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      Frequently Asked Questions About Celiac Disease   04/24/2018

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foam

Ketogenic Diet Anyone Tried It ?

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Just asking because I started this diet 4 weeks ago (fully scientific research version with near zero carbs and getting 80% of my calories from fats) and it fixed all my digestion issues within 2 weeks, I now have perfect stools everytime, once a day instead of 6 times :P. It's almost completely cured (or very heavily supressed) my immune system disease also. I've been struggling at this game for a long long time and this is like the heavy freakin guns. It's just smashing everything back into new condition. Even my hip I injured a few years ago stopped hurting within the first 2 weeks and the mobility in the hip has gone from 30% of my good one to 80% of my good one.I'm just so impressed, I gave up grains years ago, grain oils, this that and everything but I've never given up carbs and it seems like that was the major problem all along.. Well worth trying out!. I don't know how long I can sustain the diet because I'm losing body fat slowly but surely, I'm guessing I'll be completely leaned out and run out of body fat in about 6 months. That'll be summer time here I I'm thinking that'll be about the right time to eat a few carbs and see what happens.

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Hello! I've been following this forum for awhile but this is my first time participating. My daughters were both diagnosed with celiac in April and my endoscopy is scheduled for tomorrow. I had to create an account bc my husband and I have been on a ketogenic diet since the end of January. It has been a wonderful experience for us! We started it for weight loss but it has improved many aspects of our life, sleep, moods, etc. I had to add a small serving of gluten back into my diet for celiac testing twelve weeks ago. I haven't seen any improvement in my symptoms while doing keto but I suspect if I have celiac that I have had it for 20 to 30 years undiagnosed. So, a few months ketogenic probably isn't enough for complete healing. Besides, it's only been since April that we started removing all those hidden sources of gluten. I had no idea it was added to things like soy sauce, supplements, spices, etc. Anyway, I guess I just wanted to encourage you in your new found diet bc I think you're on the right track!

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Just asking because I started this diet 4 weeks ago (fully scientific research version with near zero carbs and getting 80% of my calories from fats) and it fixed all my digestion issues within 2 weeks, I now have perfect stools everytime, once a day instead of 6 times :P. It's almost completely cured (or very heavily supressed) my immune system disease also. I've been struggling at this game for a long long time and this is like the heavy freakin guns. It's just smashing everything back into new condition. Even my hip I injured a few years ago stopped hurting within the first 2 weeks and the mobility in the hip has gone from 30% of my good one to 80% of my good one.I'm just so impressed, I gave up grains years ago, grain oils, this that and everything but I've never given up carbs and it seems like that was the major problem all along.. Well worth trying out!. I don't know how long I can sustain the diet because I'm losing body fat slowly but surely, I'm guessing I'll be completely leaned out and run out of body fat in about 6 months. That'll be summer time here I I'm thinking that'll be about the right time to eat a few carbs and see what happens.

 

I tend to dabble with low carbs but then break it with something starchy or sugary before I truly get into ketogenesis.  I am trying to get into ketogenesis in the next few weeks.  I am a recovered celiac but I have other issues (arthritis, fatigue and migraines) that make me suspect other AI diseases could be affecting me.  I'm hoping it would help.

 

Plus I have a wicked sweet tooth so if I have any carbs, I just crave it for the day and feel hungrier.  This morning I added some bok choy to a lot of bacon fat and my egg, along with a bunch of cream in my coffee, for breakfast.  I finished eating an hour ago and I am hungry again.  Yesterday I had a bunch of coconut cream in coffee and bacon for breakfast and I forgot to eat until 6;00 because I was still satiated. :rolleyes:   Darn tasty carbs...

 

I need to lose about 30lbs too.  Weight loss would be a nice plus.

 

Hello! I've been following this forum for awhile but this is my first time participating. My daughters were both diagnosed with celiac in April and my endoscopy is scheduled for tomorrow. I had to create an account bc my husband and I have been on a ketogenic diet since the end of January. It has been a wonderful experience for us! We started it for weight loss but it has improved many aspects of our life, sleep, moods, etc. I had to add a small serving of gluten back into my diet for celiac testing twelve weeks ago. I haven't seen any improvement in my symptoms while doing keto but I suspect if I have celiac that I have had it for 20 to 30 years undiagnosed. So, a few months ketogenic probably isn't enough for complete healing. Besides, it's only been since April that we started removing all those hidden sources of gluten. I had no idea it was added to things like soy sauce, supplements, spices, etc. Anyway, I guess I just wanted to encourage you in your new found diet bc I think you're on the right track!

 

Welcome to the board.  :)  Good luck with your endoscopy.  Have you had positive blood tests already?

 

It's great to hear about your keto success. Very motivating.  :)

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Do you have any good keto resources or links?  I'm always looking for more info and motivation.

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nvsmom, thank you! I had the IGA blood work done but my serum IGA was too low for an accurate reading so my Dr ordered a full celiac panel last Thursday.

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A great website is ruled.me. He has a lot of info and recipes. Mostly I've relied on books. I read "keto clarity" to start, "Wheat belly: total health", and "the big fat surprise". Right now I'm reading "grain brain". They are all excellent! My husband is down 50lbs and I've lost 37lbs, not to mention how much better we feel! If you can stick to keto perfectly without cheating for a week or two your cravings will disappear and so still you're appetite! Good luck!

