Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help


AaronsWife

Recommended Posts

AaronsWife Newbie

My husband is in SO MUCH pain constantly. We just started a gluten free diet today but even when he eats something as simple as applesauce, he's in pain and running for the bathroom. I can't stand to see him this way. What do we do? What direction do we go? When will the pain let up after going gluten free?

 

PS - We just lost insurance due to a job change so we can't even get further advice from doctor right now. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Does he have Celiac disease? If not, being gluten-free might not make any difference. If he has Celiac, it can take at least a few weeks to feel noticeably better and even a few years to become completely " normal".

AaronsWife Newbie

After bloodwork and ruling out so many OTHER things, the doctor highly suggested Celiac but that is as far as we got before insurance cancelled. He has almost all signs/symptoms including the rash and some things are easier on his gut than others, like rice. He tolerates rice better than bread. We're in a trial and error phase right now I guess.

cyclinglady Grand Master

If he is going to go gluten free, then I would advise looking at our Newbie 101 thread found under "Coping":

https://www.celiac.com/forums/topic/91878-newbie-info-101/

It discusses cross contamination (yes, you can gluten your hubby by kissing him after consuming a piece of bread or whatever contains gluten) and hidden sources of gluten like medication, supplements, etc.

Time to heal? It can take months to years to heal. Everyone is different depending on damage and the learning curve is steep for adhering to the gluten-free diet. If he has DH (celiac rash) it can take a very long time for antibodies to leave the skin).

Check out the rest of the forum and start learning and welcome!

I hope he feels better soon!

LookingforAnswers15 Enthusiast

Hi, I really do not have a medical advice to offer. However, since your husband cannot go to a doctor now and he does have to eat, concentrate on plain food. Since he can handle rice, just plain rice (unsalted) might help him. They usually give it to patients after surgeries, I think. Also, I might sound silly since I already told someone else to eat bananas, but I would recommend that he eats that instead of applesauce. I just remembered that even when I was sick and no one even thought of celiac (although looking back there were typical celiac symptoms), I only could handle eating bananas. I know that applesauce is sweet but at the same time I think apples are considered to be good for losing weight and can be sometimes somewhat sour, so I would avoid that. Also avoid sweets, processed food, and spices. Good luck!

squirmingitch Veteran

Bone broth. Made this way:

Open Original Shared Link

 

Many, many people have found this is one of the only things they can get down & will stay. It's rich with nutrients and nourishment. Fresh pears but you might want to cook them in some water to make it easier for him to digest but don't try the canned ones as they will be full of sugar.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,125
    • Most Online (within 30 mins)
      7,748

    AndreaY
    Newest Member
    AndreaY
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.