Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Synthyroid For Thyroid Contains Gluten


Karli bose

Recommended Posts

Karli bose Newbie

Hello all, I have been diagnosed with celiac last September and I should admit it is a hell road for me .. From severe acid reflux to difficulty in breathing, brain fog and fatigue... Beside that once I got diagnosed with celiac I did my best to go for gluten free but I lost 20+ pounds and look sick . I am trying my level best to eat more calories but seems it is not helping.. Last week I went for a check up and then the doc said " let me change your medicine synthyroid... The binding of the medicine contains gluten.. She prescribed me some gel form capsules... Also seems dairy brings my breathing issue and after all this it seems to start over from beginning and I am already tired ... With two kids and job everything seems to be so hard...I feel like it's like never ending.. Can anyone of you tell me what should I include in my diet that given me energy and extra calories and also gluten and dairy free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

So you have been taking a thyroid replacement all this time and it contains gluten? No wonder you are so sick! Please make sure to call the manufacturer each time you get a prescription filled or purchase an OTC supplement/med. Hard to do when you are so sick, I know!

You should feel better soon. In the meantime eat fat! Add coconut oil to your coffee. Eat the fattiest cuts of meat, eat that crispy chicken skin, add oils where you can (olive oil on roasted asparagus, for example). Do not worry about cholesterol levels now. You need to gain weight! Your thyroid meds should help you with the fatigue. Try to rest as much as possible. Not sure how old your kids are, but get them to help even with little tasks.

Hang in there!

bartfull Rising Star

And avoid dairy at all costs! While it's true that many of us can't digest dairy until we are healed, it sounds to me that you may have an allergy to dairy. It often does cause problems with folks who have asthma and is known to increase mucus in the respiratory system.

StephanieL Enthusiast

Synthroid isn't not gluten free- it's just "not guaranteed" to be gluten-free any more.  I don't think there was gluten in it from my memory and checking the list but I think they have just gone CYA and are now saying they won't guarantee it. 

 

FWIW- We use Mylan brand here.  There are also many adults on here who really prefer the more natural (Thyroid Shield I believe) for thyroid issues. 

etbtbfs Rookie

Use.levoxyl. Guaranteed gluten-free. See glutenfreedrugs.com. Add T3 if necessary, to get your FT3 at least to mid-range. I use T3 as cytomel, cuz it is also gluten-free.

Karli bose Newbie

So you have been taking a thyroid replacement all this time and it contains gluten? No wonder you are so sick! Please make sure to call the manufacturer each time you get a prescription filled or purchase an OTC supplement/med. Hard to do when you are so sick, I know!

You should feel better soon. In the meantime eat fat! Add coconut oil to your coffee. Eat the fattiest cuts of meat, eat that crispy chicken skin, add oils where you can (olive oil on roasted asparagus, for example). Do not worry about cholesterol levels now. You need to gain weight! Your thyroid meds should help you with the fatigue. Try to rest as much as possible. Not sure how old your kids are, but get them to help even with little tasks.

Hang in there!

Karli bose Newbie

Thank you so much @cyclinglady... Yes they says most of the binding in medicine contains gluten so she changed it to Tirosint gel capsules... It does feel a little good now and but the blood work came with the result of low iron she ashes me to work with the pharmacist and get a glutenfree supplement for 300... Do you know any brands that is good iron supplement and glutenfree


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Country life is at least certified gluten-free. I am sure there are others, but with what you have been through, I think an iron tablet that is certified is best instead of relying on the statement "no gluten". Just my opinion.

kareng Grand Master

I am just going to remind people that saying something is gluten free doesn't mean it is " certified" or even tested. Some companies do their own testing. Some just label things with no gluten ingredients " gluten free".

Also, according to a recent study, and it made sense to me, almost no medications use gluten as a binder. I will see if I can find that.

https://www.celiac.com/forums/topic/110762-chance-of-gluten-in-meds-very-low/

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.