Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could I Have Celiac Disease?

ses32

Recommended Posts

ses32 Newbie
ses32
Posted

For many years I have had problems with loose stools that started gradually. In the beginning I only had loose stools when I was nervous or stressed. Then I started having loose stools everytime I had my period and now I have them every single day. They have also started being pale in color and they smell bad. For many years I was also depressed. 

 

Then for one year I took birth control pills and all of my symptoms disappeared. Every day I had perfect stools and no stomach pain or bloating and I was no longer depressed and I had much more energy and I just felt generally really good and I hadn't felt like that for years.

After one year I stopped taking the pills because I wanted to get pregnant. A couple of months after I stopped I had really bad stomach pains. I thought it probably was just because I stopped taking those pills. But then gradually I started getting loose stools again. It has been 9 months now since I stopped taking them and everyday I have loose stools. 

 

Maybe it's just related to hormones. I don't know but I just thought maybe it could be celiac disease because my grandmother has celiac disease and my mother hasn't been diagnosed with it but she refuses to eat bread or pasta because she says it makes her bloated.

 

Could it be that I have celiac disease even though my digestion was completely normal when I took those pills? I'm not sure if it could be because that year I basically lived on bread (I was a poor student).

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted

being as your grandmother has celiac, and it is a genetic disease, certainly you could have celiac.  but you could also have something else.....  you should go and see a doctor.  they can test you for celiac and also other things which may be your problem.  can't remember b.c. pills ever making my digestion any better?  but everyone is different.  really, you should see a doctor.  and, keep eating gluten if you intend to be tested, otherwise the test will not be accurate.  good luck and i hope you find some answers :)

Celiacandme Apprentice
Celiacandme
Posted

You never know. If I were you I would schedule an appt with my gp. Explain to them your bathroom issues, etc, and request that they run the full celiac panel on you. Keep eating gluten so it will be accurate. I would tell them you'd really like to be tested because of the fact that you are having some issues and your grandmother has it. Good luck. Keep us posted!

ses32 Newbie
ses32
Posted
  • Author

Thanks for answering. Yeah, I should definitely see a doctor. I went once and said I thought I maybe had it but that doctor didn't do anything. She just said it's really hard to diagnose it and told me to book an appointment with a gastroenterologist. But I'll try again. I'm really sick of having this problem. 

nvsmom Community Regular
nvsmom
Posted

The loose stools may be hormone related but that doesn't mean it isn't celiac disease linked either.

 

Right before menstration, the body clears out the large intestine - it does the same thing in early labor.  Before I was diagnosed I looked forward to that because it was the only time I felt cleared out; I had chronic constipation so that time of the months was loose to normal and got things moving.

 

Now, I have normal stools so for a day or two each month, I'm in the bathroom a few times a day with looser stools.  It's just the hormones clearing you out.

 

That being said, loose stools every day isn't normal so you might as well get that checked. 

 

You doctor is incorrect to say that celiac disease is hard to diagnose.  If they actually run the right tests, it isn't usually that difficult.

Ask for:

tTG IgA and tTG IgG

DGP IgA and DGP IgG (deaminated gliadin peptides)

EMA IgA

total serum IgA - control test

AGA IgA and AGA IgG (antigliadin antibodies) - older and less reliable tests replaced by the DGP tests

 

Make sure you are eating gluten in the 2-3 months before testing.

 

You also might want to check your thyroid. Hyperthyroidism can cause loose stools.  Other food sensitivities can do it too.

 

Best wishes and welcome to the board.  :)

ses32 Newbie
ses32
Posted
  • Author

The loose stools may be hormone related but that doesn't mean it isn't celiac disease linked either.

 

Right before menstration, the body clears out the large intestine - it does the same thing in early labor.  Before I was diagnosed I looked forward to that because it was the only time I felt cleared out; I had chronic constipation so that time of the months was loose to normal and got things moving.

 

Now, I have normal stools so for a day or two each month, I'm in the bathroom a few times a day with looser stools.  It's just the hormones clearing you out.

 

That being said, loose stools every day isn't normal so you might as well get that checked. 

 

You doctor is incorrect to say that celiac disease is hard to diagnose.  If they actually run the right tests, it isn't usually that difficult.

Ask for:

tTG IgA and tTG IgG

DGP IgA and DGP IgG (deaminated gliadin peptides)

EMA IgA

total serum IgA - control test

AGA IgA and AGA IgG (antigliadin antibodies) - older and less reliable tests replaced by the DGP tests

 

Make sure you are eating gluten in the 2-3 months before testing.

 

You also might want to check your thyroid. Hyperthyroidism can cause loose stools.  Other food sensitivities can do it too.

 

Best wishes and welcome to the board.  :)

I've been to a doctor now and had all those tests done. I'm still waiting for the results.

cyclinglady Grand Master
cyclinglady
Posted

Keep us posted! Celiac disease symptoms can wax and wane. It is so frustrating! I sincerely hope you find answers.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Me,Sue
      - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed...
    2. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    3. Scott Adams
      - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular? Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,853
    • Most Online (within 30 mins)
      7,748
    Procurement
    Newest Member
    Procurement
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.