Edited by Adasmama

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I'm just basically soaking everything I eat in oils. Mostly coconut Ghee and macadamia oil but also some animal fats. I'm eating a lot of eggs and meats but trying to get in leafy greens also and other low carb things like broccoli and cauliflower all served with oil/butter sauce of course. Nothing else has ever been able to suppress my immune system from misbehaving not even transplant drugs. 

 

I had already given up gluten about 6 years ago and grains 3 years ago so I've had plenty of time to heal but because of the secondary immune disease I haven't ever recovered my health or digestion etc. The Ketogenic diet seems to cause enough gene switching to help immune system problems, I guess it has a similar effect as you see when women often recover from immune problems while pregnant as gene expression changes a lot then too. Only problem is they get sick again after the birth, I guess if I eat carbs again my disease will come back.. but that's a test for later.

 

I've also read grain brain, he's very pro Ketogenic, there's some good lectures on youtube about it too.

 

Because my immune disease gives disfiguring tumours to the neck and face I need something I can stay on longer than the drugs to keep it suppressed, so far this diet works better than even the really strong steriods and transplant drugs. At the moment I have no noticeable tumour, well only I can notice, not the general public. That makes me happy.

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nvsmom, thank you! I had the IGA blood work done but my serum IGA was too low for an accurate reading so my Dr ordered a full celiac panel last Thursday.

 

 

Oh good.  It included the DGP IgG and tTG IgG?  Those are usually the best for detecting celiac disease in those with low IgA, although the tTG IgG can miss quite a few celiacs.  

 

A great website is ruled.me. He has a lot of info and recipes. Mostly I've relied on books. I read "keto clarity" to start, "Wheat belly: total health", and "the big fat surprise". Right now I'm reading "grain brain". They are all excellent! My husband is down 50lbs and I've lost 37lbs, not to mention how much better we feel! If you can stick to keto perfectly without cheating for a week or two your cravings will disappear and so still you're appetite! Good luck!

 

Thanks.  I put Keto Clarity and Big Fat Surprise on hold at my library.  :)

 

Aww, that first week or two... That's my problem time for sure.  LOL By early July, eh?  I can do that.  

 

I'm just basically soaking everything I eat in oils. Mostly coconut Ghee and macadamia oil but also some animal fats. I'm eating a lot of eggs and meats but trying to get in leafy greens also and other low carb things like broccoli and cauliflower all served with oil/butter sauce of course. Nothing else has ever been able to suppress my immune system from misbehaving not even transplant drugs. 

 

I had already given up gluten about 6 years ago and grains 3 years ago so I've had plenty of time to heal but because of the secondary immune disease I haven't ever recovered my health or digestion etc. The Ketogenic diet seems to cause enough gene switching to help immune system problems, I guess it has a similar effect as you see when women often recover from immune problems while pregnant as gene expression changes a lot then too. Only problem is they get sick again after the birth, I guess if I eat carbs again my disease will come back.. but that's a test for later.

 

I've also read grain brain, he's very pro Ketogenic, there's some good lectures on youtube about it too.

 

Because my immune disease gives disfiguring tumours to the neck and face I need something I can stay on longer than the drugs to keep it suppressed, so far this diet works better than even the really strong steriods and transplant drugs. At the moment I have no noticeable tumour, well only I can notice, not the general public. That makes me happy.

 

I just had renewed interest in the keto diet after reading The Wahls Protocol. Terry Wahls is an md who developed ms.  She tried the more traditional route and it didn't work for her so she researched dietary changes and came up with the Wahl's protocol.  She basically turned her ms around so she was out of the wheelchair and bike riding again. For those with autoimmune problems the diet is a mild ketogenic diet but there is no dairy or eggs.  I know dairy is a problem for many with AI problems so I let that go too, but I kept eggs.

 

Anyway, your diet sounds very similar to hers.  Grains, starches and sugars just don't seem to mix well with AI diseases.  I'm glad you found something that is working well for you!  :)

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Foam, you're diet sounds like a perfectly healthy ketogenic diet! It's great to hear the improvement in you're health bc of it. I do think the symptoms will come back if you try to add carbs back in.

Nvsmom, my celiac panel included all four markers but I haven't gotten the results yet. My endoscopy is scheduled for later today, so I will hopefully have answers soon. I'm so glad that you are going to read those books, especially the big fat surprise. It has changed the lives of my family in so many positive ways.

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Thanks guys, yes it works very well indeed. I was so confidant after two weeks on the diet I walked into my doctors office and proclaimed I was cured lol. He sat me down and was like o  K.. but your kidney results are not good (a test I took about a week before starting the diet, I actually started the diet because the nurse drawing my blood had been making comments lately that something not right was happening to my veins the last two times I'd been in). Any the doctor figured the bad results were because of the drugs and they were likely constricting my veins including the ones in my kidneys so I had to get off all the drugs as of right then.. That dampened my mood but I was like well... I'm cured while I'm on the diet anyway so I don't need them anymore. I probably should have the follow up tests but I'm still improving all the time and I'm hiding on the potential kidney biopsy.. I feel fine anyway so it doesn't matter so much. Maybe next week :).

