Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Labs Coming In,rbc Etc Off...have Questions

tammyinwv

Recommended Posts

tammyinwv Rookie
tammyinwv
Posted

Just did labs.yesterday morning. The doc is also supposed to check celiac as well but they arent in yet. I have some curious labs that have me concerned. I am reading there may be some coorelation with celiac, but I am not sure I understand. I figure the doc will call when everything is back. I have been vegan and trying to eliminate glutin since February, but I have found a few  mistakes after the fact

LAB-------------------------------------------NORMS---------------------------------------My results

RBC.................................................3.63 -  4.92 ........................................... 5.05       high

HGB ................................................11.2 -15.2 ..............................................15.5       high

hct.....................................................33.5 -  45.2............................................45.3       high

mono abs .....................................       .300  -  1,000 ..................................    0.202    low

vit B 12 ..............................................  200 - 1000  .....................................    804    normal but have read this test may not be accurate if                     shows normal

tsh ......................................................  0.350 - 5,000  ...............................       2.031   normal

thyroxine free T4 ...............................    0.70 - 1.25  ..................................         1.01   normal

 

Any ideas on these? I have read that the low monocytes could go along with low folic aid and b12 absorption, and possibly celiac, or polycythemia vera with the elevated labs. 

tammy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frieze Community Regular
frieze
Posted

are you a menstruating female? post menopausal?   any family hx of hemochromatosis ?

tammyinwv Rookie
tammyinwv
Posted
  • Author

are you a menstruating female? post menopausal?   any family hx of hemochromatosis ?

i am 54 yo female, no history , partial hysterectomy about 20 yrs ago. So no periods. They had just about stopped at the time. I have had hot flashes for yrs possibly indicating menopause. I have never been anemic. I have fibromyalgia, insulin resistance/metabolic syndrome. Lot of fatigue, with muscle pain due to fibro, but increasing joint pains. Hair loss, bloating when eating certain foods, constipation, used to have huge problem of heartburn and refulx, occuring several times a day and couple times during the night. reflux so bad I inhaled it a few times and could not breath. None since ging vegan and trying to cut out gluten.

kareng Grand Master
kareng
Posted

Let's see what your iron and ferritin are. Sometimes, if we are anemic, we actually make extra red blood cells to try to compensate.

ravenwoodglass Mentor
ravenwoodglass
Posted

Please be aware that if you are gluten free or gluten light that can give you a false negative on celiac testing. 

tammyinwv Rookie
tammyinwv
Posted
  • Author

Please be aware that if you are gluten free or gluten light that can give you a false negative on celiac testing. 

At most only gluten free (which I know in past week I hadnt) since late feb

ravenwoodglass Mentor
ravenwoodglass
Posted

At most only gluten free (which I know in past week I hadnt) since late feb

That is long enough to impact your tests. If your celiac tests come back negative do a gluten challenge for 6 to 8 weeks and then retest. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Raven is right about the celiac testing!

tammyinwv Rookie
tammyinwv
Posted
  • Author

Raven is right about the celiac testing!

I thought I read on a link someone posted here that gluten-free up to  6 mo  would be OK. I may be wrong. My memory isnt very good. I truly doubt I have been gluten-free for more than a few days at a time. Because as I was learning more and reading more labels and checking restaurant foods more (after the fact) I am finding I made quite a few mistakes. Sometimes I knew by the time I finished.other times not.  I guess I will have to wait till the celiac test come in. I have read today that some people develop  elevated RBC etc after removing gluten. Just too confusing.

nvsmom Community Regular
nvsmom
Posted

Most celiacs appear to have normal test results after 6 months gluten-free.  Some take a year or so, but they are the minority.

jennp1313 Newbie
jennp1313
Posted

That is long enough to impact your tests. If your celiac tests come back negative do a gluten challenge for 6 to 8 weeks and then retest. 

Hi there. How much gluten must a person consume per day for the gluten challenge? I am hoping to get my test done in about a month, but have been gluten-light for several months. I'll be paying out-of-pocket, so I want to make sure I properly prepare my body for the test. Thank you so much for any info you can offer :-) 

 

BTW, I also have been "diagnosed" with Fibromyalgia, IBS, Anxiety, etc. for many years. Seems many potential Celiacs aren't offered the proper tests. I wish I'd known to ask for a test sooner!

cyclinglady Grand Master
cyclinglady
Posted

Hi there. How much gluten must a person consume per day for the gluten challenge? I am hoping to get my test done in about a month, but have been gluten-light for several months. I'll be paying out-of-pocket, so I want to make sure I properly prepare my body for the test. Thank you so much for any info you can offer :-) 

 

BTW, I also have been "diagnosed" with Fibromyalgia, IBS, Anxiety, etc. for many years. Seems many potential Celiacs aren't offered the proper tests. I wish I'd known to ask for a test sooner!

Welcome!

Here is a link to the University of Chicago's celiac website. I recommend reading all their posted information to bring you up to speed and to insure your doctor knows what he/she is doing!

Open Original Shared Link

jennp1313 Newbie
jennp1313
Posted

Welcome!

Here is a link to the University of Chicago's celiac website. I recommend reading all their posted information to bring you up to speed and to insure your doctor knows what he/she is doing!

Open Original Shared Link

Thank you, @cyclinglady! That was very helpful.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.