Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed Celiac -- Grains? Or No?


celiwhat

Recommended Posts

celiwhat Rookie

I am a newly diagnosed celiac, as in two weeks. I know what gluten is and where it hides. However I am so confused when it comes to whether eating other grains is okay? (Such as the rice flour substitutes for flour ie. Udi's) I have read so much conflicting information. Some believe you should stay away from all grains altogether for 3-6 months, and some don't see it as a problem. I find it really hard to eliminate ALL grains, so I tend to go back and forth. But I do want to heal and do it right, so I am looking for others opinions and insights.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

The Celiac experts do not say you must eliminate all grains. For example:

"A gluten-free diet means avoiding all foods that contain wheat (including spelt, triticale, and kamut), rye, and barley, and their derivatives. Despite these restrictions, you can still eat a well-balanced diet with a variety of foods, including gluten-free bread and pasta. For example, instead of wheat flour, use potato, rice, soy, corn, or bean flour. Fresh meat, fish, rice, fruits, and vegetables do not contain gluten, so you can eat as much of these foods as you want."

Open Original Shared Link

Good food list here::

Open Original Shared Link

cyclinglady Grand Master

Karen is right, but I would be cautious in introducing grains or additives that you have not eaten before. For example, I found that Xanthan Gum that is found in many gluten-free breads and flour blends (it is a binder) bothered me. Not my husband who has been gluten-free for 14 years, but me, when I was first diagnosed. I switched to guar gum and did well. I also found that I could not tolerate oats or quinoa. No gluten issues it was just hard to digest for me. Now, I can eat those things without issue, but I am two years into my gluten-free diet. So, keep a journal.

Finally, eating whole foods is best. Switching to gluten-free cookies and cakes is not good for healing. Save those treats for special occasions!

cap6 Enthusiast

Although some grains (rice, quinoa etc) are allowed on the celiac diet I, personally, would avoid them and all processed foods, as much as possible, for a few months.  Load up on good cooked veggies, meats (baked chicken, fish....) and fruits.  Even skip the nuts.  Newly diagnosed, your gut is still raw and needs time to heal.  Grains can be hard to digest and can slow down the healing process.  Processed foods (and gluten free breads etc are no exception) are loaded with ingredients that, while safe for celiacs, are not good for us.   Skip corn when you can as it can be really hard to digest.  A handful of popcorn sent me into glutened like symptoms for a week.  Very hard to digest.  Dairy products can cause gluten-type symptons as a lot of celiacs are also lactose intolerant, which in time may pass.   I know it seems over the top but it will help you heal faster.  Then, slowly, slowly reintroduce other foods if you want.   

Also.... not all gluten free processed foods are ok for your particular self. They might be fine for someone else, but not you.  Case in point.....  We have a piece of Udi's g.f. bread now and then with no gut issues.  We found a new brand in the store and tried it.  omg!  We were both in tummy pain.  I reread the ingredients and this certain brand had bamboo fiber in it.  I checked it out and although bamboo fiber is certainly gluten free it is processed and used as a thickener, not something that digests.  The goats ate that loaf of bread! 

celiwhat Rookie

Thank you. I started out not eating any grains, but I just became so bored and ran out of things to eat. I really hate eating the same thing everyday, and have a hard time getting full off it for some reason (prolly cause I'm addicted to bread). I do want to heal. I just need to find a way to dedicate myself to it. And I just bought a loaf of gluten-free bread :/

cyclinglady Grand Master

Just freeze it! It will last for many months.

nonnarae Rookie

I make my own gluten-free bread and it doesn't seem to bother me at all. I think the most important thing is to STAY gluten-free. If that means you need to eat a bit of gluten-free bread here and there, I think that is far better than falling off the wagon so to speak. Maybe just keep the harsher things to a minimum and see how they effect you. That is just my,  also new, humble opinion.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cap6 Enthusiast

Do you have a sweet tooth at all?  If so try this yummy chocolate treat:

 

1 ripe avocado

1/4 cup of cocoa powder

1/4 cup (organic) maple syrup

1/4 cup almond milk (I use coconut milk)

1 teaspoon vanilla extract

 

put it all in a blender and puree till smooth.  pour into small bowl, chill and eat.  Sooooo good!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,352
    • Most Online (within 30 mins)
      7,748

    Teagan
    Newest Member
    Teagan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.