 

I could actually see my veins had been shrinking over the last few months, but they have come back to a decent size now after a month off the drugs, but my tumour was pretty big at one stage, about the size of a can of soft drink in my neck. Right now as I type this it's about 3cm x .5cm. Not much more than a normal enlarged node, certainly the smallest it's ever been since I first noticed it 9 years ago. A month ago just before I started the diet and before I got off the drugs it was about 7cm x3cm. Small compared to it's record but still much bigger than now. This is how it was on this day (December 2, 2013) https://www.youtube.com/watch?v=ezq3V1YSLgA.  Really no adult has ever permanently beaten this disease before so it's quite a big fight to be in.

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I suppose I am on a version of the keto diet. I do consume dairy in the form of butter, cheese, cream and yogurt. I went low carb, high fat to control my blood sugar. I basically "eat to my meter" and carbs will raise my blood sugar. The carbs I do consume can be found in yogurt and veggies "grown above ground".. I do not limit my veggies at all and coat them with butter, bacon fat, or olive oil. I add coconut oil to my coffee. I do use Soymilk in my coffee, but that is because I have been consuming it for most of my life when I could not tolerate/allergic to casein. I can say that my allergies have greatly diminished since being gluten-free (2 yrs) and LCHF (1-1/2 yrs). I consume meat, fish and poultry.

I can not say for sure, but my turning point for feeling good occurred 1 year after my gluten-free diet and the introduction of LCHF. I suppose lowing my blood sugar has helped tremendously. My doctor, although not a fan of LCHF, is happy with my blood sugar and health markers (e.g. Cholesterol levels). I charted my progress (blood sugar meter results) and presented them to him. He told me to maintain the diet. I now test as a non-diabetic and I do not take any diabetic medications. We are assuming that I am a lean type 2 and any dramatic blood sugar changes will prompt my doctor to test for LADA (type 1). It is a strategy that is working.

I hope, Foam, that your keto approach continues to help you! Keep us posted.

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Nvsmom, my celiac panel included all four markers but I haven't gotten the results yet. My endoscopy is scheduled for later today, so I will hopefully have answers soon. 

 

Good luck with the endoscopy.  Let me know how the testing goes.  It's always helpful to others to see how people's test results are.

 

 

Thanks guys, yes it works very well indeed. I was so confidant after two weeks on the diet I walked into my doctors office and proclaimed I was cured lol. He sat me down and was like o  K.. but your kidney results are not good (a test I took about a week before starting the diet, I actually started the diet because the nurse drawing my blood had been making comments lately that something not right was happening to my veins the last two times I'd been in). Any the doctor figured the bad results were because of the drugs and they were likely constricting my veins including the ones in my kidneys so I had to get off all the drugs as of right then.. That dampened my mood but I was like well... I'm cured while I'm on the diet anyway so I don't need them anymore. I probably should have the follow up tests but I'm still improving all the time and I'm hiding on the potential kidney biopsy.. I feel fine anyway so it doesn't matter so much. Maybe next week :).

 

I could actually see my veins had been shrinking over the last few months, but they have come back to a decent size now after a month off the drugs, but my tumour was pretty big at one stage, about the size of a can of soft drink in my neck. Right now as I type this it's about 3cm x .5cm. Not much more than a normal enlarged node, certainly the smallest it's ever been since I first noticed it 9 years ago. A month ago just before I started the diet and before I got off the drugs it was about 7cm x3cm. Small compared to it's record but still much bigger than now. This is how it was on this day (December 2, 2013) https://www.youtube.com/watch?v=ezq3V1YSLgA.  Really no adult has ever permanently beaten this disease before so it's quite a big fight to be in.

 

:o WOW!  That is just amazing.  Good on you for figuring that out on your own.  Impressive.

Have they rechecked your kidneys since going on the keto diet?  Perhaps it has changed and there is no longer a need for a biopsy? I understand hiding, I've done that on a few tests myself.  :ph34r:

 

I suppose I am on a version of the keto diet. I do consume dairy in the form of butter, cheese, cream and yogurt. I went low carb, high fat to control my blood sugar. I basically "eat to my meter" and carbs will raise my blood sugar. The carbs I do consume can be found in yogurt and veggies "grown above ground".. I do not limit my veggies at all and coat them with butter, bacon fat, or olive oil. I add coconut oil to my coffee. I do use Soymilk in my coffee, but that is because I have been consuming it for most of my life when I could not tolerate/allergic to casein. I can say that my allergies have greatly diminished since being gluten-free (2 yrs) and LCHF (1-1/2 yrs). I consume meat, fish and poultry.

I can not say for sure, but my turning point for feeling good occurred 1 year after my gluten-free diet and the introduction of LCHF. I suppose lowing my blood sugar has helped tremendously. My doctor, although not a fan of LCHF, is happy with my blood sugar and health markers (e.g. Cholesterol levels). I charted my progress (blood sugar meter results) and presented them to him. He told me to maintain the diet. I now test as a non-diabetic and I do not take any diabetic medications. We are assuming that I am a lean type 2 and any dramatic blood sugar changes will prompt my doctor to test for LADA (type 1). It is a strategy that is working.

 

It seems funny that your doctor is against it but it is improving your health.  :huh:   Awesome job though... I need to get to that point too.  My blood sugars bad but they are definitely on the "unhappy" end of normal.

 

I think most keto diets include dairy.  The Wahls protocol excluded it because of the effect dairy can have on autoimmune issues.  Sort of like how gluten makes some AI diseases worse even when there is no celiac disease involved.

