Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Labs Coming In,rbc Etc Off...have Questions

tammyinwv

Recommended Posts

tammyinwv Rookie
tammyinwv
Posted

Just did labs.yesterday morning. The doc is also supposed to check celiac as well but they arent in yet. I have some curious labs that have me concerned. I am reading there may be some coorelation with celiac, but I am not sure I understand. I figure the doc will call when everything is back. I have been vegan and trying to eliminate glutin since February, but I have found a few  mistakes after the fact

LAB-------------------------------------------NORMS---------------------------------------My results

RBC.................................................3.63 -  4.92 ........................................... 5.05       high

HGB ................................................11.2 -15.2 ..............................................15.5       high

hct.....................................................33.5 -  45.2............................................45.3       high

mono abs .....................................       .300  -  1,000 ..................................    0.202    low

vit B 12 ..............................................  200 - 1000  .....................................    804    normal but have read this test may not be accurate if                     shows normal

tsh ......................................................  0.350 - 5,000  ...............................       2.031   normal

thyroxine free T4 ...............................    0.70 - 1.25  ..................................         1.01   normal

 

Any ideas on these? I have read that the low monocytes could go along with low folic aid and b12 absorption, and possibly celiac, or polycythemia vera with the elevated labs. 

tammy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frieze Community Regular
frieze
Posted

are you a menstruating female? post menopausal?   any family hx of hemochromatosis ?

tammyinwv Rookie
tammyinwv
Posted
  • Author

are you a menstruating female? post menopausal?   any family hx of hemochromatosis ?

i am 54 yo female, no history , partial hysterectomy about 20 yrs ago. So no periods. They had just about stopped at the time. I have had hot flashes for yrs possibly indicating menopause. I have never been anemic. I have fibromyalgia, insulin resistance/metabolic syndrome. Lot of fatigue, with muscle pain due to fibro, but increasing joint pains. Hair loss, bloating when eating certain foods, constipation, used to have huge problem of heartburn and refulx, occuring several times a day and couple times during the night. reflux so bad I inhaled it a few times and could not breath. None since ging vegan and trying to cut out gluten.

kareng Grand Master
kareng
Posted

Let's see what your iron and ferritin are. Sometimes, if we are anemic, we actually make extra red blood cells to try to compensate.

ravenwoodglass Mentor
ravenwoodglass
Posted

Please be aware that if you are gluten free or gluten light that can give you a false negative on celiac testing. 

tammyinwv Rookie
tammyinwv
Posted
  • Author

Please be aware that if you are gluten free or gluten light that can give you a false negative on celiac testing. 

At most only gluten free (which I know in past week I hadnt) since late feb

ravenwoodglass Mentor
ravenwoodglass
Posted

At most only gluten free (which I know in past week I hadnt) since late feb

That is long enough to impact your tests. If your celiac tests come back negative do a gluten challenge for 6 to 8 weeks and then retest. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Raven is right about the celiac testing!

tammyinwv Rookie
tammyinwv
Posted
  • Author

Raven is right about the celiac testing!

I thought I read on a link someone posted here that gluten-free up to  6 mo  would be OK. I may be wrong. My memory isnt very good. I truly doubt I have been gluten-free for more than a few days at a time. Because as I was learning more and reading more labels and checking restaurant foods more (after the fact) I am finding I made quite a few mistakes. Sometimes I knew by the time I finished.other times not.  I guess I will have to wait till the celiac test come in. I have read today that some people develop  elevated RBC etc after removing gluten. Just too confusing.

nvsmom Community Regular
nvsmom
Posted

Most celiacs appear to have normal test results after 6 months gluten-free.  Some take a year or so, but they are the minority.

jennp1313 Newbie
jennp1313
Posted

That is long enough to impact your tests. If your celiac tests come back negative do a gluten challenge for 6 to 8 weeks and then retest. 

Hi there. How much gluten must a person consume per day for the gluten challenge? I am hoping to get my test done in about a month, but have been gluten-light for several months. I'll be paying out-of-pocket, so I want to make sure I properly prepare my body for the test. Thank you so much for any info you can offer :-) 

 

BTW, I also have been "diagnosed" with Fibromyalgia, IBS, Anxiety, etc. for many years. Seems many potential Celiacs aren't offered the proper tests. I wish I'd known to ask for a test sooner!

cyclinglady Grand Master
cyclinglady
Posted

Hi there. How much gluten must a person consume per day for the gluten challenge? I am hoping to get my test done in about a month, but have been gluten-light for several months. I'll be paying out-of-pocket, so I want to make sure I properly prepare my body for the test. Thank you so much for any info you can offer :-) 

 

BTW, I also have been "diagnosed" with Fibromyalgia, IBS, Anxiety, etc. for many years. Seems many potential Celiacs aren't offered the proper tests. I wish I'd known to ask for a test sooner!

Welcome!

Here is a link to the University of Chicago's celiac website. I recommend reading all their posted information to bring you up to speed and to insure your doctor knows what he/she is doing!

Open Original Shared Link

jennp1313 Newbie
jennp1313
Posted

Welcome!

Here is a link to the University of Chicago's celiac website. I recommend reading all their posted information to bring you up to speed and to insure your doctor knows what he/she is doing!

Open Original Shared Link

Thank you, @cyclinglady! That was very helpful.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    2. HAUS
      - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free...
    3. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

      Years ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came...
    4. Rejoicephd
      - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

      Wow what a helpful article!! I am just seeing this now but I hosted a small group of family for Thanksgiving at my house this year and I did some of these things- got a butterball gluten-free turkey, got gluten-free stuffing, had a few gluten-free sides, and a gluten-free nothing-Bundt-cake. I had other non gluten-free things there too for others, and I also...
    5. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,432
    • Most Online (within 30 mins)
      7,748
    Betty Alex
    Newest Member
    Betty Alex
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.