Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Challenge For Mother Of Breastfed 15 Month Old


Reffinej

Recommended Posts

Reffinej Newbie

Hiya. I am just starting a gluten challenge...my toddler (15 months) has never had gluten, and I was as gluten free as I thought I needed to be (before finding out I may have coeliac disease)...anyone have experience with signs that gluten was negatively impacting their breastfed toddler? ie: what symptoms? How soon did they appear? 
She suffered reflux as a baby, too. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StephanieL Enthusiast

It's hasn't been determined if/how much gluten protein would get through into the breastmilk.  It's hard to say what and when it could have an effect on a kiddo.  FWIW, I nursed my kid with Celiac Disease till he was a few years old and I was NOT gluten free.  He didn't show any outward signs of it harming him.

nvsmom Community Regular

Symptoms in a toddler may include changes stools (D or C), slowed growth and development, weight loss or slowing, fatigue and affected sleep, crankiness, stomach upset, rashes, headaches.... symptoms will mostly come back to a bad mood since they won't be able to say what is wrong.  Expect more tears if symptoms present themselves.

 

Symptoms can present minutes (about 15-30) to 3 days after exposure to gluten.

 

Be aware that many celiacs do not present obvious symptoms.  Anemia, opsteoporosis (slowed bone development), vitamin deficiencies, slowed cognitive development, etc. may not be obvious... I would not be able to see it in a toddler.  The bottom line is that it may be affecting him but he isn't showing it, or the symptoms are not extreme.

 

If you are positive, get him tested or keep him gluten-free.  He'll be at high risk of developing celiac disease himself.  If he tests negative, retest him every two years or as soon as symptoms develop.  It's a genetic disease that he could get at any time over his entire life.

 

He can stay gluten-free even without a diagnosis.  Gluten is not a needed protein for humans.

africanqueen99 Contributor

My youngest was DX at 1.5 years and I immediately went gluten-free with her so she could continue nursing for another 1.5 years. 

 

StephanieL - I must have read different research than you, because everything I read told me to either wean or stick to a strict diet for her.  We never had any issues as I was crazy strict with what we all ate.

 

Pre-dx this kid would scream bloody murder all night long, couldn't sleep (in severe pain) and nursed all the time (way more than the average kid) to soothe her belly.  It was clear that her diet was hurting her.

Reffinej Newbie

So tricky with conflicting advice, huh? 

My kids are usually gluten free - bar a brief spell for my eldest when I was pregnant with number 2 and we all had some artisan bread during my terrible morning sickness times. And Ryvita - I finally got hubby to stop giving it to her. 

Anyway, I guess with the 15 month old it might be more likely that it is the dairy I've had upsetting her tummy. I've been dairy free for a while before now, too. 


 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.