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nvsmom, I haven't had the tests yet. I've been reading up a lot on the diet and people that are on it. You had to take into account most people are doing this diet simply for weight loss not for disease control/cure. Also a lot of people are not doing it very well, many just eat bacon and butter... They lose weight and they are happy. You read the occasional doctor saying you can't do it long term or it damages your kidneys, causes accelerated aging etc.. But then you read research papers where it cures damaged kidneys in mice and the odd personal account where it's done the same to an actual human. There's definitely people out there with incurable brain cancer who have cured themselves on the Ketogenic diet and also people with MS, Parkinsons and Chrons disease etc who have cured on it. There's actual scientific research being done on the diet all the time because it does work against those things but even the scientist don't really know anything about it or why it works. Anyway yes it worries me the diet may damage the kidneys further although there's never been any actual paper or proof that it actually does and of course when you have a disease that causes kidney failure in itself.. you really prefer to get rid of the disease than worry about any minor effect the diet may have. I've found people that have been on the diet for up to 15 years and they are in excellent health. Ridiculous good health actually.

 

On the test strips I have I'm almost all the way in Ketone production all the time, probably too much but that's just where my body seems to run and I feel fine so.. I haven't yet at any stage seen any reading on the sugar strip, it just reads zero sugar all the time, every day so far in the last month. I'm still eating dairy but I only eat goats milk, goats cheese or buffalo milk, cheese and yoghurt. I haven't touched cow milk in years, that stuff can be not good at all.

 

Body weight and sugar levels just go away on this diet, nothing you can do about it. It's just one of the effects. Unless you are drinking fat all the time 24 hours a day you can't gain weight on it, soon as you sleep or don't eat for a minute your body will continue stripping fat off your body to fuel the brain and body. Another side effect is you don't get hungry much at all, because your body is constantly fuelling itself from body fat you don't go OMG I'm hungry as soon as your carb stores drop, just doesn't work like that anymore. I've managed to not drop much weight but my body fat is getting less and less all the time. I don't know if I'm gaining muscle but it seems like I must be because the weight has to be somewhere.

 

p.s I've had like most long term damaged celiacs bad digestion for years and years. I used to be on the toilet quite a few times a day, these days since being in Ketosis I have well formed perfect or near perfect stools once a day only. Quite happy about that.

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That is quite a success story!  There is no disputing that you have found something that works amazingly well for you.  I'm hoping it will work for me too.

 

I've heard some doctors worry about kidney function while in ketosis but it sounds like that is just a worry for people with kidney problems.  I discounted that worry along with doctor advice that the gluten-free diet is difficult and unhealthy.  Eating whole foods is not a bad thing.

 

I've been eating what I think is a keto diet for a few days (again).  I tend to get about 5 days in and then cave in once I'm worn down from being tired cranky and head achy.  Sugar is definitely a problem for me because every time I cut it from my diet I experience a lot of physical symptoms.  The multi day migraines and fatigue wear me down some, but if I can stand it for a week or so, I should be through it.  By next weekend I should be okay.  

 

Thanks!  This is motivating.

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Nvsmon,   I felt quite bad for a week or so but then I felt good. You can get the pee test strips to see when you get in ketosis from any pharmacy.

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I actually went and bought some this morning.  Thanks.  I'm quite curious if I am close to ketosis.  I have a glucose monitor and it is sitting at about four and a half after a LCHF meal so My blood is happy anyways.

 

Thanks!

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If you can tolerate dairy and coffee, homemade bulletproof coffee is delicious and it's what really pushed me into deep ketosis! I'm sipping I. one right now. This will keep me full until 1 or 2 in the afternoon! Here's my recipe:

1 tbsp coconut oil

1 tbsp kerrygold butter

1 tbsp heavy whipping cream

1 cup coffee

Liquid stevia to taste

Blend it all up in a blender and enjoy! I pour mine into a to go mug to keep it warm longer.

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If you can tolerate dairy and coffee, homemade bulletproof coffee is delicious and it's what really pushed me into deep ketosis! I'm sipping I. one right now. This will keep me full until 1 or 2 in the afternoon! Here's my recipe:

1 tbsp coconut oil

1 tbsp kerrygold butter

1 tbsp heavy whipping cream

1 cup coffee

Liquid stevia to taste

Blend it all up in a blender and enjoy! I pour mine into a to go mug to keep it warm longer.

 

I do something similar, I add a bunch full fat coconut cream.  Before trying to get into ketosis I added just a tablespoon of it.  Now I add quarter of a can and consider it as part of breakfast, along with bacon and/or eggs and some fried greens (with a bunch of fat.  Yum.

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Not doing this diet but am following the thread out of interest. These coffees sound so good!

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I checked my ketostix last night and it said I was in moderate ketosis already.  Huh. :huh:  That surprised me.  I thought it would take longer . I guess I am eating low enough carbs, or my calories are low enough that I am in a mild starvation/fasting mode.  I doubt that's it though since I am eating a fair bit, albeit less than normal.

 

This is a typical day for me:

Breakfast: 2c bok choy and 1/2c mushrooms or egg fried in bacon dripping, 2 slices bacon, coffeee with ~1/4c coconut cream and a couple drops stevia

late morning snack: coffee w/ 1/4c coconut cream and stevia

late lunch: smoothie with 2c spinach, 1/2 avocado, a kiwi, 1/4c coconut cream, stevia

dinner: steak and brocoli with butter and nutrional yeast

snack: 1/4 c macadamis nuts

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I think it usually takes about three days to get into ketosis. I'm going to check my level Monday since I'm finally ofg gluten after my endoscopy. The only thing that might keep you out of deep ketosis is the kiwi you mentioned. Fruit should be avoided to start and then only low sugar fruits like berries are recommended in moderation. Great job though!

