Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety?

CurrantCottage

Recommended Posts

CurrantCottage Rookie
CurrantCottage
Posted

Hi 

 

Really sorry to ask yet another question!!!  I am a week into adding gluten back into my diet before being referred to a GI consultant.  I feel so horrible but did expect the dashing to the loo, bloating, nausea etc but what I didnt expect to feel is anxious.  I woke up yesterday just really shaking - like I'd had a really strong coffee after having given it up for years, kind of heart pounding too - it wore off eventually as the day went on but I feel like that today this morning too.  Im not actually worried about anything or feeling anxious and wonder if this could be a side effect of adding gluten back in??  I've suffered with anxiety off/on all my life but this feels strange - more like a caffeine hit like I said, and I'm drinking my normal amounts of tea so it cant be that!

 

Ali

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Hobbes Rookie
Hobbes
Posted

Most definitely. I had very high anxiety for many years before cutting out gluten. Once the gluten was gone, the anxiety went too.

CurrantCottage Rookie
CurrantCottage
Posted
  • Author

Most definitely. I had very high anxiety for many years before cutting out gluten. Once the gluten was gone, the anxiety went too.

 

Thank you !!!  I was wondering too whether this has been the cause behind my anxiety for years - I always used to say I "felt" anxious before I knew what I was anxious about - the sensations and feelings I'd feel and then I'd wonder what i was worrying about to pinpoint it.  I was only gluten free for three weeks but it was amazing the difference I felt.  At this moment in time although I desperately want to have biopsy's taken and get a diagnosis (tired of rriends and family thinking I'm a hypochondriac!), I'm not actually sure I can keep eating gluten - I feel so dreadful and its hard working!  I'm a self employed house cleaner/dog walking - not conducive to needing to dash to the loo etc, bor bending over to tidy/clean etc!

 

 

Ali

Hobbes Rookie
Hobbes
Posted

Thank you !!!  I was wondering too whether this has been the cause behind my anxiety for years - I always used to say I "felt" anxious before I knew what I was anxious about - the sensations and feelings I'd feel and then I'd wonder what i was worrying about to pinpoint it.  I was only gluten free for three weeks but it was amazing the difference I felt.  At this moment in time although I desperately want to have biopsy's taken and get a diagnosis (tired of rriends and family thinking I'm a hypochondriac!), I'm not actually sure I can keep eating gluten - I feel so dreadful and its hard working!  I'm a self employed house cleaner/dog walking - not conducive to needing to dash to the loo etc, bor bending over to tidy/clean etc!

 

 

Ali

 

Yeah, I understand. My experience was very similar to yours, where I would get anxious in situations where there was nothing to be objectively anxious about.

 

I would highly highly HIGHLY recommend staying on gluten until you take the test. I know that it's difficult, but you will get through it, and once you get confirmed Celiac it will make your life a lot easier.

CurrantCottage Rookie
CurrantCottage
Posted
  • Author

Yeah, I understand. My experience was very similar to yours, where I would get anxious in situations where there was nothing to be objectively anxious about.

 

I would highly highly HIGHLY recommend staying on gluten until you take the test. I know that it's difficult, but you will get through it, and once you get confirmed Celiac it will make your life a lot easier.

 

 

I cant thank you enough, its just so encouraging to have someone understand and also to say "stick with it" - if, i did go gluten free again without a diagnosis I know I would regret it !!

 

Ali

Hobbes Rookie
Hobbes
Posted

I cant thank you enough, its just so encouraging to have someone understand and also to say "stick with it" - if, i did go gluten free again without a diagnosis I know I would regret it !!

 

Ali

 

No problem! Good luck :)

Jays911 Contributor
Jays911
Posted

I also dealt with anxiety and depression while on gluten.  Now that I am gluten-free, that is all gone.  What a blessing.  Hang in there, get tested, and then go gluten-free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


etbtbfs Rookie
etbtbfs
Posted

Anxiety could be a symptom of gluten messing with your thyroid and/or adrenal function. You been tested for Hashimotos?

RMJ Mentor
RMJ
Posted

Thank you for asking this question. Occasionally I feel anxious but not about anything specific. Next time that happens I'll evaluate what I've eaten for possible gluten contamination!

CurrantCottage Rookie
CurrantCottage
Posted
  • Author

I also dealt with anxiety and depression while on gluten.  Now that I am gluten-free, that is all gone.  What a blessing.  Hang in there, get tested, and then go gluten-free.

 

Its so reassuring to know that I'm not the only one !!!!

 

Ali 

CurrantCottage Rookie
CurrantCottage
Posted
  • Author

Anxiety could be a symptom of gluten messing with your thyroid and/or adrenal function. You been tested for Hashimotos?

 

No, I've not been tested for Hashimotos (will have to google it as I dont know what it is!!!) - the doctor has only done the regular blood tests for iron count (my red blood count is usually ok, but my Ferritin is always low - around 3 - 6), she did test for Coeliac a couple of years ago but I never got to see the results she just said that it was negative.  She also grudgingly tested my thyroid but said that was ok too, but then she waited till my Ferritin had dropped to 3 before she did something about it.  I'm so relieved that my husband has private health insurance as perk of his job and I'm going to the doctor next week to ask her to refer me for further testing as she has told me she wont test me anymore as its costing the NHS £50 everytime she gets my bloods checked.  I felt so embarrased and ashamed when she said that !!  Right off to google Hashimotos!

 

Ali

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    2. cristiana
      - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result. I am interested to know, is your gastroenterologist concerned? Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous...
    3. trents
      - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease...
    4. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especia...
    5. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can t...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,193
    • Most Online (within 30 mins)
      7,748
    Loiswxm333
    Newest Member
    Loiswxm333
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.