Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rolled Oats: Could They Be Causing Me Trouble.

Kaukaukka

Recommended Posts

Kaukaukka Newbie
Kaukaukka
Posted

Hello Fellow Celiacers.

 

I was diagnosed 10 years ago, and its been fairly good since. About 2 years ago I tought myself to eat oats (Oatmeal) for breakfast. Never used to. gross..lol  Now I have been really suffereing bad with aches, pain, severe neck stiffness and headaches, migraines, stiffness and now hair loss and breakage.  I am also under a great deal of stress but I have always have been, but being in such cronic pain all the time...having NO energy all the time will make one stressed. Saw a naturapath Doc yesterday and she suspects the oats I eat every single day but I was always told Oats were fine.  Mine are Wheat free...

No one can seem to get a handle on whats wrong.  I am miserable :(

 

Any ideas. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Are they labelled gluten free oats? Regular oats often have a high level of wheat/ gluten in them by accident.

Trying to find an article I saw recently. It said that a few Celiacs seem to react to oats.

squirmingitch Veteran
squirmingitch
Posted

Here it is:

Open Original Shared Link

squirmingitch Veteran
squirmingitch
Posted

And here are 2 more:

Open Original Shared Link

Open Original Shared Link

w8in4dave Community Regular
w8in4dave
Posted

Even in this forum some people have a hard time with gluten-free oats. Have you had your vitamin levels checked? Just curious I was suffering from, no energy, hair loss, mouth sores, Nails coming loose, and low and behold it was Folate , Folic Acid. It's a B vitamin. Just saying you might want to get your vitamin levels checked. 

  • 3 weeks later...
Kaukaukka Newbie
Kaukaukka
Posted
  • Author

Thanks.  Yes I take many Vit B. I take so many suppliments everyday.  I am not seeing any difference in my hair, I posted another question about it. I work in a pharmacy and handle hundreds of pills daily.  So many I am being contaminated and dont know it.  I am getting a foods IgG test gone on the 18th of Aug and a DHEA test on the 10th.  Been so off for awhile and I am ready to be heathly again. Just cant seem to pin down whats wrong with me.

 

Thanks for the feedback.

REBECCA

cap6 Enthusiast
cap6
Posted

The celiac Disease Foundation just did an article on the reasons why some celiacs have problems with even glutyen free oats. It has to do with a protein in them that is very similar to wheat. I will try to find it and post it. It was on my fb so will have to look back a few days worth.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 months later...
iBelieve Newbie
iBelieve
Posted

Would we have our celiac bloodwork affected for eating oats if we happen to be one of the people affected by eating even gluten-free oats? 

smj7159 Newbie
smj7159
Posted

Unless they are "Certified Gluten Free", there's always a chance of contamination from wheat, barley or rye. Some of the symptoms you're describing  could be from being "glutened". I've experienced them myself. Chex has really good gluten free instant and rolled oats. 

squirmingitch Veteran
squirmingitch
Posted

Would we have our celiac bloodwork affected for eating oats if we happen to be one of the people affected by eating even gluten-free oats? 

I can't say definitively because I haven't read it in any medical references but I'm going to venture it could be possible BUT that would depend on how much & how long one had been eating them AND only if you're one of those who has an actual T cell reaction to the cert. gluten-free oats. 

iBelieve Newbie
iBelieve
Posted

I eat certified gluten-free oats almost everyday for breakfast and I feel fine from it. I would die if I had to stop eating oats seeing as I can't have bread ( I don't like any gluten-free breads). I need substance and some good simple carbs at breakfast or I don't feel good at all. I just worry now if eating them will keep my numbers up should I get tested again. I was just diagnosed ( after being undiagnosed a few years ago after biopsy) and my number was 250. I was told my doc has never seen s number this high. I only ate gluten for about 5 weeks in order to get the blood test again but have been eating 90% gluten-free since my "undisgnosis" a few years back. 

squirmingitch Veteran
squirmingitch
Posted

Have you ever heard the old saying, "Don't borrow trouble"? Don't borrow trouble. If you're eating them & you feel fine then go ahead & keep enjoying them. I don't think your high number was from the oats alone. You did say you were eating 90%. That 10% is what got you. That along with your 5 weeks of gluten gluttoning gave you your numbers. Unless you're having reactions then the oats won't hurt you & you would know if you were having reactions so don't worry, be happy & eat your oats.:)

Swise Newbie
Swise
Posted

Hello Fellow Celiacers.

 

I was diagnosed 10 years ago, and its been fairly good since. About 2 years ago I tought myself to eat oats (Oatmeal) for breakfast. Never used to. gross..lol  Now I have been really suffereing bad with aches, pain, severe neck stiffness and headaches, migraines, stiffness and now hair loss and breakage.  I am also under a great deal of stress but I have always have been, but being in such cronic pain all the time...having NO energy all the time will make one stressed. Saw a naturapath Doc yesterday and she suspects the oats I eat every single day but I was always told Oats were fine.  Mine are Wheat free...

No one can seem to get a handle on whats wrong.  I am miserable :(

 

Any ideas. 

Swise Newbie
Swise
Posted

Sounds like all of my symptoms with gluten free oatmeal. I cannot eat any oats. My dad and sister with celiac can't have gluten free oats either. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    2. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    3. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      Thanks to both of you for your responses! Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In t...
    4. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference...
    5. lalan45
      - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748
    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      Am I nuts?

      By trents · Posted

      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Am I nuts?

      By trents · Posted

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      My journey is it gluten or fiber?

      By lalan45 · Posted

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.