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Thank you, Adasmama.  :)

 

I checked it this morning, just out of curiosity, to see if it was a fluke and it was not. I am in deep ketosis - somewhere between the darkest purple and the next darkest purple.  I was pretty surprised.

 

Blood glucose was 4.4.

 

Headache is gone.  I'm a bit tired but I think I'm fighting off a summer cold that my youngest just got over.

 

I have a question.  It may be TMI but with the stuff we talk about around here, I'll ask anyways.  LOL

I think I know but I'll still ask.  Is it normal for urine to be much more concentrated when in ketosis?  I'm not 100% sure that I'm in ketosis because it is around 30C around here, which is close to 90F, and we do not have air conditioning... most people around here don't since it only gets that hot for about 1 week of the year.  LOL  Anyway. I think am drinking lots but I wonder if I am dehydrated or it is the ketones.  For the colour and odor of my urine, in the past I would have assumed I was dehydrated.

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Your body will use LOTS of water to process the fats, so you have to drink plenty of water, keep drinking enough to keep your pee clear. Keep the cocconut oil intact up, help a lot if you find a yumny tasting brand, most dont taste good. Youll probaby have legs you  cant stop jiggling around after a very high fat meal for a week or two. Maybe a faster heart rate. Those things take 2 or three weeks to calm down one the body adapts fully.Yeah it only takes 3 days for ketosis . Just shows you its a very natual state to be in.

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Thanks.  I am noticing I am thirstier but I wasn't sure if it was just because it is so hot. My body isn't used to 30C yet - I almost think I can handle -30C better.  LOL

 

I will make more of an effort to drink more.  I will drink 1-2 glasses (cups) of water every hour that I am awake.

 

I haven't noticed the jiggling legs but I am a bit more scattered.  My focus is a bit off but my energy is coming up - sitting on the couch in the evening is less appealing but I am falling asleep quickly.  I'm not sleeping quite as deeply the last few days and my joints are waking me up when I can usually sleep through pain. That could all be coincidental too.  I think I'm getting my son's cold or some sort of allergy (I normally do not get allergies).

 

Thanks again for helping me.... I sort of high jacked your thread.  ;)  It seems like a good way to live though. I wonder why more doctors do not suggest it?  I bet those with FODMAPS and some with NCGS would benefit too.  I wonder if a healing celiac would do better with ketosis?  We already know whole foods are best for healing...

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I'm slowly shifting my daughters to a more ketogenic diet. They are 2 and 3 1/2 years old and were both diagnosed in April. They are doing great gluten-free, but my youngest has had diarrhea for the last three weeks. I'm beginning to think she was glutened bc her diarrhea has been getting better the last two days. But, over the last few weeks I've been over analyzing everything I feed her, worried she was developing other food intolerances or that I was glutening her inadvertently. I do agree that a ketogenic diet is healthy for everyone. Grains are inflammatory and getting them out should speed celiac healing. My biggest problem is trying to figure out what to feed these kids!!

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    Jefferson Adams
    Celiac.com 04/26/2018 - Emily Dickson is one of Canada’s top athletes. As a world-class competitor in the biathlon, the event that combines cross-country skiing with shooting marksmanship, Emily Dickson was familiar with a demanding routine of training and competition. After discovering she had celiac disease, Dickson is using her diagnosis and gluten-free diet a fuel to help her get her mojo back.
    Just a few years ago, Dickson dominated her peers nationally and won a gold medal at Canada Games for both pursuit and team relay. She also won silver in the sprint and bronze in the individual race. But just as she was set to reach her peak, Dickson found herself in an agonizing battle. She was suffering a mysterious loss of strength and endurance, which itself caused huge anxiety for Dickson. As a result of these physical and mental pressures, Dickson slipped from her perch as one of Canada's most promising young biathletes.
    Eventually, in September 2016, she was diagnosed with celiac disease. Before the diagnosis, Dickson said, she had “a lot of fatigue, I just felt tired in training all the time and I wasn't responding to my training and I wasn't recovering well and I had a few things going on, but nothing that pointed to celiac.”
    It took a little over a year for Dickson to eliminate gluten, and begin to heal her body. She still hasn’t fully recovered, which makes competing more of a challenge, but, she says improving steadily, and expects to be fully recovered in the next few months. Dickson’s diagnosis was prompted when her older sister Kate tested positive for celiac, which carries a hereditary component. "Once we figured out it was celiac and we looked at all the symptoms it all made sense,” said Dickson.
    Dickson’s own positive test proved to be both a revelation and a catalyst for her own goals as an athlete. Armed with there new diagnosis, a gluten-free diet, and a body that is steadily healing, Dickson is looking to reap the benefits of improved strength, recovery and endurance to ramp up her training and competition results.
    Keep your eyes open for the 20-year-old native of Burns Lake, British Columbia. Next season, she will be competing internationally, making a big jump to the senior ranks, and hopefully a regular next on the IBU Cup tour.
    Read more at princegeorgecitizen.com

