Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rolled Oats: Could They Be Causing Me Trouble.

Kaukaukka

Recommended Posts

Kaukaukka Newbie
Kaukaukka
Posted

Hello Fellow Celiacers.

 

I was diagnosed 10 years ago, and its been fairly good since. About 2 years ago I tought myself to eat oats (Oatmeal) for breakfast. Never used to. gross..lol  Now I have been really suffereing bad with aches, pain, severe neck stiffness and headaches, migraines, stiffness and now hair loss and breakage.  I am also under a great deal of stress but I have always have been, but being in such cronic pain all the time...having NO energy all the time will make one stressed. Saw a naturapath Doc yesterday and she suspects the oats I eat every single day but I was always told Oats were fine.  Mine are Wheat free...

No one can seem to get a handle on whats wrong.  I am miserable :(

 

Any ideas. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Are they labelled gluten free oats? Regular oats often have a high level of wheat/ gluten in them by accident.

Trying to find an article I saw recently. It said that a few Celiacs seem to react to oats.

squirmingitch Veteran
squirmingitch
Posted

Here it is:

Open Original Shared Link

squirmingitch Veteran
squirmingitch
Posted

And here are 2 more:

Open Original Shared Link

Open Original Shared Link

w8in4dave Community Regular
w8in4dave
Posted

Even in this forum some people have a hard time with gluten-free oats. Have you had your vitamin levels checked? Just curious I was suffering from, no energy, hair loss, mouth sores, Nails coming loose, and low and behold it was Folate , Folic Acid. It's a B vitamin. Just saying you might want to get your vitamin levels checked. 

  • 3 weeks later...
Kaukaukka Newbie
Kaukaukka
Posted
  • Author

Thanks.  Yes I take many Vit B. I take so many suppliments everyday.  I am not seeing any difference in my hair, I posted another question about it. I work in a pharmacy and handle hundreds of pills daily.  So many I am being contaminated and dont know it.  I am getting a foods IgG test gone on the 18th of Aug and a DHEA test on the 10th.  Been so off for awhile and I am ready to be heathly again. Just cant seem to pin down whats wrong with me.

 

Thanks for the feedback.

REBECCA

cap6 Enthusiast
cap6
Posted

The celiac Disease Foundation just did an article on the reasons why some celiacs have problems with even glutyen free oats. It has to do with a protein in them that is very similar to wheat. I will try to find it and post it. It was on my fb so will have to look back a few days worth.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 months later...
iBelieve Newbie
iBelieve
Posted

Would we have our celiac bloodwork affected for eating oats if we happen to be one of the people affected by eating even gluten-free oats? 

smj7159 Newbie
smj7159
Posted

Unless they are "Certified Gluten Free", there's always a chance of contamination from wheat, barley or rye. Some of the symptoms you're describing  could be from being "glutened". I've experienced them myself. Chex has really good gluten free instant and rolled oats. 

squirmingitch Veteran
squirmingitch
Posted

Would we have our celiac bloodwork affected for eating oats if we happen to be one of the people affected by eating even gluten-free oats? 

I can't say definitively because I haven't read it in any medical references but I'm going to venture it could be possible BUT that would depend on how much & how long one had been eating them AND only if you're one of those who has an actual T cell reaction to the cert. gluten-free oats. 

iBelieve Newbie
iBelieve
Posted

I eat certified gluten-free oats almost everyday for breakfast and I feel fine from it. I would die if I had to stop eating oats seeing as I can't have bread ( I don't like any gluten-free breads). I need substance and some good simple carbs at breakfast or I don't feel good at all. I just worry now if eating them will keep my numbers up should I get tested again. I was just diagnosed ( after being undiagnosed a few years ago after biopsy) and my number was 250. I was told my doc has never seen s number this high. I only ate gluten for about 5 weeks in order to get the blood test again but have been eating 90% gluten-free since my "undisgnosis" a few years back. 

squirmingitch Veteran
squirmingitch
Posted

Have you ever heard the old saying, "Don't borrow trouble"? Don't borrow trouble. If you're eating them & you feel fine then go ahead & keep enjoying them. I don't think your high number was from the oats alone. You did say you were eating 90%. That 10% is what got you. That along with your 5 weeks of gluten gluttoning gave you your numbers. Unless you're having reactions then the oats won't hurt you & you would know if you were having reactions so don't worry, be happy & eat your oats.:)

Swise Newbie
Swise
Posted

Hello Fellow Celiacers.

 

I was diagnosed 10 years ago, and its been fairly good since. About 2 years ago I tought myself to eat oats (Oatmeal) for breakfast. Never used to. gross..lol  Now I have been really suffereing bad with aches, pain, severe neck stiffness and headaches, migraines, stiffness and now hair loss and breakage.  I am also under a great deal of stress but I have always have been, but being in such cronic pain all the time...having NO energy all the time will make one stressed. Saw a naturapath Doc yesterday and she suspects the oats I eat every single day but I was always told Oats were fine.  Mine are Wheat free...

