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I Can't Figure It Out!

nonnarae

By nonnarae
in Coping with Celiac Disease

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nonnarae Rookie
nonnarae
Posted

I have been glute free for a very short time. Only about 2 months now, but I am so careful at home. I was feeling better (at least my leg cramps,bloating, constant migraine had been going away). Then we went on vacation. I was gluten ed and I have not been able to feel better since!

I know my house is gluten-free. nothing is allowed in, but I constantly feel gluten ed and the leg pain is AWEFUL.

I have no idea where to start looking for gluten. Uggghh I hate feeling this way.

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bartfull Rising Star
bartfull
Posted

It's a shame that you got glutened on vacation but this setback might well have happened anyway. Many many many of us go through a "honeymoon period" when we first start the diet. We start feeling GREAT. And then a couple of months later we start feeling lousy again. It happened to me.

 

It took a long time to get the damage and it will take a long time to get rid of it. Just be careful with your diet. If you haven't given up dairy it might be a good idea to do so for about six months or so. Try sticking to whole foods (organic if possible) and avoid processed foods. Give it some time.

notme Experienced
notme
Posted

blah, i messed up on vacation, too.  i wasn't as careful as i should have been, even though i planned and packed food, i broke my own rules (2 of 'em   :ph34r: )  now, i'm having a pretty sharp reminder why i made the rules in the first place!!   :angry: (plus, i'm having to listen to the husband tell me 'i told you so", so, adding insult to injury. he's had years of practice, lolz)  nah, he's really very understanding about it.  and patient with me because it will be another 10 days or so before i'm back to 'good' - wah, i should stop whining - i did it to myself... <_< 

 

so, it might take some time for you to recover even without re-glutening yourself.  just inflammation that hates every food.  barty is right, give it time, eat 'clean'  - have you tried a food journal?  helped me figure out what not to eat in the beginning.  stuff might bother you now that you may be able to add back into your diet once you heal up some.  good luck and hope you feel better :)

  • 4 weeks later...
nonnarae Rookie
nonnarae
Posted
  • Author

thank you both for your comments. I have decided I will not eat anywhere that is not 100 percent gluten free. Each time I have tried (with the exception of the sushi place in town) I have been seriously glutned. I can not believe how violent my reactions seem to be getting. If I eat at home I am fine, eat at the sushi place fine, anywhere else and within an hour I have major migraines, vomiting, swelling and then days of abdominal pain and aching everywhere it seems.  

 

 

I have to just come to terms with the fact that I CANNOT eat out. I just seem to be to sensitive, --sighs--

 

positive note is that I have learned to make soooo many things I liked to eat out. mmhmmm I figured out Chinese. all will be well.

jiggles Apprentice
jiggles
Posted

Hi nonnarae

Have you cut out oats and dairy whilst you are still healing , as they can make you feel awful, just like being glutened as lots of new coeliacs can't really digest them until they have healed more ,

  • 3 weeks later...
nonnarae Rookie
nonnarae
Posted
  • Author

jiggles,'

 

 

I am considering cutting out dairy completely. I did replace most of my dairy with almond milk, but have not been looking at the ingredients in products. I might just have to go all out and do the whole foods only and add things in slowly later. 

  • 2 weeks later...
Loretta trying Newbie
Loretta trying
Posted

Since going gluten free on August 1st, I have found that I am reacting to all nightshades, sweet potatoes, beans, cabbage, etc. I also can not eat my vegetables and fruit raw. None of this stuff bothered me before I damaged my intestines. I am hoping to add some of these things back when I heal. I'm trying to do the four day food rotation so I don't start reacting to anything else.

Hard to come up with tasty and interesting food.....(sigh!!!)

 

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cyclinglady Grand Master
cyclinglady
Posted

Since going gluten free on August 1st, I have found that I am reacting to all nightshades, sweet potatoes, beans, cabbage, etc. I also can not eat my vegetables and fruit raw. None of this stuff bothered me before I damaged my intestines. I am hoping to add some of these things back when I heal. I'm trying to do the four day food rotation so I don't start reacting to anything else.

Hard to come up with tasty and interesting food.....(sigh!!!)

 

Soon, you'll be able to add so many foods back in!  After my recently glutening, it took two months to heal.  I could not digest  raw veggies either!  I consumed a lot of fish and stewed meat and well-cooked veggies.  Boring, but easy to digest! 

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    • Wends
      Inconclusive results

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    • Gigi2025
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    • Wends
      Inconclusive results

      By Wends · Posted

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
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