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Rolled Oats: Could They Be Causing Me Trouble.

Kaukaukka

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Kaukaukka Newbie
Kaukaukka
Posted

Hello Fellow Celiacers.

 

I was diagnosed 10 years ago, and its been fairly good since. About 2 years ago I tought myself to eat oats (Oatmeal) for breakfast. Never used to. gross..lol  Now I have been really suffereing bad with aches, pain, severe neck stiffness and headaches, migraines, stiffness and now hair loss and breakage.  I am also under a great deal of stress but I have always have been, but being in such cronic pain all the time...having NO energy all the time will make one stressed. Saw a naturapath Doc yesterday and she suspects the oats I eat every single day but I was always told Oats were fine.  Mine are Wheat free...

No one can seem to get a handle on whats wrong.  I am miserable :(

 

Any ideas. 

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kareng Grand Master
kareng
Posted

Are they labelled gluten free oats? Regular oats often have a high level of wheat/ gluten in them by accident.

Trying to find an article I saw recently. It said that a few Celiacs seem to react to oats.

squirmingitch Veteran
squirmingitch
Posted

Here it is:

Open Original Shared Link

squirmingitch Veteran
squirmingitch
Posted

And here are 2 more:

Open Original Shared Link

Open Original Shared Link

w8in4dave Community Regular
w8in4dave
Posted

Even in this forum some people have a hard time with gluten-free oats. Have you had your vitamin levels checked? Just curious I was suffering from, no energy, hair loss, mouth sores, Nails coming loose, and low and behold it was Folate , Folic Acid. It's a B vitamin. Just saying you might want to get your vitamin levels checked. 

  • 3 weeks later...
Kaukaukka Newbie
Kaukaukka
Posted
  • Author

Thanks.  Yes I take many Vit B. I take so many suppliments everyday.  I am not seeing any difference in my hair, I posted another question about it. I work in a pharmacy and handle hundreds of pills daily.  So many I am being contaminated and dont know it.  I am getting a foods IgG test gone on the 18th of Aug and a DHEA test on the 10th.  Been so off for awhile and I am ready to be heathly again. Just cant seem to pin down whats wrong with me.

 

Thanks for the feedback.

REBECCA

cap6 Enthusiast
cap6
Posted

The celiac Disease Foundation just did an article on the reasons why some celiacs have problems with even glutyen free oats. It has to do with a protein in them that is very similar to wheat. I will try to find it and post it. It was on my fb so will have to look back a few days worth.

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  • 2 months later...
iBelieve Newbie
iBelieve
Posted

Would we have our celiac bloodwork affected for eating oats if we happen to be one of the people affected by eating even gluten-free oats? 

smj7159 Newbie
smj7159
Posted

Unless they are "Certified Gluten Free", there's always a chance of contamination from wheat, barley or rye. Some of the symptoms you're describing  could be from being "glutened". I've experienced them myself. Chex has really good gluten free instant and rolled oats. 

squirmingitch Veteran
squirmingitch
Posted

Would we have our celiac bloodwork affected for eating oats if we happen to be one of the people affected by eating even gluten-free oats? 

I can't say definitively because I haven't read it in any medical references but I'm going to venture it could be possible BUT that would depend on how much & how long one had been eating them AND only if you're one of those who has an actual T cell reaction to the cert. gluten-free oats. 

iBelieve Newbie
iBelieve
Posted

I eat certified gluten-free oats almost everyday for breakfast and I feel fine from it. I would die if I had to stop eating oats seeing as I can't have bread ( I don't like any gluten-free breads). I need substance and some good simple carbs at breakfast or I don't feel good at all. I just worry now if eating them will keep my numbers up should I get tested again. I was just diagnosed ( after being undiagnosed a few years ago after biopsy) and my number was 250. I was told my doc has never seen s number this high. I only ate gluten for about 5 weeks in order to get the blood test again but have been eating 90% gluten-free since my "undisgnosis" a few years back. 

squirmingitch Veteran
squirmingitch
Posted

Have you ever heard the old saying, "Don't borrow trouble"? Don't borrow trouble. If you're eating them & you feel fine then go ahead & keep enjoying them. I don't think your high number was from the oats alone. You did say you were eating 90%. That 10% is what got you. That along with your 5 weeks of gluten gluttoning gave you your numbers. Unless you're having reactions then the oats won't hurt you & you would know if you were having reactions so don't worry, be happy & eat your oats.:)

Swise Newbie
Swise
Posted

Hello Fellow Celiacers.

 

I was diagnosed 10 years ago, and its been fairly good since. About 2 years ago I tought myself to eat oats (Oatmeal) for breakfast. Never used to. gross..lol  Now I have been really suffereing bad with aches, pain, severe neck stiffness and headaches, migraines, stiffness and now hair loss and breakage.  I am also under a great deal of stress but I have always have been, but being in such cronic pain all the time...having NO energy all the time will make one stressed. Saw a naturapath Doc yesterday and she suspects the oats I eat every single day but I was always told Oats were fine.  Mine are Wheat free...

No one can seem to get a handle on whats wrong.  I am miserable :(

 

Any ideas. 

Swise Newbie
Swise
Posted

Sounds like all of my symptoms with gluten free oatmeal. I cannot eat any oats. My dad and sister with celiac can't have gluten free oats either. 

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
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