Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Oh Why?

bartfull

By bartfull
in Related Issues & Disorders

Recommended Posts

bartfull Rising Star
bartfull
Posted

I told you all about my success with the gin-soaked raisins. And I told you all about the terrible psoriasis flare I've been dealing with. Well I just figured it out.

 

The golden raisins are treated with sulfites. Sulfites can cause psoriasis flares. It makes sense because even though the P started flaring after a gluten CC, it never went away. I started the raisins right about that time.

 

So now it looks like I have a choice. Either live with crippling arthritis in my wrists and fingers, or live with crippling psoriasis on my hands and feet.

 

I just can't win. :angry::( :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Can you dehydrate your own raisins? does anyone make them without the extra sulphites?

 

 

Open Original Shared Link

 

 

You might have to order them because you live in the middle of no Whole Foods!

 

 

Open Original Shared Link

 

Open Original Shared Link

bartfull Rising Star
bartfull
Posted
  • Author

The problem is the sulfites are what makes them work. A FEW people have said the dark raisins work so I guess I'll try that. I just mixed up a batch or the golden ones last night so I think what I'll do is wait. Stop eating the raisins and hope the P goes away and the arthritis pain doesn't come back. If it does, I guess I'll buy another jug of gin and try it with dark (no sulfite) raisins. I can always give the new batch I mixed last night to a friend.

squirmingitch Veteran
squirmingitch
Posted

Ohhhhhhh Barty! {{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}} Darned if you do & darned if you don't. What a fix to be in. I got all excited at Karen's idea of dehydrating the golden raisins yourself.

Okay, so you'll experiment. If even the dark raisins fail then you owe it to yourself to try dehydrating the golden raisins before you give up the trials. Maybe either the dark or light will help to some degree. I'll be keeping my fingers crossed & sending the positive thoughts & prayers your way.

mommida Enthusiast
mommida
Posted

So sorry to hear that Barty.

 

Can you start looking into more homeopathic remedies?  Any research on medical marijuana?, such as the oil that can have the chemical compound removed that causes the "high" ?

 

I know someone using it for the joint pain from cancer treatment.  It seems to be working well for the joint pain and with chemo therapy the tumors have been shrinking.  Just an idea to discuss with your doctor.

mommida Enthusiast
mommida
Posted

Other studies suggest apple cider vinegar and cherries.  The amount of cherry juice would be about 45 cherries a day and I'm not sure if any tablet form shows the same preliminary results.

nvsmom Community Regular
nvsmom
Posted

Oh geez.  :(  I hope some of the other suggestions work for you. I'd hate for you to have to abandon something that was working..

 

(hugs)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,007
    • Most Online (within 30 mins)
      7,748
    Ellen Watts
    Newest Member
    Ellen Watts
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      i am australian. we do have plenty of substitutes, but most are very expensive compared to the originals. i believe i'll just stick to home cooked meals and not have many treats at all. it's sad but it's just so much easier. also, ive heard far too many horror stories of people ordering gluten free food from restaurants and cafés, explicitly telling servers and kitchen staff that cross contamination is a strict no go, and they still get very sick. until i find a reasonably priced fully gluten free kitchen somewhere, i am not eating out for my safety and sanity.
    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      thank you all for the kind words and support. it truly means a lot. i know i will adapt, it really just is a grieving process right now though. looking forward to feeling healthier!
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Wends · Posted

      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
×
×
  • Create New...