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What Does The Pain Feel Like For You?

kabons

By kabons
in Coping with Celiac Disease

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kabons Apprentice
kabons
Posted

I was diagnosed 4 months ago, but have been gluten free for about 10 months. I think I am finding that my sensitivity is getting more intense, which sucks.

One positive thing (ish) is that I think I am understanding my body more in terms of how I react. Although, it's a little different each time depending on different factors, especially how much I've eaten. And over time the symptoms have changed too. But lately I've been experiencing an intense pain when I accidently eat something with even a little gluten in it (ie flavouring with barley).

Anywho, I'm really curious what 'glutening' pain feels like for other people. People often talk about the sickness associated with it (which i definitely also get) but not as much the outright pain.

For me, the pain is a stabbing/cramping pain in my lower left side, which sometimes switches btw the right and left. I also feel it at my sides and sometimes lower back. It almost feels like it's in my ovaries (I also have endometriosis so I'm pretty aware of the presence of those guys). It throws me off because it seems like such an odd location for me to be feeling it.

Is this normal!?

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cyclinglady Grand Master
cyclinglady
Posted

Yep, it sounds normal, but remember everyone has different experiences. The learning curve for maintaining a gluten-free diet is steep. Review our Newbie 101 section under the "Coping" section for valuable tips. It sounds like you are getting glutened often! Plus, it can take a while to heal. A long time if gluten is sneaking into your diet.

Take care!

cap6 Enthusiast
cap6
Posted

Everyone reacts slightly differently. Everything you describe sounds quite normal for a glutened reaction. For myself, I feel slightly sick to my stomach, then I get diarrhea, followed by cold, clammy sweaty chills, then comes the vomiting and think I am going to die followed by passing out followed by several days of constipation. This is followed by renewed knowledge that I will go nowhere near gluten....ever! My last glutening was two years ago when I stupidly ate at a friends house. Broke my own rule and paid for it, big!!! I think everyone here has a slightly different reaction. And it can change as you go through the months/years of healing.

nonnarae Rookie
nonnarae
Posted

Well, vomiting was a new symptom for me. Went on vacation and didn't stick to my guns about the food because I felt like such a pain. Yes it is, but I paid for it dearly. 

 

 

First, migraine, then vomiting and then 4 days of gut wrenching pain in the just right of center area under my ribs. Right about the area where tummy meets intestine. 

 

That the stiff neck and swelling seem to last the longest!

 

IS it odd that I think I react very quickly after being glutened/? I am pretty certain it is within 3-5 hours and this past weekend seemed almost immediate after eating at a texas roadhouse.

cap6 Enthusiast
cap6
Posted

Again it is so different with everyone on reaction time. The first couple of years for me I swear I could feel it hit my gut almost immediately, now it takes a few hours.

  • 2 weeks later...
Selfmom5 Newbie
Selfmom5
Posted

Mine varies the longer that I go gluten-free without having any cheating whatsoever my symptoms get more intense. Of course there's the normal stomach cramping just feeling like your stomach sore feeling constipated. Then there are those strange triggers for me when i feel like it's just a trace punt and then I spend the rest of the day and next vomiting and cramping! mine is wrapped up with having auto immune joint pain. So when i Eat gluten it sends my body into a spiral and my joints will really hurt and if I am in a "flare" it feels like porky pine needle coming out of my skin.

Serielda Enthusiast
Serielda
Posted

sigh sorry for double post.

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Serielda Enthusiast
Serielda
Posted

For myself, I feel nauseated with horrendous stomach cramps and joint pain. Other things I deal with is bouts of d and brain fog and my anxiety is in overdrive.

  • 3 years later...
lilfawn Newbie
lilfawn
Posted

This  thread has been so helpful. My tests came back negative, but i experience a lot of these symptoms when  i eat wheat  and grains. 

I get this severe pain underneath my left and right ribs that radiates all down my sides. It feels almost like a burning / tight sensation and almost like the inside of my stomach is itchy! Super bloated to the point of looking pregnant, chronic d, brain fog, irritability, super loud stomach gurgling, gas. 

Ive just started the diet  so I'm  still quite sick, its been about 3 years w untreated symptoms..please tell me it gets better lol

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