Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Synthyroid For Thyroid Contains Gluten


Karli bose

Recommended Posts

Karli bose Newbie

Hello all, I have been diagnosed with celiac last September and I should admit it is a hell road for me .. From severe acid reflux to difficulty in breathing, brain fog and fatigue... Beside that once I got diagnosed with celiac I did my best to go for gluten free but I lost 20+ pounds and look sick . I am trying my level best to eat more calories but seems it is not helping.. Last week I went for a check up and then the doc said " let me change your medicine synthyroid... The binding of the medicine contains gluten.. She prescribed me some gel form capsules... Also seems dairy brings my breathing issue and after all this it seems to start over from beginning and I am already tired ... With two kids and job everything seems to be so hard...I feel like it's like never ending.. Can anyone of you tell me what should I include in my diet that given me energy and extra calories and also gluten and dairy free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

So you have been taking a thyroid replacement all this time and it contains gluten? No wonder you are so sick! Please make sure to call the manufacturer each time you get a prescription filled or purchase an OTC supplement/med. Hard to do when you are so sick, I know!

You should feel better soon. In the meantime eat fat! Add coconut oil to your coffee. Eat the fattiest cuts of meat, eat that crispy chicken skin, add oils where you can (olive oil on roasted asparagus, for example). Do not worry about cholesterol levels now. You need to gain weight! Your thyroid meds should help you with the fatigue. Try to rest as much as possible. Not sure how old your kids are, but get them to help even with little tasks.

Hang in there!

bartfull Rising Star

And avoid dairy at all costs! While it's true that many of us can't digest dairy until we are healed, it sounds to me that you may have an allergy to dairy. It often does cause problems with folks who have asthma and is known to increase mucus in the respiratory system.

StephanieL Enthusiast

Synthroid isn't not gluten free- it's just "not guaranteed" to be gluten-free any more.  I don't think there was gluten in it from my memory and checking the list but I think they have just gone CYA and are now saying they won't guarantee it. 

 

FWIW- We use Mylan brand here.  There are also many adults on here who really prefer the more natural (Thyroid Shield I believe) for thyroid issues. 

etbtbfs Rookie

Use.levoxyl. Guaranteed gluten-free. See glutenfreedrugs.com. Add T3 if necessary, to get your FT3 at least to mid-range. I use T3 as cytomel, cuz it is also gluten-free.

Karli bose Newbie

So you have been taking a thyroid replacement all this time and it contains gluten? No wonder you are so sick! Please make sure to call the manufacturer each time you get a prescription filled or purchase an OTC supplement/med. Hard to do when you are so sick, I know!

You should feel better soon. In the meantime eat fat! Add coconut oil to your coffee. Eat the fattiest cuts of meat, eat that crispy chicken skin, add oils where you can (olive oil on roasted asparagus, for example). Do not worry about cholesterol levels now. You need to gain weight! Your thyroid meds should help you with the fatigue. Try to rest as much as possible. Not sure how old your kids are, but get them to help even with little tasks.

Hang in there!

Karli bose Newbie

Thank you so much @cyclinglady... Yes they says most of the binding in medicine contains gluten so she changed it to Tirosint gel capsules... It does feel a little good now and but the blood work came with the result of low iron she ashes me to work with the pharmacist and get a glutenfree supplement for 300... Do you know any brands that is good iron supplement and glutenfree


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Country life is at least certified gluten-free. I am sure there are others, but with what you have been through, I think an iron tablet that is certified is best instead of relying on the statement "no gluten". Just my opinion.

kareng Grand Master

I am just going to remind people that saying something is gluten free doesn't mean it is " certified" or even tested. Some companies do their own testing. Some just label things with no gluten ingredients " gluten free".

Also, according to a recent study, and it made sense to me, almost no medications use gluten as a binder. I will see if I can find that.

https://www.celiac.com/forums/topic/110762-chance-of-gluten-in-meds-very-low/

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,663
    • Most Online (within 30 mins)
      7,748

    Funnybone
    Newest Member
    Funnybone
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.