Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Barrett's Esophagus


cap6

Recommended Posts

cap6 Enthusiast

Is anyone familiar with or know if Barrett's Esophagus is related to Celiac/gluten intolerance. The reason I ask is because my partner had bad diarrhea for a year, starting in May 2014. We maintain a gluten free home for me but she would eat gluten when out and about. Finally after two scopes, in January 2015 she finally was diagnosed with Barrett's Esophagus and as gluten intolerant. She was told to be rescoped in June to check on the progress of the Barrett's. (ok, so we are a little late with the rescope!). She has been gluten free since January and in May the diarrhea stopped. !! (we're older so our bodies prob take longer to heal???!)

To make a long story short ~ we moved and the new doctor wants to rescope to check the Barretts & the gluten intolerance, no problem there, but the doctor wants her to eat gluten for the week before the scope. That I don't get. One week of eating gluten is going to show what? Irritate the esophagus? It certainly won't damage the gut enough to show anything. Any thoughts?

The scope is on Tuesday. A couple of days ago she has a Baskin brownie bites ice cream and surprise! Back came the diarrhea. She is refusing to eat any more gluten, she doesn't care what the doctor wants as says she is no way going back to all of that agony. I pretty much support that but still don't understand the doctor wanting a week of gluten eating.

Any thoughts or imput? Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I probably sound like a broken record (from telling my story so much) but my hubby went gluten-free 14 years ago per the poor advice of my allergist and his GP.  It worked though.  He will be the the first to tell you that I have received way more support from family, friends and medical with my formal diagnosis.  But will he do a gluten challenge?  No way and I can not blame him.  

 

Based on my research (University of Chicago and American GI org), one week is not enough to detect damage from celiac disease.  I believe it is four weeks. 

 

I hope she figures it out!  

mommida Enthusiast

If gluten is suspected to be a trigger for Eosinophilic Esophagitis, one week prior exposure might give a positive result.  Once acitivated, Eosinophils can remain active for 12 days destroying normal tissue.  Samples will have to be tested specifically for eosinophils with red dye by a pathologist.  Most cases of EE are diagnosed during late summer early fall because airborne allergies also play a part in EE.

 

Please discuss this with the doctor if this is what the gluten challenge was for.  (As adults require a higher count of eosinophils for diagnoses than children do and there was very limited gluten exposure.)

cap6 Enthusiast

Thank you for your responses. I knew 1 week was not near enough for Celiac but it is good to know about the Eosinophilic Esophagitis. Thank you. The test is tomorrow so we will see what happens as she won't do the gluten test. The main complaint was the almost year long diarrhea so we will see what happens. I am not happy with the high dose of acid reflux med they have her on....sigh. Thanks for the feedback. It really helps!

mommida Enthusiast

I should also add that eosinophilic disorders can be anywhere along the GI tract. Eosinophilic Gastro intestinal Disorders (EGID)  As I watched my daughter suffer before diagnoses, "D" is also a symptom for Eosinphilic Esophagitis.

I hope recovery is going well.  Were any Schatzi rings, furrowing, or eosinophils found during the scope?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,705
    • Most Online (within 30 mins)
      7,748

    Lyana Chahine
    Newest Member
    Lyana Chahine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
    • deanna1ynne
      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
    • deanna1ynne
      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.