Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Labs Coming In,rbc Etc Off...have Questions


tammyinwv

Recommended Posts

tammyinwv Rookie

Just did labs.yesterday morning. The doc is also supposed to check celiac as well but they arent in yet. I have some curious labs that have me concerned. I am reading there may be some coorelation with celiac, but I am not sure I understand. I figure the doc will call when everything is back. I have been vegan and trying to eliminate glutin since February, but I have found a few  mistakes after the fact

LAB-------------------------------------------NORMS---------------------------------------My results

RBC.................................................3.63 -  4.92 ........................................... 5.05       high

HGB ................................................11.2 -15.2 ..............................................15.5       high

hct.....................................................33.5 -  45.2............................................45.3       high

mono abs .....................................       .300  -  1,000 ..................................    0.202    low

vit B 12 ..............................................  200 - 1000  .....................................    804    normal but have read this test may not be accurate if                     shows normal

tsh ......................................................  0.350 - 5,000  ...............................       2.031   normal

thyroxine free T4 ...............................    0.70 - 1.25  ..................................         1.01   normal

 

Any ideas on these? I have read that the low monocytes could go along with low folic aid and b12 absorption, and possibly celiac, or polycythemia vera with the elevated labs. 

tammy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

are you a menstruating female? post menopausal?   any family hx of hemochromatosis ?

tammyinwv Rookie

are you a menstruating female? post menopausal?   any family hx of hemochromatosis ?

i am 54 yo female, no history , partial hysterectomy about 20 yrs ago. So no periods. They had just about stopped at the time. I have had hot flashes for yrs possibly indicating menopause. I have never been anemic. I have fibromyalgia, insulin resistance/metabolic syndrome. Lot of fatigue, with muscle pain due to fibro, but increasing joint pains. Hair loss, bloating when eating certain foods, constipation, used to have huge problem of heartburn and refulx, occuring several times a day and couple times during the night. reflux so bad I inhaled it a few times and could not breath. None since ging vegan and trying to cut out gluten.

kareng Grand Master

Let's see what your iron and ferritin are. Sometimes, if we are anemic, we actually make extra red blood cells to try to compensate.

ravenwoodglass Mentor

Please be aware that if you are gluten free or gluten light that can give you a false negative on celiac testing. 

tammyinwv Rookie

Please be aware that if you are gluten free or gluten light that can give you a false negative on celiac testing. 

At most only gluten free (which I know in past week I hadnt) since late feb

ravenwoodglass Mentor

At most only gluten free (which I know in past week I hadnt) since late feb

That is long enough to impact your tests. If your celiac tests come back negative do a gluten challenge for 6 to 8 weeks and then retest. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Raven is right about the celiac testing!

tammyinwv Rookie

Raven is right about the celiac testing!

I thought I read on a link someone posted here that gluten-free up to  6 mo  would be OK. I may be wrong. My memory isnt very good. I truly doubt I have been gluten-free for more than a few days at a time. Because as I was learning more and reading more labels and checking restaurant foods more (after the fact) I am finding I made quite a few mistakes. Sometimes I knew by the time I finished.other times not.  I guess I will have to wait till the celiac test come in. I have read today that some people develop  elevated RBC etc after removing gluten. Just too confusing.

nvsmom Community Regular

Most celiacs appear to have normal test results after 6 months gluten-free.  Some take a year or so, but they are the minority.

jennp1313 Newbie

That is long enough to impact your tests. If your celiac tests come back negative do a gluten challenge for 6 to 8 weeks and then retest. 

Hi there. How much gluten must a person consume per day for the gluten challenge? I am hoping to get my test done in about a month, but have been gluten-light for several months. I'll be paying out-of-pocket, so I want to make sure I properly prepare my body for the test. Thank you so much for any info you can offer :-) 

 

BTW, I also have been "diagnosed" with Fibromyalgia, IBS, Anxiety, etc. for many years. Seems many potential Celiacs aren't offered the proper tests. I wish I'd known to ask for a test sooner!

cyclinglady Grand Master

Hi there. How much gluten must a person consume per day for the gluten challenge? I am hoping to get my test done in about a month, but have been gluten-light for several months. I'll be paying out-of-pocket, so I want to make sure I properly prepare my body for the test. Thank you so much for any info you can offer :-) 

 

BTW, I also have been "diagnosed" with Fibromyalgia, IBS, Anxiety, etc. for many years. Seems many potential Celiacs aren't offered the proper tests. I wish I'd known to ask for a test sooner!

Welcome!

Here is a link to the University of Chicago's celiac website. I recommend reading all their posted information to bring you up to speed and to insure your doctor knows what he/she is doing!

Open Original Shared Link

jennp1313 Newbie

Welcome!

Here is a link to the University of Chicago's celiac website. I recommend reading all their posted information to bring you up to speed and to insure your doctor knows what he/she is doing!

Open Original Shared Link

Thank you, @cyclinglady! That was very helpful.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    2. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    3. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,365
    • Most Online (within 30 mins)
      7,748

    candiceelse08
    Newest Member
    candiceelse08
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.