    Jefferson Adams
    Celiac.com 04/25/2018 - A team of Yale University researchers discovered that bacteria in the small intestine can travel to other organs and trigger an autoimmune response. In this case, they looked at Enterococcus gallinarum, which can travel beyond the gut to the spleen, lymph nodes, and liver. The research could be helpful for treating type 1 diabetes, lupus, and celiac disease.
    In autoimmune diseases, such as type 1 diabetes, lupus, and celiac disease, the body’s immune system mistakenly attacks healthy cells and tissues. Autoimmune disease affects nearly 24 million people in the United States. 
    In their study, a team of Yale University researchers discovered that bacteria in the small intestine can travel to other organs and trigger an autoimmune response. In this case, they looked at Enterococcus gallinarum, which can travel beyond the gut to the spleen, lymph nodes, and liver. They found that E. gallinarum triggered an autoimmune response in the mice when it traveled beyond the gut.
    They also found that the response can be countered by using antibiotics or vaccines to suppress the autoimmune reaction and prevent the bacterium from growing. The researchers were able to duplicate this mechanism using cultured human liver cells, and they also found the bacteria E. gallinarum in the livers of people with autoimmune disease.
    The team found that administering an antibiotic or vaccine to target E. gallinarum suppressed the autoimmune reaction in the mice and prevented the bacterium from growing. "When we blocked the pathway leading to inflammation," says senior study author Martin Kriegel, "we could reverse the effect of this bug on autoimmunity."
    Team research team plans to further investigate the biological mechanisms that are associated with E. gallinarum, along with the potential implications for systemic lupus and autoimmune liver disease.
    This study indicates that gut bacteria may be the key to treating chronic autoimmune conditions such as systemic lupus and autoimmune liver disease. Numerous autoimmune conditions have been linked to gut bacteria.
    Read the full study in Science.

    Tammy Rhodes
    Celiac.com 04/24/2018 - Did you know in 2017 alone, the United States had OVER TENS OF THOUSANDS of people evacuate their homes due to natural disasters such as fires, floods, hurricanes, tornadoes and tsunamis? Most evacuation sites are not equipped to feed your family the safe gluten free foods that are required to stay healthy.  Are you prepared in case of an emergency? Do you have your Gluten Free Emergency Food Bag ready to grab and go?  
    I have already lived through two natural disasters. Neither of which I ever want to experience again, but they taught me a very valuable lesson, which is why I created a Gluten Free Emergency Food Bag (see link below). Here’s my story. If you’ve ever lived in or visited the Los Angeles area, you’re probably familiar with the Santa Ana winds and how bitter sweet they are. Sweet for cleaning the air and leaving the skies a brilliant crystal blue, and bitter for the power outages and potential brush fires that might ensue.  It was one of those bitter nights where the Santa Ana winds were howling, and we had subsequently lost our power. We had to drive over an hour just to find a restaurant so we could eat dinner. I remember vividly seeing the glow of a brush fire on the upper hillside of the San Gabriel Mountains, a good distance from our neighborhood. I really didn’t think much of it, given that it seemed so far from where we lived, and I was hungry! After we ate, we headed back home to a very dark house and called it a night. 
    That’s where the story takes a dangerous turn….about 3:15am. I awoke to the TV blaring loudly, along with the lights shining brightly. Our power was back on! I proceeded to walk throughout the house turning everything off at exactly the same time our neighbor, who was told to evacuate our street, saw me through our window, assuming I knew that our hillside was ablaze with flames. Flames that were shooting 50 feet into the air. I went back to bed and fell fast asleep. The fire department was assured we had left because our house was dark and quiet again. Two hours had passed.  I suddenly awoke to screams coming from a family member yelling, “fire, fire, fire”! Flames were shooting straight up into the sky, just blocks from our house. We lived on a private drive with only one way in and one way out.  The entrance to our street was full of smoke and the fire fighters were doing their best to save our neighbors homes. We literally had enough time to grab our dogs, pile into the car, and speed to safety. As we were coming down our street, fire trucks passed us with sirens blaring, and I wondered if I would ever see my house and our possessions ever again. Where do we go? Who do we turn to? Are shelters a safe option? 
    When our daughter was almost three years old, we left the West Coast and relocated to Northern Illinois. A place where severe weather is a common occurrence. Since the age of two, I noticed that my daughter appeared gaunt, had an incredibly distended belly, along with gas, stomach pain, low weight, slow growth, unusual looking stool, and a dislike for pizza, hotdog buns, crackers, Toast, etc. The phone call from our doctor overwhelmed me.  She was diagnosed with Celiac Disease. I broke down into tears sobbing. What am I going to feed my child? Gluten is everywhere.
    After being scoped at Children's Hospital of Chicago, and my daughters Celiac Disease officially confirmed, I worried about her getting all the nutrients her under nourished body so desperately needed. I already knew she had a peanut allergy from blood tests, but just assumed she would be safe with other nuts. I was so horribly wrong. After feeding her a small bite of a pistachio, which she immediately spit out, nuts would become her enemy. Her anaphylactic reaction came within minutes of taking a bite of that pistachio. She was complaining of horrible stomach cramps when the vomiting set in. She then went limp and starting welting. We called 911.
    Now we never leave home without our Epipens and our gluten free food supplies. We analyze every food label. We are hyper vigilant about cross contamination. We are constantly looking for welts and praying for no stomach pain. We are always prepared and on guard. It's just what we do now. Anything to protect our child, our love...like so many other parents out there have to do every moment of ever day!  
    Then, my second brush with a natural disaster happened, without any notice, leaving us once again scrambling to find a safe place to shelter. It was a warm and muggy summer morning, and my husband was away on a business trip leaving my young daughter and me to enjoy our summer day. Our Severe Weather Alert Radio was going off, again, as I continued getting our daughter ready for gymnastics.  Having gotten used to the (what seemed to be daily) “Severe Thunderstorm warning,” I didn’t pay much attention to it. I continued downstairs with my daughter and our dog, when I caught a glimpse out the window of an incredibly black looking cloud. By the time I got downstairs, I saw the cover to our grill literally shoot straight up into the air. Because we didn’t have a fenced in yard, I quickly ran outside and chased the cover, when subsequently, I saw my neighbor’s lawn furniture blow pass me. I quickly realized I made a big mistake going outside. As I ran back inside, I heard debris hitting the front of our home.  Our dog was the first one to the basement door! As we sat huddled in the dark corner of our basement, I was once again thinking where are we going to go if our house is destroyed. I was not prepared, and I should have been. I should have learned my lesson the first time. Once the storm passed, we quickly realized we were without power and most of our trees were destroyed. We were lucky that our house had minimal damage, but that wasn’t true for most of the area surrounding us.  We were without power for five days. We lost most of our food - our gluten free food.
    That is when I knew we had to be prepared. No more winging it. We couldn’t take a chance like that ever again. We were “lucky” one too many times. We were very fortunate that we did not lose our home to the Los Angeles wildfire, and only had minimal damage from the severe storm which hit our home in Illinois.
      