No one can seem to get a handle on whats wrong.  I am miserable :(

 

Any ideas. 

Swise Newbie
Swise
Posted

Sounds like all of my symptoms with gluten free oatmeal. I cannot eat any oats. My dad and sister with celiac can't have gluten free oats either. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      Pear Bread

      I adapted this to be a gluten-free recipe from www.tasteofhome.com/recipes/autumn-pear-bread. Wonderful flavor profile, great texture, fairly easy to make. The almond flavor from the almond flour complements the pear flavor. Ingredients 1 cup almond flour 1 cup sweet rice flour 1 cup millet flour 2 Tablespoons tapioca flour ...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Amiah's blog entry in Amiah
      2

      Help!!

      I agree with Trents' reply. In addition ... Your post does not say what you did with your child's diet after the blood test and prior to the endoscopy. Usually the Dr advises a "gluten challenge" prior to the test so that the inflammation is more pronounced and easier to see. On the other hand, if they didn't mention this, you may have reasonably restricted...
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Doctors
      12

      Second chance

      @Jmartes71, I understand how frustrated you feel. I have been disappointed with the medical system myself. Have you read my story in my blog? What can we do to help you get better? Nutritional deficiencies are common in Celiac disease. Have you been checked for vitamin and mineral deficiencies? Which supplements are you taking?
    4. Mari
      - Mari replied to Jmartes71's topic in Doctors
      12

      Second chance

      hi jmartes This is a link you can click on to see a form to fill out to obtain medical records from Kaiser. If you have already submitted this form you could send in another one. . The form asks for your MR# and please remember to put in the name you were using before you were married. How to Request Copies of Medical Record from Kaiser Permanente...
    5. trents
      - trents replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test interpretations

      It would seem then that your next step should be a biopsy to check for damage to the villous lining of the small bowel. But you must not reduce gluten intake until that is performed else healing will take place in that area of the intestines and the biopsy results would be invalidated.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,685
    • Most Online (within 30 mins)
      7,748
    Cassi41
    Newest Member
    Cassi41
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Pear Bread

      By Aretaeus Cappadocia · Posted

      I adapted this to be a gluten-free recipe from www.tasteofhome.com/recipes/autumn-pear-bread. Wonderful flavor profile, great texture, fairly easy to make. The almond flavor from the almond flour complements the pear flavor. Ingredients 1 cup almond flour 1 cup sweet rice flour 1 cup millet flour 2 Tablespoons tapioca flour 1 cup sugar 1 ½ teaspoon baking powder 1 teaspoon baking soda 3/4 teaspoon salt 1/4 teaspoon ground nutmeg 6 tablespoons cold butter 3 large eggs, room temperature 3/8 cup buttermilk (1 tsp white vinegar + 3/8 cup milk) 2 teaspoon vanilla extract 1 ½ cup finely chopped ripe pears (1-2 med/large pears. You could peel them but I don't) Directions (optional) cut butter into pats, place on saucer in the refrigerator while prepping other ingredients In large bowl, combine flour, sugar, baking powder, baking soda, salt and nutmeg. (I use a whisk to mix) Cut in butter until mixture resembles coarse crumbs. (I use pastry blender) Combine eggs, buttermilk and vanilla (I use same whisk); stir into flour mixture just until moistened. (I use a mixing spoon) Fold in pears. (mixing spoon) Spoon into 2 greased 5 x 8 inch loaf pans Bake at 350° for 35-40 minutes or until toothpick inserted in center comes out clean. Cool for 10 minutes before removing from pans on to wire rack. Allow to cool completely. Not sure how long you can keep this at room temperature because it gets eaten quickly
    • knitty kitty
      Second chance

      By knitty kitty · Posted

      @Jmartes71, I understand how frustrated you feel.  I have been disappointed with the medical system myself.  Have you read my story in my blog?   What can we do to help you get better?   Nutritional deficiencies are common in Celiac disease.  Have you been checked for vitamin and mineral deficiencies?   Which supplements are you taking?
    • Mari
      Second chance

      By Mari · Posted

      hi jmartes This is a link you can click on to see a form to fill out to obtain medical records from Kaiser. If you have already submitted this form  you could send in another one. . The form asks for your MR# and please remember to put in the name you were using before you were married.      How to Request Copies of Medical Record from Kaiser Permanente Form - Fill Out and Sign Printable PDF Template | airSlate SignNow
    • trents
      Test interpretations

      By trents · Posted

      It would seem then that your next step should be a biopsy to check for damage to the villous lining of the small bowel. But you must not reduce gluten intake until that is performed else healing will take place in that area of the intestines and the biopsy results would be invalidated. 
    • knitty kitty
      Test interpretations

      By knitty kitty · Posted

      Welcome, @anya22, Can you tell us more about your diet?   How much gluten containing foods did you eat?  What kinds of gluten containing foods did you eat?  What has your high calorie diet consisted of?   Some gluten containing foods contain less gluten than others.  Cakes and cookies may have less gluten than something like deep dish pizza.   Glad you're here!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.