten-free with your whole household, and as CL observed, give others gluten with packaged goods or while eating out.  You will feel better once the diet kicks in.  Keep the faith.

Celiacandme Apprentice

Be gentle with yourself. Your body is trying to adjust to this and it takes time. Be sure to check and vitamins and medications you take - make sure they are gluten free and that your pharmacy knows you need to have your medicine from a gluten free manufacturer. Getting rid of any chance of cross contamination is important. If gluten is being consumed in the house you can't share the same butter, jam, peanut butter jars, etc. As mentioned above you'll need your own new toaster, colander, wooden and plastic utensils. I'm sorry your sister also has celiac but it is also good to have someone close to you that understands. Everyone around here is helpful - ask any questions you may have. Try to get rest and do something that is relaxing for you each day. Oh, and if you haven't already, have your children tested! You never know!

webbooo Rookie

thanks everyone for your responses really appreciate it  :D I just started reading a book called 'Brain Grain' which paints an interesting picture on the average diet today.  He suggests going back to the high fat and low carb diet and eating natural whole foods and so far an interesting read.  I think for me personally I ignored for to long what I've been putting in my body.  This looks like a great site with lots of info and I'm looking forward to sharing more stories.

 

thanks again

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748

    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.