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I Think My Partner And I Might Have Celiac's Disease

HCC

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HCC Newbie
HCC
Posted

Hi,

 

My partner and i have an appointment next week to get the ball rolling, but i can't stop thinking about it and just wanted to have a chat to someone about it. 

 

My partner is 32, he is very fit and thin.

He has some big indicators

Autoimmune disease - severe psoriasis

Infertility - we had to use ivf for our son. 

Sudden onset of fatigue /sleepiness when he eats breads, pasta etc

Gas, stinky gas, always. 

horribly stinky poo. 

 

 

 

im 27

My symptoms. 

bloated always. 

very very gassy.

loose poo more often then not. 

cramps.

Fatigue, muscle weakness, shakes, dizziness,

unexplained high blood pressure

as a kid i had very bad joint pain, always aching, hot or cold, no matter what. i was always "off with the fairies/foggy minded"

 

I have been to the hospital a few times in my life for heart palpitations. i have had a 24hr halter and stress test, all normal. 

start of this year i went back to the dr because my strength in my hands is weakening and i have been having cramps in my legs. twitching lips and eyebrow, hand and arms. losing balance when i stand, very scary stuff. i had a blood test then and had elevated liver enzyme. he was going to do more tests but i never went back (1 year old bub and the dr wasn't very interested )

About 6 months after bub was born i got dermatitis herpetiformis on my hands for the first time in my life. ( its gone now ) 

 

So i have a few weaker symptoms then my partner but i think i might be on the right track for both of us.

 

Does any of this look like it could be Celiac's Disease?

 

 

 

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ravenwoodglass Mentor
ravenwoodglass
Posted

Yes it is a good idea to get tested. Do not go gluten free until all testing is finished. If one or both of you are celiac please know that the baby needs to be tested as do all your first degree relatives. If baby is negative do retest every couple of years. 

HCC Newbie
HCC
Posted
  • Author

thanks for the reply :) 

 

What age would he get tested ravenswoodglass? he is 15 months old now. my partner also has a 9 year old, my parnter is adopted so we are unsure of any history on his side. No known celiacs on my side. 

nvsmom Community Regular
nvsmom
Posted

Toddlers are the hardest to test accurately, but you can test at any time.  If there is a negative test but you suspect celiac disease yet continue consuming gluten, you should retest every two years for his entire life.  Celiac can manifest at any time.  :(

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