Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rolled Oats: Could They Be Causing Me Trouble.

Kaukaukka

Recommended Posts

Kaukaukka Newbie
Kaukaukka
Posted

Hello Fellow Celiacers.

 

I was diagnosed 10 years ago, and its been fairly good since. About 2 years ago I tought myself to eat oats (Oatmeal) for breakfast. Never used to. gross..lol  Now I have been really suffereing bad with aches, pain, severe neck stiffness and headaches, migraines, stiffness and now hair loss and breakage.  I am also under a great deal of stress but I have always have been, but being in such cronic pain all the time...having NO energy all the time will make one stressed. Saw a naturapath Doc yesterday and she suspects the oats I eat every single day but I was always told Oats were fine.  Mine are Wheat free...

No one can seem to get a handle on whats wrong.  I am miserable :(

 

Any ideas. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Are they labelled gluten free oats? Regular oats often have a high level of wheat/ gluten in them by accident.

Trying to find an article I saw recently. It said that a few Celiacs seem to react to oats.

squirmingitch Veteran
squirmingitch
Posted

Here it is:

Open Original Shared Link

squirmingitch Veteran
squirmingitch
Posted

And here are 2 more:

Open Original Shared Link

Open Original Shared Link

w8in4dave Community Regular
w8in4dave
Posted

Even in this forum some people have a hard time with gluten-free oats. Have you had your vitamin levels checked? Just curious I was suffering from, no energy, hair loss, mouth sores, Nails coming loose, and low and behold it was Folate , Folic Acid. It's a B vitamin. Just saying you might want to get your vitamin levels checked. 

  • 3 weeks later...
Kaukaukka Newbie
Kaukaukka
Posted
  • Author

Thanks.  Yes I take many Vit B. I take so many suppliments everyday.  I am not seeing any difference in my hair, I posted another question about it. I work in a pharmacy and handle hundreds of pills daily.  So many I am being contaminated and dont know it.  I am getting a foods IgG test gone on the 18th of Aug and a DHEA test on the 10th.  Been so off for awhile and I am ready to be heathly again. Just cant seem to pin down whats wrong with me.

 

Thanks for the feedback.

REBECCA

cap6 Enthusiast
cap6
Posted

The celiac Disease Foundation just did an article on the reasons why some celiacs have problems with even glutyen free oats. It has to do with a protein in them that is very similar to wheat. I will try to find it and post it. It was on my fb so will have to look back a few days worth.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 months later...
iBelieve Newbie
iBelieve
Posted

Would we have our celiac bloodwork affected for eating oats if we happen to be one of the people affected by eating even gluten-free oats? 

smj7159 Newbie
smj7159
Posted

Unless they are "Certified Gluten Free", there's always a chance of contamination from wheat, barley or rye. Some of the symptoms you're describing  could be from being "glutened". I've experienced them myself. Chex has really good gluten free instant and rolled oats. 

squirmingitch Veteran
squirmingitch
Posted

Would we have our celiac bloodwork affected for eating oats if we happen to be one of the people affected by eating even gluten-free oats? 

I can't say definitively because I haven't read it in any medical references but I'm going to venture it could be possible BUT that would depend on how much & how long one had been eating them AND only if you're one of those who has an actual T cell reaction to the cert. gluten-free oats. 

iBelieve Newbie
iBelieve
Posted

I eat certified gluten-free oats almost everyday for breakfast and I feel fine from it. I would die if I had to stop eating oats seeing as I can't have bread ( I don't like any gluten-free breads). I need substance and some good simple carbs at breakfast or I don't feel good at all. I just worry now if eating them will keep my numbers up should I get tested again. I was just diagnosed ( after being undiagnosed a few years ago after biopsy) and my number was 250. I was told my doc has never seen s number this high. I only ate gluten for about 5 weeks in order to get the blood test again but have been eating 90% gluten-free since my "undisgnosis" a few years back. 

squirmingitch Veteran
squirmingitch
Posted

Have you ever heard the old saying, "Don't borrow trouble"? Don't borrow trouble. If you're eating them & you feel fine then go ahead & keep enjoying them. I don't think your high number was from the oats alone. You did say you were eating 90%. That 10% is what got you. That along with your 5 weeks of gluten gluttoning gave you your numbers. Unless you're having reactions then the oats won't hurt you & you would know if you were having reactions so don't worry, be happy & eat your oats.:)

Swise Newbie
Swise
Posted

Hello Fellow Celiacers.

 

I was diagnosed 10 years ago, and its been fairly good since. About 2 years ago I tought myself to eat oats (Oatmeal) for breakfast. Never used to. gross..lol  Now I have been really suffereing bad with aches, pain, severe neck stiffness and headaches, migraines, stiffness and now hair loss and breakage.  I am also under a great deal of stress but I have always have been, but being in such cronic pain all the time...having NO energy all the time will make one stressed. Saw a naturapath Doc yesterday and she suspects the oats I eat every single day but I was always told Oats were fine.  Mine are Wheat free...

No one can seem to get a handle on whats wrong.  I am miserable :(

 

Any ideas. 