    In 2017 alone, FEMA (Federal Emergency Management Agency) had 137 natural disasters declared within the United States. According to FEMA, around 50% of the United States population isn’t prepared for a natural disaster. These disasters can happen anywhere, anytime and some without notice. It’s hard enough being a parent, let alone being a parent of a gluten free family member. Now, add a natural disaster on top of that. Are you prepared?
    You can find my Gluten Free Emergency Food Bags and other useful products at www.allergynavigator.com.  

    Jefferson Adams
    Celiac.com 04/23/2018 - A team of researchers recently set out to learn whether celiac disease patients commonly suffer cognitive impairment at the time they are diagnosed, and to compare their cognitive performance with non-celiac subjects with similar chronic symptoms and to a group of healthy control subjects.
    The research team included G Longarini, P Richly, MP Temprano, AF Costa, H Vázquez, ML Moreno, S Niveloni, P López, E Smecuol, R Mazure, A González, E Mauriño, and JC Bai. They are variously associated with the Small Bowel Section, Department of Medicine, Dr. C. Bonorino Udaondo Gastroenterology Hospital; Neurocience Cognitive and Traslational Institute (INECO), Favaloro Fundation, CONICET, Buenos Aires; the Brain Health Center (CESAL), Quilmes, Argentina; the Research Council, MSAL, CABA; and with the Research Institute, School of Medicine, Universidad del Salvador.
    The team enrolled fifty adults with symptoms and indications of celiac disease in a prospective cohort without regard to the final diagnosis.  At baseline, all individuals underwent cognitive functional and psychological evaluation. The team then compared celiac disease patients with subjects without celiac disease, and with healthy controls matched by sex, age, and education.
    Celiac disease patients had similar cognitive performance and anxiety, but no significant differences in depression scores compared with disease controls.
    A total of thirty-three subjects were diagnosed with celiac disease. Compared with the 26 healthy control subjects, the 17 celiac disease subjects, and the 17 disease control subjects, who mostly had irritable bowel syndrome, showed impaired cognitive performance (P=0.02 and P=0.04, respectively), functional impairment (P<0.01), and higher depression (P<0.01). 
    From their data, the team noted that any abnormal cognitive functions they saw in adults with newly diagnosed celiac disease did not seem not to be a result of the disease itself. 
    Their results indicate that cognitive dysfunction in celiac patients could be related to long-term symptoms from chronic disease, in general.
    Source:
    J Clin Gastroenterol. 2018 Mar 1. doi: 10.1097/MCG.0000000000001018.

    Connie Sarros
    Celiac.com 04/21/2018 - Dear Friends and Readers,
    I have been writing articles for Scott Adams since the 2002 Summer Issue of the Scott-Free Press. The Scott-Free Press evolved into the Journal of Gluten Sensitivity. I felt honored when Scott asked me ten years ago to contribute to his quarterly journal and it's been a privilege to write articles for his publication ever since.
    Due to personal health reasons and restrictions, I find that I need to retire. My husband and I can no longer travel the country speaking at conferences and to support groups (which we dearly loved to do) nor can I commit to writing more books, articles, or menus. Consequently, I will no longer be contributing articles to the Journal of Gluten Sensitivity. 
    My following books will still be available at Amazon.com:
    Gluten-free Cooking for Dummies Student's Vegetarian Cookbook for Dummies Wheat-free Gluten-free Dessert Cookbook Wheat-free Gluten-free Reduced Calorie Cookbook Wheat-free Gluten-free Cookbook for Kids and Busy Adults (revised version) My first book was published in 1996. My journey since then has been incredible. I have met so many in the celiac community and I feel blessed to be able to call you friends. Many of you have told me that I helped to change your life – let me assure you that your kind words, your phone calls, your thoughtful notes, and your feedback throughout the years have had a vital impact on my life, too. Thank you for all of your support through these years.

