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Rolled Oats: Could They Be Causing Me Trouble.

Kaukaukka

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Kaukaukka Newbie
Kaukaukka
Posted

Hello Fellow Celiacers.

 

I was diagnosed 10 years ago, and its been fairly good since. About 2 years ago I tought myself to eat oats (Oatmeal) for breakfast. Never used to. gross..lol  Now I have been really suffereing bad with aches, pain, severe neck stiffness and headaches, migraines, stiffness and now hair loss and breakage.  I am also under a great deal of stress but I have always have been, but being in such cronic pain all the time...having NO energy all the time will make one stressed. Saw a naturapath Doc yesterday and she suspects the oats I eat every single day but I was always told Oats were fine.  Mine are Wheat free...

No one can seem to get a handle on whats wrong.  I am miserable :(

 

Any ideas. 

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kareng Grand Master
kareng
Posted

Are they labelled gluten free oats? Regular oats often have a high level of wheat/ gluten in them by accident.

Trying to find an article I saw recently. It said that a few Celiacs seem to react to oats.

squirmingitch Veteran
squirmingitch
Posted

Here it is:

Open Original Shared Link

squirmingitch Veteran
squirmingitch
Posted

And here are 2 more:

Open Original Shared Link

Open Original Shared Link

w8in4dave Community Regular
w8in4dave
Posted

Even in this forum some people have a hard time with gluten-free oats. Have you had your vitamin levels checked? Just curious I was suffering from, no energy, hair loss, mouth sores, Nails coming loose, and low and behold it was Folate , Folic Acid. It's a B vitamin. Just saying you might want to get your vitamin levels checked. 

  • 3 weeks later...
Kaukaukka Newbie
Kaukaukka
Posted
  • Author

Thanks.  Yes I take many Vit B. I take so many suppliments everyday.  I am not seeing any difference in my hair, I posted another question about it. I work in a pharmacy and handle hundreds of pills daily.  So many I am being contaminated and dont know it.  I am getting a foods IgG test gone on the 18th of Aug and a DHEA test on the 10th.  Been so off for awhile and I am ready to be heathly again. Just cant seem to pin down whats wrong with me.

 

Thanks for the feedback.

REBECCA

cap6 Enthusiast
cap6
Posted

The celiac Disease Foundation just did an article on the reasons why some celiacs have problems with even glutyen free oats. It has to do with a protein in them that is very similar to wheat. I will try to find it and post it. It was on my fb so will have to look back a few days worth.

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  • 2 months later...
iBelieve Newbie
iBelieve
Posted

Would we have our celiac bloodwork affected for eating oats if we happen to be one of the people affected by eating even gluten-free oats? 

smj7159 Newbie
smj7159
Posted

Unless they are "Certified Gluten Free", there's always a chance of contamination from wheat, barley or rye. Some of the symptoms you're describing  could be from being "glutened". I've experienced them myself. Chex has really good gluten free instant and rolled oats. 

squirmingitch Veteran
squirmingitch
Posted

Would we have our celiac bloodwork affected for eating oats if we happen to be one of the people affected by eating even gluten-free oats? 

I can't say definitively because I haven't read it in any medical references but I'm going to venture it could be possible BUT that would depend on how much & how long one had been eating them AND only if you're one of those who has an actual T cell reaction to the cert. gluten-free oats. 

iBelieve Newbie
iBelieve
Posted

I eat certified gluten-free oats almost everyday for breakfast and I feel fine from it. I would die if I had to stop eating oats seeing as I can't have bread ( I don't like any gluten-free breads). I need substance and some good simple carbs at breakfast or I don't feel good at all. I just worry now if eating them will keep my numbers up should I get tested again. I was just diagnosed ( after being undiagnosed a few years ago after biopsy) and my number was 250. I was told my doc has never seen s number this high. I only ate gluten for about 5 weeks in order to get the blood test again but have been eating 90% gluten-free since my "undisgnosis" a few years back. 

squirmingitch Veteran
squirmingitch
Posted

Have you ever heard the old saying, "Don't borrow trouble"? Don't borrow trouble. If you're eating them & you feel fine then go ahead & keep enjoying them. I don't think your high number was from the oats alone. You did say you were eating 90%. That 10% is what got you. That along with your 5 weeks of gluten gluttoning gave you your numbers. Unless you're having reactions then the oats won't hurt you & you would know if you were having reactions so don't worry, be happy & eat your oats.:)

Swise Newbie
Swise
Posted

Hello Fellow Celiacers.

 

I was diagnosed 10 years ago, and its been fairly good since. About 2 years ago I tought myself to eat oats (Oatmeal) for breakfast. Never used to. gross..lol  Now I have been really suffereing bad with aches, pain, severe neck stiffness and headaches, migraines, stiffness and now hair loss and breakage.  I am also under a great deal of stress but I have always have been, but being in such cronic pain all the time...having NO energy all the time will make one stressed. Saw a naturapath Doc yesterday and she suspects the oats I eat every single day but I was always told Oats were fine.  Mine are Wheat free...

No one can seem to get a handle on whats wrong.  I am miserable :(

 

Any ideas. 

Swise Newbie
Swise
Posted

Sounds like all of my symptoms with gluten free oatmeal. I cannot eat any oats. My dad and sister with celiac can't have gluten free oats either. 

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
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