Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

After Switching To A Gluten Free Diet, How Long Can Symptoms Last?


jbindio

Recommended Posts

jbindio Newbie

My 11 year old daughter recently recieved the diagnosis of "can't with 100% certainty she has celiacs and can't say with 100% certainty say she doesn't." This was after all the blood testing, the endoscopy and colonoscopy. There was some damage to the villi which brought the gastroenteroloigist to this conclusion. I've now had my daughter on a gluten free diet for a week, but she is still experiencing abdominal cramping and frequent trips to the restroom.

 

How long can these symptoms last after going gluten free? Are there suggestions for helping ease the pain and symptoms?

 

I'm new to the group and appreciate the help.

 

JB.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Kids can spring back pretty fast, but adults can take much longer. Usually it takes six months or years to feel better. But your daughter should see some results in a few weeks. Please read the "newbie 101" section found under the coping section of this forum. It contains valuable tips as the gluten-free diet has a steep learning curve. My advice is to research all that you can to avoid hidden gluten and cross contamination. Avoid going out to dinner until you see some improvement is helpful. Remember, each gluten exposure can set her back a week or more!

jbindio Newbie

Kids can spring back pretty fast, but adults can take much longer. Usually it takes six months or years to feel better. But your daughter should see some results in a few weeks. Please read the "newbie 101" section found under the coping section of this forum. It contains valuable tips as the gluten-free diet has a steep learning curve. My advice is to research all that you can to avoid hidden gluten and cross contamination. Avoid going out to dinner until you see some improvement is helpful. Remember, each gluten exposure can set her back a week or more!

Thank you cyclinglady! But, I could not find the newbie 101 section.

nvsmom Community Regular
jbindio Newbie
cristiana Veteran

I had a temporary dairy intolerance which meant that even a few weeks after DX and going gluten-free milk went 'straight through me' and I had stomach pains and D.  

 

During those early days I still found small quantities of hard cheese tolerable though and tried to get my calcium through other sources.  Now my villi are healed - well I believe they must be nearly there after 2 1/2 years -  I can drink milk again but occasionally find that if I drink too much I need to give it a rest for a few days, as I will get mild abdominal pain again.

 

As dairy products are an important source of calcium for children if you decide to go down this route I think it would be good to consult with your doctor/nutritionalist.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,480
    • Most Online (within 30 mins)
      7,748

    Randi44
    Newest Member
    Randi44
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.