Swise Newbie
Swise
Posted

Sounds like all of my symptoms with gluten free oatmeal. I cannot eat any oats. My dad and sister with celiac can't have gluten free oats either. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Super Sensitive People
      2

      Alarming

      Im sorry I didn't read until just now, thankyou.its pretty scary because again as I keep stating down played because of what im currently going through and validated by you guys, thank you very much for that because this is mentally challenging especially when asking, begging for medical help.In that note, I looked at my next appointment with gi whose my...
    2. trents
      - trents commented on Scott Adams's article in Origins of Celiac Disease
      10

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

      Medical science has only recently begun to understand the link between the health of our gut biome and it's impact on other body systems. Very recently, scientists have discovered that gut bacteria play a role in the development of Parkinson's disease and Alzheimer's disease. Up until very recently, the only real concern in medical science circles about the...
    3. RMJ
      - RMJ replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

      I would not eat it. Some people are more sensitive to small amounts of gluten than others. Until you know how sensitive you are It is probably best to be extra careful. Is this a crustless pizza? I looked on the Papa Murphy website, clicked on nutrition and filtered by “avoid gluten”. The only pizzas that it said were gluten free were crustless sli...
    4. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Barilla gluten free pasta

      Has anyone had a reaction to gluten free pasta ? I made ground beef pasta and gluten free sauce and I'm having every symptom there is. Nausea , constipated, burning pins and needles, anxiety...etc lots of pain 😞 headache 😭 Does this sound familiar? I'm literally bed ridden.
    5. Scott Adams
      0

      Fluffy Blueberry Buckwheat Pancakes That Are Naturally Gluten-Free

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,448
    • Most Online (within 30 mins)
      7,748
    JEBarry
    Newest Member
    JEBarry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      Im sorry I didn't read until just now, thankyou.its pretty scary because again as I keep stating down played because of what im currently going through and validated by you guys, thank you very much for that because this is mentally challenging especially when asking, begging for medical help.In that note, I looked at my next appointment with gi whose my "new care",i thought. I had  scheduled appointment in March zoom call just to be dump, it was CANCELLED on their part! My appointment isn't there anymore! I do have appointment with Mayo clinic Tuesday on the phone. I also did talk to our local representative in Stanislaus office this past Friday, yesterday and ( Justin) thinks he knows about celiac disease. I don't think he understands because he told me he knows all about celiac! Well Justin why am I dealing with this bs in your county? Hintz the reason why I feel the need to go to city hall meeting yet I  don't have the medical  support....
    • RMJ
      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

      By RMJ · Posted

      I would not eat it. Some people are more sensitive to small amounts of gluten than others. Until you know how sensitive you are It is probably best to be extra careful. Is this a crustless pizza?  I looked on the Papa Murphy website, clicked on nutrition and filtered by “avoid gluten”. The only pizzas that it said were gluten free were crustless slices. Papa Murphy’s nutrition  
    • Colleen H
      Barilla gluten free pasta

      By Colleen H · Posted

      Has anyone had a reaction to gluten free pasta ?  I made ground beef pasta and gluten free sauce and I'm having every symptom there is.  Nausea ,  constipated,   burning pins and needles, anxiety...etc   lots of pain 😞 headache 😭  Does this sound familiar?   I'm literally bed ridden.  
    • Known1
      Reverse Osmosis (RO) Water

      By Known1 · Posted

      Thank you for your reply.  I read the same thing about distilled water.  Oddly, drinking that has not caused any sort of reaction in my gut.  Nothing I can hear and feel anyway.  🤣  With that said, I have also switched over to spring water for drinking.  My traditional go to grocery store charges the exact same thing ($1.39) for a gallon of pre-bottled spring, distilled, or RO water.  The manual gallon refills of RO water have an attractive price of $0.49 per gallon, provided you use your own container.  Knowing it causes major bubble gut (and likely other issues) for me, I am avoiding all RO water moving forward.  In fact, I will gladly drink tap before RO water. Here is what Google says when searching "European study regarding reverse osmosis water". --Begin quote: European studies indicate that while reverse osmosis (RO) is highly effective at removing contaminants, it strips essential minerals (calcium, magnesium) and creates low-mineral, slightly acidic water.  Research suggests this may have long-term health implications, such as mineral deficiencies, while also negatively affecting the sensory quality (taste) of water. Key Findings from European Research & Reviews: Health Concerns: Epidemiological studies in Europe have associated low-mineral water consumption with increased risks of cardiovascular disease, cognitive decline, and reduced intake of essential nutrients. Mineral Depletion: RO systems can remove up to 95%+ of solutes, including minerals that are vital for health. Sensory and Quality Impact: Studies show that reducing the mineral content (TDS) of water makes it taste bitter or flat, with optimal, "fresh" taste found in water with a TDS between 190 and 350 mg/L, suggesting post-RO remineralization is necessary for better quality. Regulatory & Safety Context: While not banned, European regulations under the Drinking Water Directive emphasize the importance of mineral content, and countries like Germany often favor alternative treatment technologies that retain minerals. Industrial Application: In Europe, RO is widely accepted for industrial applications (e.g., food, beverage, pharma) due to its high purity output, but it poses challenges like membrane biofouling. Environmental Impact: RO is recognized to use more energy and waste more water (up to 15% more) compared to conventional treatment methods, raising environmental concerns in some municipalities.  Recommendations: Due to the loss of minerals, many experts recommend remineralizing RO water before drinking to improve taste and nutritional value.  --End Quote
    • knitty kitty
      Reverse Osmosis (RO) Water

      By knitty kitty · Posted

      I've heard RO water is bad, too.   Distilled water has all the minerals distilled out of it, so it will pull minerals out of your bones, too.  I only use distilled water to fill up my clothes iron so it won't get mineral deposits inside and quit working. I drink mineral or spring water.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.