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Celiac Advice

Jimmymtfan19

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Jimmymtfan19 Newbie
Jimmymtfan19
Posted

Been ongoing digestive issues for 2 years. One doc said c-diff, one said bacterial infection. Digestive healthcare specialist said elevated immunoglobins. Thyroid is fine. Ran biopsies and he told me I have celiac. I eat a gluten free diet. Have mild information in intestine. And fatigue arms and legs feel heavy no energy. Also alot of discomfort and tightness in my esophogus anyone want to chime in with similar symptoms or advice. It has improved alot but the fatigue is still there.

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cyclinglady Grand Master
cyclinglady
Posted

Welcome! How long since your celiac diagnosis and how long have you been gluten free?

Jimmymtfan19 Newbie
Jimmymtfan19
Posted
  • Author

Two weeks been eating some dairy and soy have improved alot. I'm wondering is this reflux? Burning and tightness in throat. I wonder how long before I get my energy and stamina back.

GF Lover Rising Star
GF Lover
Posted

Two weeks is like a half second in the Celiac Healing World.  Give yourself some time.  Maybe drop dairy, if villi are damaged you may not be digesting it well.

 

If at around 3-6 months you still have issues then I would look at other sources.  Be sure and read the Newbie 101 thread under the Coping Section to learn how to safely eat gluten free.

 

Good luck,

 

Colleen

Jimmymtfan19 Newbie
Jimmymtfan19
Posted
  • Author

Tightness in throat some burning legs arms feel weak. Headaches fingers even feel tired. Just feel run down discomfort when swallowing. When will these symptoms subside. I just had a baby. I work outside 12 hours a day like this and the wife wonders why I am so tired and can't handle doing much after work.

cyclinglady Grand Master
cyclinglady
Posted

I felt a bit better in about six weeks. Then much better after a year and it took until year two to really feel good. It takes time to heal from celiac disease!

This is an autoimmine disorder. It takes time (and everyone is different) for antibodies to subside and to stop attacking your small instestine. That is why adhering to the diet, avoiding cross contamination and looking for hidden sources of gluten is important! Watch it for gluteny kisses from your sweetheart and the little munchkin! Maybe ask some family or friends to help out with chores instead of bringing meals around until you get back in your feet.

Research, research, research! You want to avoid any set-backs which will impede your healing . Reaso that Newbie 101 thread under "Coping" that Colleen recommended.

Lisa Mentor
Lisa
Posted

What did you blood work indicate?  It might show some essential deficiencies  you may have.  When I was first diagnosed, I had B-12 shots once a week - it helped me tremendously with my balance and speech . Folic was low as well.  After four weeks, I went to once a month and was able to orally supplement after that.  Eat as cleanly as you are able.  Hope you find your way to recovery.

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Celiacandme Apprentice
Celiacandme
Posted

This will definitely take some time. I'm sorry you are going through this. I can sympathize that it is difficult to deal with this while you want to care for and enjoy your young child. You need to be gentle with yourself and give your body time to heal. It can be a long road. As your wife learns more she'll understand more. It is difficult to understand what this does to a body if you haven't experienced it and if you are at the beginning of the diet. Some people feel worse before feeling better. Not everyone but some. It took quite a long time for me to see some improvement. We all react differently. Eat good clean foods that are anti-inflammatory. Make sure you aren't getting cross contamination somehow and that you are taking any vitamins your body needs. Come here and talk to us or ask questions. You'll get there but it won't happen overnight. Keep us posted on how you are doing.

RMJ Mentor
RMJ
Posted

Any chance you're anemic? That can happen with celiac.

Jimmymtfan19 Newbie
Jimmymtfan19
Posted
  • Author

Not anemic blood levels were finer he said antibodies were very high. And my villi were flat and very damaged. I lost 50 lbs and I'm trying to eat clean. No more dairy. Soy should be okright? How about spicy foods

cyclinglady Grand Master
cyclinglady
Posted

Soy was okay for me, but others with celiac disease have had issues with it. Many are bothered by corn too. Hopefully any intolerances will be temporary (6 months to a year).

Your best bet is to eat plain foods that are easily digested. Things like stewed meat, fish, cookies veggies, rice fruit -- comfort foods. Save the spicy foods until some of your symptoms subside. Boring, I know, but you will heal faster!

StClair Apprentice
StClair
Posted

Your symptoms sound very similar to mine--throat pain, heavy fatigued arms and legs and headaches especially. I have been gluten free (I hope) since April 1st, 5 mons. In my experience it has taken awhile to see improvement, though there has been some by this time. I discovered through breath testing that I have fructose malabsorption, due to long undiagnosed Celiac, and a low fructose diet has been the first thing to really help with the GERD. I seem to be OK with a moderate amount of soy, but I need to be wary of the classic acid reflux triggers like fried, spicy, and acidic foods. Between my diets for Celiac, Fructose and Acid Reflux, it's a challenge to plan my food, but it's truly getting much easier now and is starting to feel almost automatic. Good luck navigating these early weeks. It does get easier with time.

Jimmymtfan19 Newbie
Jimmymtfan19
Posted
  • Author

Not a real fix, but while you are healing if you take adderal, you will feel invincible , tried it, I have bad short term memory and focus problems but no ADHD, I feel sharp, crisp and can think clearly, have very bad neck problems/pain bone spurs, twisted t1 vertebra ect. All of my ailments didn't exist when I took this. And tons of energy.

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