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    • Well I must be in thst 5% range group  because I have been having symptoms all of my life and even been misdiagnosed as having Sickle cell anemia!  Then when I  migrated here and did further testing,  no sickle cell.  I did in depth research and listen various doctors on the matter.  It was said a genetic test can diagnose Celiac disease especially if you are symptomatic and there are 4 types of celiac disease  (No symptoms,  mild symptoms,  severe symptoms and I can't recall the other one) I have spent alot of money behind doctors and I ain't doing that anymore.  The only thing that I going to do is have a gastrointestinal doctor do an endoscopy a year from now to see how my small intestine villies are shaping up! 
    • You can't be diagnosed with Celiac just through genetic tests.  About 30% of people have at least one gene that could lead them to develop Celiac.  But only about 1% of people actually develop Celiac. https://www.cureceliacdisease.org/faq/if-i-have-a-gene-for-celiac-disease-does-that-i-mean-i-have-it/   "Genetics don’t diagnose celiac disease. They do, however, clarify whether an individual is “at-risk” for it. If this is the case, you should closely monitor your symptoms and submit to blood tests every 2-3 years or immediately upon the onset of symptoms. When the genetic predisposition for celiac disease was detected (on Chromosome 6) researchers noted that the genes were a necessary but not sufficient condition for the disease to develop. In fact, up to 1/3 of the U.S. population has the genes for celiac disease. Meaning, those who have the DQ2 or DQ8 gene can develop celiac disease at any time, but only about 5% of those people actually will. "    
    • Hi, I had Celiac disease all my life(I am in my 30s now) as well and only last year November I found out. I  start my Gluten-free diet about a month and few weeks now. Why? After being diagnosed with Celiac disease via GeneticTesting,  I wanted to have an endoscopy done and further blood work so I continue to suffer through all the symptoms until I could take it anymore and went gluten-free.  I have had 2 Genetic Reports confirming that I had Celiac disease along with a  very long list of symptoms. I don't like being gluten-free because the food isn't fun anymore and I can't eat out like I use to. You have to be extremely careful about everything including your toothpaste!  It's a tough journey but I rather stick to this path than being constantly in pain and having devastating symptoms. Most of my muscle and join pain has gone and my sense of smell is returning. I don't have any rashes and my skin stop itching. (It was crazy ) I read an article that was talking about some of the foods that say their are certify Gluten-free but have small amounts of gluten in them(20ppm)and I think that that could be your problem. Also, you have to be careful of cross contamination and that can happen alot in the fields as well as in the facility! (Millet and  quinoa are high risk for cross contamination ) There is also the possibility that some of the foods that other gluten-free people eat and say it's safe because it doesn't affect them may not be good for you. Everyone'sbody is different!  I can't eat corn, oates and basically no grains (rice included) I  don't buy the gluten-free process foods that sell at the supermarket because they are a big risk. I am also lactose intolerant so you see, food choices are very limited but you have to keep the faith. Look in your area for gluten free bakeries and see if you can get delicious treats to buy. I  found one a few days ago and I couldn't believe how good the cakes and muffins tasted. I tried some of the flours but couldn't get my stuff to be tasty like theirs. The lady that owns the bakery has celiac disease (diagnosed in 2008) and decided to start making her own products after she couldn't find tasty  gluten-free snacks.
    • Its diagnosed by the regular complete blood count panel most doctors do for routine exams.  The big clue is when your red blood cells are large and misformed.  This shows on the MVC part of the blood panel.  Then they see the level of B12 in your blood is very low and sometimes do  a special count to look a little more closely at the red blood cells.  Thats how I was diagnosed.  
    • Hi Mel, CL is right, celiac is a very livable condition.  In fact, celiac causes most of us to eat a far healthier diet than the average Joe on the SAD (standard American diet).   Although it takes some time to get used to the gluten-free diet, it is not a big burden once you adjust.  There are lots of restaurants serving gluten-free food these days.  And it's not hard to take some fruit, hard boiled eggs, or peanuts along for backup food in case there isn't any safe gluten-free food around. A local celiac group can be helpful to talk to.  Try searching in google or duckduckgo for gluten free and the city name.  You'll probably find some interesting links.  A local celiac group may be able to suggest a better, more informed doctor also. She will be safer at school if she has a kitchen to prepare her food in herself.  Starting the gluten-free diet is best done by sticking with whole foods and avoiding most of the gluten-free processed foods for a few months.  Mission corn tortillas are a cheap sub for bread. She may feel better if she avoids all dairy for a few months also.  Celiac disease can impair the ability to digest dairy.  After she has healed her gut a few months dairy may not be a problem. There is a pretty good chance there are other students with celiac disease at her school too.  So if she can hook up with them it might be easier for her. Either of her parents or both may have a celiac related gene.  Having the gene means you can develop celiac disease, not that you will.  Most people with the gene do not get celiac.  But first degree relatives have a somewhat higher chance of getting celiac.  The same genes are associated with a number of other autoimmune conditions.  So there may be a history of 
      other AI diseases in the family. Catching celiac disease at a young age is great, because it's much better than living with it for years and not knowing why you are so sick all the time.  And she avoids a lot of potential damage to her body. We are glad to help with info and tips if needed.  Welcome to the forum!  
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