Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Guilt

Redhead03

By Redhead03
in Related Issues & Disorders

Recommended Posts

Redhead03 Newbie
Redhead03
Posted

I got married about 2 years ago and was diagnosed about 1 year ago. My husband and I have been talking about trying to have kids. But I can't get passed this feeling of guilt. I have a genetic disease and I know I have a genetic disease. Can I really ask someone else to shoulder the burden of this disease? I know having a child does not guarantee a child who will develop Celiac disease. But I cannot imagine the guilt if I had a child who did develop Celiac disease. Has anyone else dealt with this? If so, how did you overcome it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted

o, redhead, i feel your guilt!  but, we didn't know where my daughter's r.a. and son's type one diabetes came from until i got diagnosed in my 40's.  nothing i can do about it now, and they are pretty awesome people.  i don't think i would want to miss knowing them :)  plus, maybe you won't pass it on or they can actually inherit the gene and never have it be 'active'.  i also like to think that science is going to make some pretty awesome breakthroughs and make it easier for all of us with a.i. diseases.  my opinion?  don't miss out because of 'what ifs' (if you think too hard about it, that's really all life is:  what if this and what if that.  nothing is really guaranteed and it's up to us to make the best of it)  annnnd, if your kid *does* end up with celiac, you will be so awesome at feeding him/her because of your experience.  good luck with whatever you decide and welcome to the forum :)

Gemini Experienced
Gemini
Posted

Hi I'm Eloise and 14

You seem a littel worried to hav children and scared butt don't feel guilty.I think you shoulld hav children somone to love and spoil and hug and giv loads of kisses to.They mightt not gett coelliac you no and if they do you will hellp them gett better and if you don't hav children you will spend your hole liffe wishing you had children if you don'tt hav them now.

I hav celiac and cystic fibrosis and my CF is real bad butt I hav my daddy to giv me lotts of kisses and come to the rescue when I need to go to hosspital my mummy is real sick with MS.I hav two sisters in heaven and one still here.I hope my mummy and daddy never fellt guilty or worried abot having children.I no my life and my families life has been verry very verry hard at times but I am glad I am alive and so glad mummy and daddy had me.i think they ar glad they had me too.My mummy and daddy ar the bestist mostt amazing peopell ever and I no if you hav a son or daughter and if they ar sick or nott they will love you so much no matter what.

Eloise

Well...there you have it, redhead!  This advice comes from the smartest 14 year old in the history of the world so listen to Miss Eloise...she knows only too well how things really work in life.  ;)  :)

caro7 Newbie
caro7
Posted

DITTO GEMINI. What a girl!!!!!!!!!

bartfull Rising Star
bartfull
Posted

Think about this - because celiac is genetic there is a very strong likelihood that you inherited it from one of your parents. Would you have rather THEY didn't have YOU?

 

Life is so GOOD, even with celiac! As Not Me said, with scientific advances it's only going to get easier, and as Eloise said, she is glad her parents had her. GO FOR IT! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      High TTG-IgG and Normal TTG-IgA

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note:...
    2. Scott Adams
      0

      Homemade Gluten-Free Egg Drop Soup

    3. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it. There are...
    4. lalan45
      - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    5. knitty kitty
      - knitty kitty commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      2

      Could Gluten and Alzheimer’s Be Linked? New Research Uncovers Surprising Protein Parallels (+Video)

      Thiamine deficiency has been found in the brains of people with amyloid-beta plaques. Benfotiamine, a form of Thiamine, has been shown to prevent the formation of and remove those amyloid-beta peptides and plaques! Benfotiamine improves cognitive impairment and reduces inflammation. Benfotiamine helps improve blood glucose utilization. Malabsorption...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,840
    • Most Online (within 30 mins)
      7,748
    Pat C
    Newest Member
    Pat C
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      Am I nuts?

      By lalan45 · Posted

      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.